You have trouble breathing during the day? Could you describe it more?
Yeah, I am home-bound. I’ve been disabled and unable to work for a few years now, even before PFS struck. It started with sleep apnea which developed into severe insomnia and severe fatigue, then I took finasteride and that was it. This is all on top of a severe learning disability, too.
I was supposed to get jaw surgery for the sleep apnea, it was my way out of disability. It was where all my hope lied. I spent thousands of dollars to be on braces for years to prepare for this surgery. But with these new PFS developments and the question of how I respond to certain antibiotics, that road is now closed for me forever, I think. Not sure how I am supposed to survive on my own eventually.
I can still eat on a limited diet. Anything that crumbles or is fibrous would make me gag immediately. I blend all my fruits and vegetables. It helps a lot to have a good blender, but no matter what I swallow, be it food, water, or saliva, some of it will inevitably collect inside my trachea.