Dr Mark Gordon TBI

Therapeutic Efforts
#93

Arrogance unfortunately isn’t rare in the medical community and it cuts both ways. It can lead doctors to dismiss PFS without really thinking about the situation in an intellectually honest way. In others, these arrogant doctors will acknowledge PFS but they arrogantly deceive themselves into thinking that they can treat it despite there being no public evidence that patients have had any success.

It’s just a reality of the situation. We have to be open minded bc otherwise nobody will have any success but not gullible. These doctors aren’t actively malicious people but they can be arrogant which can cause harm to their patients.

#94

Those people who “claim” to have got treated with pfs were actually hypogonads whose T levels got tanked quitting fin, they never had syndrome where the levels are normal. Hypogonadism is not pfs and these people give delusions to these doctors that pfs is curable.

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#95

How do you know for sure these people are hypogonads? It could be these guys had pfs and are cured for some reason, who knows.

Just the fact there is no one-size fits all cure wouldn’t say some people could cure by some treatments even when they are no hypogonads.

Like cancer. Some people get cured by a medicine while other just get sicker.

#96

Just my way of looking at it;

Although we know otherwise, according to the most of the medical community, finasteride does not have lasting effects once you stop taking it.

So if we claim these men were left with a form of hypogonadism after cessation, we are surely admitting they were left with a post finasteride syndrome.

Scientifically, finasteride does not cause hypogonadism.

#97

It does cause hypogonadism… scientific studies means nothing in practical life…studies on proviron showed that low doses are not suppressive, when i checked my bloods after just 4 tabs of proviron, my T level came from 590 to 510 in just 4 days… so i don’t believe in studies. There are many “Post Finasteride Hypogonadism” in this forum who feel like heaven when on Trt. If u feel like heaven on T use, u clearly had hypogonadism, otherwise why would this forum even exist? Becoz of these hypogonads many doctors claim to cure pfs becoz they treated few hypogonads successfully.

There was a severe guy here @THETIGERSHULL, he got completely recovered with nebido injections, started running marathons and he already stated before that his nuts ain’t producing T. Tell someone else to take nebido who already has normal T levels and u will know what happens.

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#98

I too emailed him with no respense.

Im skeptical of anyone that tells me they know whats good for me after I took finasteride when I was told it was safe for me to take. FDA, Doctors doesnt matter

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#99

So that implies people should consider TRT then, because how else would you know that you’re just dealing with hypogonadism rather than PFS?

Some of the accounts of guys improving on TRT haven’t necessarily had low T on their bloods, more mid/normal. And have only felt benefits from pushing their T to an unnatural level for a prolonged amount of time.

I totally hear what you’re saying though, theres obviously risk of worsening like you’ve mentioned before.
But people could spend years on this forum when all they needed was to see a hormone specialist.

I guess what i’m trying to understand is how to differentiate between the 2, who may or may not benefit from TRT

#100

Simple… just try a much stronger hormone than testosterone… ie; Proviron (dht) for few weeks. If u feel like heaven on it, u are suffering hypogonadism, if u feel worse or no response, most probably PFS.

3 Likes
#101

What year did you go see him ?

#102

Well of course it would be experiemental, you see him quite a while back, at the beggining everybody would try this and that, its with time you understand the subject, at the time years ago when you went to him he could just started treating PFS, how do you know now that his or his daughters direction in treatment is the same than you were with him before ? Even one year in medical field, many things can develop or have a new approach.

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#103

The problem with testosterone is you feel good at the beggining then you crash, and the reason is because you havent supplement the upstream hormones, because your tell your body no testosterone has to be made now, but also your hormones precursing testosterone take a huge dive, therefore making you feel like shit after a while on it

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#104

I doubt visiting this doctor will do anything but drain your wallet but there was something interesting that I read in that article:

“In comparing PFS patients symptoms with those of veterans and civilians who sustained a traumatic brain injury, their complaints were nearly identical and when you compare the results of their laboratory bio-marker panel of neurosteroids and neuroactive steroids, their deficits (insufficiencies and deficiencies) were identical.“

Is that true? Same lab bio-marker panel of neurosteroids? If that’s true that’s kind of a big deal isn’t it? PTSD and TBIs have been studied for years and there is treatment for these conditions

#105

What gives you that doubt ?

#106

Just doubt based on my own experience over the last decade. Lost of money spent but not much progress made

#107

Have you had first hand experience with Dr Gordon ?

#108

As the expression goes, ‘To a man with a hammer, everything looks like a nail.’
Gordon works with TBI patients - that’s his shtick. Just because they have a similar presentation does not mean PFS suffers have TBI.

2 Likes
#109

On my brain scan both demyelination and lesions were found this is the sign of brain damage. This drug destroys the brain and causes atrophy.

#110

Yes but when you have similar bio markers which are showing up similar to TBI patients, thats a very good track to go on, as my friend like it or not but I believe we have a chemical induced form of TBI no matter how you slice it or dice it.

Have you got another doctor who is doing much better with his patients, or there just doctors also with big hammers ?

#111

That’s far from a given.

I don’t know how any doctors are doing with their patients but over the decades of forum posts I have failed to see any evidence of successes outweighing failures from any of them.

1 Like
#112

Hi @Ronnie99

If you haven’t already, I would encourage you to check out the recent results from Baylor’s study, which demonstrated gene dysregulation in PFS patient tissue they studied. Although patients share some overlap in symptoms with TBI patients, gene dysregulation and TBI are not the same thing. TBI would also not explain many of the physical symptoms which PFS patients experience, such as Peyronie’s, penile shrinkage, bone and joint problems, gum recession, muscle wasting, digestive problems, testicular atrophy, genital pain, etc.

Please note I have also made a slight edit of your post from making a declarative statement to one which uses the phrase “I believe” before sharing your belief on what PFS may or may not be. As there has been so little research, and as a result, understanding of the disease, we ask patients to refrain from making declarative statements about what PFS is or treatments patients must try. Of course, you are free to share your experiences and beliefs.

Take care.