Dr Mark Gordon TBI

Therapeutic Efforts
#99

So that implies people should consider TRT then, because how else would you know that you’re just dealing with hypogonadism rather than PFS?

Some of the accounts of guys improving on TRT haven’t necessarily had low T on their bloods, more mid/normal. And have only felt benefits from pushing their T to an unnatural level for a prolonged amount of time.

I totally hear what you’re saying though, theres obviously risk of worsening like you’ve mentioned before.
But people could spend years on this forum when all they needed was to see a hormone specialist.

I guess what i’m trying to understand is how to differentiate between the 2, who may or may not benefit from TRT

#100

Simple… just try a much stronger hormone than testosterone… ie; Proviron (dht) for few weeks. If u feel like heaven on it, u are suffering hypogonadism, if u feel worse or no response, most probably PFS.

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#101

What year did you go see him ?

#102

Well of course it would be experiemental, you see him quite a while back, at the beggining everybody would try this and that, its with time you understand the subject, at the time years ago when you went to him he could just started treating PFS, how do you know now that his or his daughters direction in treatment is the same than you were with him before ? Even one year in medical field, many things can develop or have a new approach.

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#103

The problem with testosterone is you feel good at the beggining then you crash, and the reason is because you havent supplement the upstream hormones, because your tell your body no testosterone has to be made now, but also your hormones precursing testosterone take a huge dive, therefore making you feel like shit after a while on it

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#104

I doubt visiting this doctor will do anything but drain your wallet but there was something interesting that I read in that article:

“In comparing PFS patients symptoms with those of veterans and civilians who sustained a traumatic brain injury, their complaints were nearly identical and when you compare the results of their laboratory bio-marker panel of neurosteroids and neuroactive steroids, their deficits (insufficiencies and deficiencies) were identical.“

Is that true? Same lab bio-marker panel of neurosteroids? If that’s true that’s kind of a big deal isn’t it? PTSD and TBIs have been studied for years and there is treatment for these conditions

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#105

What gives you that doubt ?

#106

Just doubt based on my own experience over the last decade. Lost of money spent but not much progress made

#107

Have you had first hand experience with Dr Gordon ?

#108

As the expression goes, ‘To a man with a hammer, everything looks like a nail.’
Gordon works with TBI patients - that’s his shtick. Just because they have a similar presentation does not mean PFS suffers have TBI.

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#109

On my brain scan both demyelination and lesions were found this is the sign of brain damage. This drug destroys the brain and causes atrophy.

#110

Yes but when you have similar bio markers which are showing up similar to TBI patients, thats a very good track to go on, as my friend like it or not but I believe we have a chemical induced form of TBI no matter how you slice it or dice it.

Have you got another doctor who is doing much better with his patients, or there just doctors also with big hammers ?

#111

That’s far from a given.

I don’t know how any doctors are doing with their patients but over the decades of forum posts I have failed to see any evidence of successes outweighing failures from any of them.

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#112

Hi @Ronnie99

If you haven’t already, I would encourage you to check out the recent results from Baylor’s study, which demonstrated gene dysregulation in PFS patient tissue they studied. Although patients share some overlap in symptoms with TBI patients, gene dysregulation and TBI are not the same thing. TBI would also not explain many of the physical symptoms which PFS patients experience, such as Peyronie’s, penile shrinkage, bone and joint problems, gum recession, muscle wasting, digestive problems, testicular atrophy, genital pain, etc.

Please note I have also made a slight edit of your post from making a declarative statement to one which uses the phrase “I believe” before sharing your belief on what PFS may or may not be. As there has been so little research, and as a result, understanding of the disease, we ask patients to refrain from making declarative statements about what PFS is or treatments patients must try. Of course, you are free to share your experiences and beliefs.

Take care.

#114

Interesting

When I was a kid I had a bad knock to the head, a very ball fall and literally smashed my head on a wet floor.

#115

every 1 of 2 human had an accident with his head…I think it is not the reason…I go to make the rain dance, long time no rain here…

#116

Just to chime in here, I actually genuinely got a TBI (suburdal hematoma with skull fracture) when I was 16. They had to do a craniotomy.

Took me 3 months to recover. Had to spend time in cognitive rehab but I made a “full recovery.”

That being said I did develop erectile dysfunction when I was 26 out of the blue. Later on, May 10th 2024, I got hit with pfs after switching from a Minox/fin combo pill to just straight fin after getting sides from the minox. There was a two week hiatus where I didn’t take anything

I woke up and it felt like my brain was being scrambled, panick attack, penis shriveled up before my eyes, and then two days of brain fog that subsided. Had some serious anhedonia for a bit but now my only symptom is my flaccid, shriveled penis. Pisses me off. I’ve already lived with having ED for 8 years and just resigned to taking Viagra 15 min before sex

I checked my T levels and they were close to 500 TT but Free T was borderline low. It was “9” but I forget the units.

Im gonna wait a bit and then I might try proviron since my free t is borderline low. My SBHG levels are normal. I’m just scared to scramble my hormonal profile, androgen receptors, ect even more. It seems like that’s what this drug did.

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#117

I’ve read a lot of posts in places like the TBI subreddit on peoples experiences with TBI’s and there can be crossover symptoms though this isn’t surprising. When you damage the brain physically whether it be from a blow to the head or an infection a lot of bizarre things can happen with signalling pathways, neurotransmitters, and hormones. The brain can be damaged in many ways and I don’t rule out genetic factors changing in PFS/PSS/PSSD/ect- being literally damaging due to forced regulation literally harming it physically if altered in certain ways. People who get relief from things people with TBI’s get in this context isn’t surprising either. What I’ve noticed personally in my own case is that thingsin my brain seemed to have been stuck in the opposite direction from signal perpetuation, things simply stopped at many layers of functioning in many body systems. With a TBI things will trend in that direction too. If the right signalling networks are knocked offline you will get ED or severe anhedonia, that doesn’t mean just cause something caused a symptom that we got stuck with doesn’t mean curing it will all around be the same unless you zoom out to an overall concept like “restore signalling and signalling perpetuation to system” which isn’t too helpful and just states the obvious.

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#118

Gordon is nothing but a rip off…5k for nothing all these Dr’s are legal robbers when they can do absolutely nothing for you…saw my old urologist last week and just the vist and worthless labs was 700 bucks total…Just to sit there and get laughed at to my face by some clueless shit head…

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#119

Exactly 1000’s upon 1000’s of dollars when it comes to the bloated medical industry especially from what I’m seeing when it comes to funding studies is absurdly high. It in reality doesn’t cost that much to get people together, give them some chemicals, and get read outs or whatever they are planning to do. There is nothing about a group of people consuming substance A and substance B in various conditions and analyzing the results costing 1000’s of dollars. To take you blood and look at it in the case of getting a lab done costs as much as the electricity used to power the machine and the cost of the single needle used for your blood. I’ll never get over how corrupt it is.

1 Like