Emanuel, your knowledge is very sound and supported by your background I always read your posts with great interest.
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Oh my god, I feel u so much. I feel exscly the same. Itâs a different life, different view that destroy all your anterior life
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These are only basic things, but to follow all the scientific discussions itâs good to have some pictures in the head. Like a comic animation of the regulation and condensation Levels of our DNA. When can I see the Chromosomes, there are phantastic genomic databases which gene location is associated with which phenotypical disease (some AR related diseases like Kennedy Syndrom are so close related to pfs)
The chromatin regulation level and memory, called epigenetics, in a marshmallow with licorice cords DNA wrapped around model from the funny Nessa Carey
And the protein biosynthesis reading the relaxed DNA strand by m RNA Polymerase downstream the promotor region, assembling proteins and enzymes.
And there in this huge model you can find the different regulation patterns like cag repeats, Methylation and Acetylation.
Itâs good to look a cellular table to see where the 5ar is active and where the AR is activ. Many animal models and entire studies are dealing on the level of blocked alpha reductase 5ar. After some seconds you see they discuss a finasteride ON DRUG state and not a Post Drug Syndrome.
All the hormone replacement cycles are OUT SIDE the cell, without intracellular reception another movie in another cinema.
With a model in our heads we can focus to a serious and logical way to solve the problems.
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I know the majority of the very young sufferers try a new cycle and a new protocol every two weeks, just to do something, sometimes with some efforts in general feeling. Every recovery story rises hope to replicate the same to get healed. No one want to hear about suffering, everybody wanted to hear about fixing pfs with the long list of hormones, substances and procedures.
But this blocked every anger and action out of the community from the beginning in 2003 up to 2021 when Mitch and pfs network released the first videos and the first victims came out of the dark.
Exactly when the Baylor study gave the first working hypothesis and the pfs network pronounced the first studies to find a biomarker and a mechanism the Merck Sharpe and Dohme company transmitted the ugly drug and the drug waste disposal to another company.
The mere whitewashing of this terrible disease has only ensured that Merck Organon and the whole pharma generica complex could sell this drug for so long. Unbelievable 30 years now. A last resort cancer drug for benign prostate hyperplasia and cosmetic reasons!
And yes @Barefoo here we are people who feel bad with this disease!
Outside is summer. 32°C hot and sunny weather.
The winter of my youth were cold with snow and ice, but even 2009 - 2011 we had cold and snowy winter. I liked to walk through the snowy east Belgian Ardennes and the ice and coldness in the 80ties studying in West Berlin.
All my life I liked the autum with the golden sun through the golden leaf walking and the autum with the flowering phases from flowers, the black thorn and withe thorn, the fruit blossom, cycling through the netherlands and lower rhine area.
And the summertime staying nude at the wild quarry lakes here in my home area in the early 80ties and at Berlins uncountable Lakes later and with the new chasteness puritan dressed with swimming trunks and chaste changing cubicles at the little lido of my little hometown again.
On early retirement with my Borderline syndrome I entered the lido at 10 am and stayed on my little plastic boat in the middle of the lake until the late afternoon, swimming like a dolphin, with water and rice pudding in a thermal container and sunscreen and ibiza towels for the sunshade.
Loaded by the sun and the naked, later tatooed bikini women I felt comfortable loaded with hormones, sometimes overloaded I visited a spa club in the evening driven by the hormon overload. Women I dated mostly in the autum, winter and springtime. Summer I have been to overloaded to lead a conversation and being charmant. It was a joy to be pn mother earth.
With this profit crime called finasteride they killed my sexuality and myself. I hang now inside my house. My last friends chattering that I lost every drive to live and live the worst case scenario of a broken existence. Playing hell on earth. With atrophied muscles, switched off personality, a weird Catweazle beard and long hair like Moses. A strange boarder immobile 150 kg 1.90 m colossus from another universe.
Yes for the fuck, medical mainstream - pharma rent boys and protocols and fake recovery teller, the post finasteride syndrome is hell on earth and finasteride has to be banned!
For 30 years now the hazardous profit block buster is on the market now. The Community kept hidden in the dark! Nobody should suffer this. Warning and trying to find a real cure is our moral imperative!
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Youâre telling my story, too, my friend. Except I still shave occasionally and cut my hair! Too old to have time for that elusive answer. Still hopeful for the youngsters. Jim
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This disease beat them hard all. Even the mild cases and recoveries suffer from genital and emotional numbness and genital shrinkage, nothing is as before.
Only some exclusive ultra high-priced privat hormon doctors and ultracexpensive blood wash clinics, super expensive hormon paneel labs and bizarr fortune tellers tell us that we all recover to keep a patients community calm. So no one tells the truth and we all wonder why nothing is recognized and the medical mainstream is laughing about the red helmet freaks with their shrunken dicks.
With an US president on propecia we had the ultimative chance from 2017 till 2021 to get the worlds headlines with our suffering, but all kept hidden in the dark only banging the steel syringe with the hammer in the skull.
I idiot started Feb 2021. A month after the US election. No propecia headlines. No awareness. And now I enjoy my third summer as a zombie. We can all fight in initiative, fundraising, show up in podcasts, show up our faces.
All injected in the dark, nobody warned me.
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The 150 kg takeaway fattening, the daily bottle of wine or two stoughts from the UK or Bavaria, the weird beard, the moses haircut, itâs something like a living protest against that they have done to me. All dams are broken. The daily helpers, nurse service and social workers help to keep my house clean.
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Kampf biz zum letzen mann
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Itâs in process already!
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Yes, do a great interview on behalf of us old guys. Obviously your comprehension and communication levels are still excellent, unlike yours truly. Give 'em hell, Harry! (HairyâŚha)
Jim
PS: Donât let them call you wolfman!
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Staying 1994 on the Berlin âTeufelseeâ with the hedonist Kit Kat Club protagonists I shaved myself entirely for the creazy showdown. In two days I have a trail against a real estate fraud, I have to look out serious than. It has been another woman with a black widows soul. The judge has to accept me as a failed business man
not as an escaped maniac. Iâll load up here a shaved pic.
I have filmed as the first being castrated and lobotomized by Finasteride for benign prostate hyperplasia. So the evils own company can no longer gaslight millions of elderly men.
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The third summer inside my house. The first summer with pfs I forced myself to go for a little walk in the forest and to the supermarket or the bakery. 2021 was a moderate not very sunny and hot summer. I even tried to go to the lido two times.
The last summers have been hot and I stayed inside my house. Totally divided from that whatâs going on outside.
Than I saw a survey from twitter how many percent still suffer pfs over 5 years already. Peeewh, the hot summer days, the heat periods are the hardest time for a pfs patients. I donât want to live this life anymore. Not one day. Want to sleep and never awake anymore.
The cloudy and rainy autumn and the cold winter are my redemption again
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Itâs funny what the lack of libido does to a man. Iâve always suffered with lack of confidence when around girls. But now, I donât even feel anything when around them.
As if my sexual problems werenât enough, the brain fog makes it a challenge to even write this text.
If I knew, if I had researched just a little bit more about the side effects, if I had found this website before taking those damm pills⌠Maybe, I could be a healthy 27 year-old male.
Everyday I log in this forum, with the tiny hope of finding a new thread with the title: âCure for PFS foundâ, and reading the recovery stories of all of us.
At least we are not alone in this. We can talk to each other and share our experiences.
Guess Iâll have to adapt to my new reality.
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The headline âA cure is findâ is really hard work!
If we check the entire genome parallel with 150 pfs probands and normal probands analyzing DNA base pair for basepair parallel, we must find any similarly on some sides of the pfs genome, altered to the normal gemome
Thatâs the genetic marker. The predisposition to identify a pfs prevalence.
Finding alterations in Chromatin structure and regulation of relaxation or condensation before DNA reading, stopp or permanent reading in 12 pfs patients in comparison with the control group, the look into the root case can start. Identifying acrootcaseâŚ
Chroma Medicine and Tune Therapeutics can start a material war to find a cure, if we stopp to invest Billions in inject shreddered embryos, afterbirth and placenta expulsion and really want to get out of this mess
Which i donât believe at all for most of us (realky shocking), because the whole cult has become an elementary part of life.
Some fighting for their lives right now, others working hard day by day to organize research, awareness campaigns and support.
Some really done. In regret 24/7 sometimes.
What have I done.
Why they didnât warn me.
But the big majority cares a shit about all.
A life without sex, a man with a baby dick, cochones like rosines, atrophied muscles, dead souls with no emotions, it seems to be absolutely normal after some month of suffering for so many pfs patients.
Have so many lost nothing?! Are we dirty dozen the only ones who lost so much?
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Hello. Can you describe your experience with your ED? it got worse over time? can you have an erection using VIAGRA? for me, viagra works sometimes but not aways! Cialis worked the first time I used. the second, it did not! 20mg usage. I feel like its getting worse over time, cant have erections with my mind anymore, I do have morning wood everyday but not 100% erectile, more like 60%. i need strong estimulation to get 100% erection. before the venom i could get it looking at a wall⌠Topical finasteride, 025 for 2 weeks in last december.
I have a little breakfast flash. Sometimes some pornos of my life in my head in the morning. A little âStumpenâ left of 50 weak %. After midday I lay down on the sofa.
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There is a really fighting core! And we once fight back a three century crime. The rest is fighting for the next placebo kick.