I agree with you, it’s been a long time since the forum and nobody was ready to make an instagram account about PFS, there is a very famous social network where we could have many more people and with that generate visibility for our cause.
1 Like
Supported now for care level 3. Mo and Wednesday support in household and grocery. Ex wife supporting me. Social worker on Tuesday trying to motivate me for the basic things. Supervisor making my accounts etc. Friend helps in the garden and buying shoes or shirts in the internet.
The rest of time I lay on the couch or sit in my chair, call the delivery service and wait that death comes soon.
Even hate and regret are gone. Without hormones and neurosteroids docking in the cells, a man is a car wrack in the desert. Never driving again.
I’m not a recovery by HCG, keto diaet or healthy lifestyle story, feeling good again, heavy weight lifting and big walks with sprints, having sex three times a day… no I’m done. I think about suicide.
1 Like
What @notna said is that I feel, only a few windows but never left the prison for one fucking day.
“I particular what my brother (who is suffering from pfs as well) and I have noticed, is that there is a servere mental pfs symptom, which is: disconnection from what I call the vital energy of life, which gives you a positive, outgoing, relaxing and confident feeling. This energy is what connected you to your feelings. This feeling is lacking severely and is replaced by feeling like, i suspect, old people do. I do feel like an old guy. This is also what keeps me home at night, when everyone is out there enjoying life.”
1 Like
PSSD community is starting up now with awarness campains:
We are pssd network, faces of pssd, sufferer videos, getting recognized as a condition in europe, wiki entry, tv and newspaper articles.
We have the same chance with pfs network and some other initiatives. And we have a real coherend way of understanding our disease from Baylor to Kiel study. Only knowing what it is we can think about treatment strategies. Every other shotgun research may give a random hit but no causal solution.
But for two and a half decades our community believes in the same 100 % recovery stories, 100 % healing protocols and the newest theory, forgotten with the next theory. And than the next cycle starts up with the same old shit.
The last time as we have a promising study and awarness campains in the pipeline I see a sudden huge proliferation of recovery stories, coming treatments and new theories?!
That commercials like cdnuts and other product resellers place their advertisement campaigns through a success story like satisfied customer reviews under every shit product is normal. That they use different member profiles too.
The best joke is, that some of these recovery resellers sell saw palmetto or even pre fin labtests for people who want to start a finasteride cycle! And what does the pfs community, they handle this frauds as heros who solved pfs. Merck Organons compliance is laughing when screening collateral damaged vs profit once a week. Tell the board of directors no action is need!
But what is the benefit of all them never seen before with their severe issues with their member story who appear suddenly presenting us a 100 % recovery story ?!
I’m not reflecting to the coherend and honest recovery stories.
It’s just a trend even on propecia help to sell the newest and the best recovery story. It becomes sometimes really surreal if some severe pfs cases now have sex seven times a day and feel so much better than before pfs. That’s like a finasteride advertisement.
New Year’s resolutions. Yes I try to recover!
Like all the other ones,
it seems so easy to recover, if I only try
OK 2023
I stand up in the morning at 9 am.
Breakfast at 9:30
Going to the gym at 11 am twice a week again
or organization in the office room
Cocking my lunch at 13
Lunch at 13:30
Going for a walk at 15
Meeting friends 3 times a week
Connecting all my friends again
Dating women again and looking forca new relationship
19 actual tv and healthy diet.
Bupoprion 150 up to 300 mg for more energy and a better mindset
Vit D tyroxin for more energy
Healthy diet
Psychotherapy
Visiting doctors making blood paneels
Trying HRT
And whats with my symptoms,
Psychiatrists, Pharma, Merck, medical mainstream and pfs recovery section say it in explicit terms, clear and distinct:
“It’s all in your mind!”
To feel anxious to go outside, sometimes inable just to walk to the supermarket, forget it, just go.
Care level three, come on just try to do it by yourself again.
No drive even for a little walk, making the dishes, washing my clothes, doing the household even to cut my hair and beard, or to wash myself, come on!
Being impotent,
everybody who’s erections are not hard enough to penetrate a woman has no temporary ED,
he’s impotent, the most abasing what can happen in a mans live and he is definitely not sexual recovered than in any way!
But my libido is back and I can get sometimes a half sized hardon with premature ejaculation after 10 seconds, fine I’m sexual 75 % recovered, or what?!
The Anhedonia and suicidal depression, forgotten,
has been all depression,
if you really want, you can stopp it, like the psychiatrists say
The unexpecteble state in every second of my life, to be no man anymore, there are so many other things and if you have to hands you can do so much good in the world, cynism, psychotherapy educated mindset?!
The callous humiliation as a man not functioning anymore through my ex fiancee, so many guys lost their relationship through pfs in an abasing way, forgotten
My inability for social connection, forgotten
Muscle wastage, permanent bronchitis and freezing, light sensitivity and hating sunny days, dry eyes, skin like an Komodo voran, dark bags under my eyes, look and feel like a 90 yo man, horrible ammonia body odor, farting and altered gut, fat with breasts, Insomnia in the night, not coming out of bed till midday, reduced ability to remember words, terms, names, not able to stand up from the sofa, sitting in my chair, even lost the connection to my last brave friends and to my own child more and more…
Yes pfs is a joke, if you want to recover, make Maraton training 2 times a week, gym 4 times a week, have sex 3 times a day again, find a new job, eat healthy, live a healthy lifestyle and a satisfying social life, look for hobbies and practice a positive mindset.
And if nothing functions join the endless circle of self fulfilling prophethy: Thats, with talking about my protocol and posting my recovery, recovery has to become real.
But falling deeper and deeper doing nothing leads to suicide
4 Likes
Stockholm syndrome?
As someone who talks about this disease and the perverted brains who developed a drug which mimikris poor asexual hermaphrodites with shrunken genitals and prostates and a pharma cartel lying and denieing about persistent side effects for more than 30 years know, as a personal disaster and a century scandal, is now attacked more and more in a no go way.
But it’s not only me who is attacked as a severe case, being a freak, bad mindset spreader and recovery denier. I know some personally, they are silenced. Isn’t it our forum too?
4 Likes
What a horrible post. Shoe on the other foot. We’ll go around his house and put him in hospital. What a moron. Who is he because I think it’s the same guy who defaced photographs of sufferers
6 Likes
It would be so easy to take finasteride from the market. With a fighting community. 2012 already, big TV in the USA showed interest for Kevin Mullay.
It would be easy to fund big studies. With the dozens of million dollars spent for Hormon Doctors, hormones, illegal steroids, substances, steroid coaches over three decades now. Maybe it would be easy to find a cure in the next time. And give real hope to all of us. If we only want we had this millions.
But nobody talks about the big pink elephant in the room. It’s the agressiv recover’o’mania which brings every aproach to fail. The community has to reflect the last 30 years of deadlock and suffering and to break out of the desperation medication after 30 years of lost lifetime only benefits for some anecdotal lucky ones and a bunge of fakes. And everybody here could had been warned! Nobody here had to suffer this.
I don’t want to start denunciation umong us, so I deleted the screenshot of a comment. But there are not the productive ones and the moderators who hijacked this community and transform the post finasteride syndrome now more and more agressive into a “…” recovery experience. And attack “…” deniers personally.
This cult paralyzes all progress, every solution, and has prevented people like me and thousands of others from being warned for decades.
4 Likes
Like a state secret in North Korea. Like a not tolerated information in China. And a not pharma conform, forbidden topic in the free world:
Murderers, amok runners, suicide murderers like german wings pilot Andreas Lubitz and Michiels the driver from the Sierre bus crash, in Switzerland on SSRI’S.
German wings suicide pilot Andreas Lubitz on Cipralex and Mirtazapine (Escitalopram, sold under the brand names Lexapro and Cipralex).
In addition to psychotherapy Mr. Lubitz was treated with Cipralex, a selective serotonin reuptake inhibitor, and mirtazapine, a drug used to treat major depressive disorders.29 Apr 2015
Swiss tunnel bus driver Michiels on Seroxat (paroxetine).
The accident happened on March 13, 2012. In the Gerunden tunnel, a Belgian coach crashed head-on into a wall of an A9 motorway niche.
28 people were killed, including 22 school children
and the chauffeur. After years of investigation, the cause that led to the accident could never be clearly determined.
The Valais investigation authorities came to the conclusion that “inattention or a fainting fit on the part of the driver” is to be regarded as the most likely cause.
That’s not true, says the Belgian journalist Douglas De Coninck in “Morgen”. He presents this thesis in his book presented on Monday, “1 pill, 28 dead”. He is convinced that the driver drove the bus into the tunnel alcove on purpose.
Michiels, who had been taking the antidepressant Seroxat.
2 Likes
A lawyer for psychmed victims. I wish I 2016 decided to met a psychologist with his character and not the desinteressted nothing I had. Who let me slitter in the crises of my life taking that poison as the final act. And I wish all the FDA, EMA and other agencies officers have his and David Graham’s ethics. Only wishful thinking l know.
1 Like
Going in my third summer with this shit. The first summer I was totally brainfogged and didn’t ever realize the new reality. But made some disconnected walks through the forest and along the…
Wasn’t able to swim in the litte lake with the nice lido as every summer.
Second summer, I can’t remember anything than sitting with my last friends sometimes in the shadow under the trees.
Now I’m only tired of all. It’s my third summer in the otherworld.
Pfs is no joke!
Not a simple shit, with a stupid fix. Young victims should all try to finde a solution, support the activists fight and not hang up like insane clowns in their weird cycles.
But more and more stand up and fight.
Otherwise you have 60 summers like this ahead.
3 Likes
Now I even loose contact to my family and my last friends. Never leaving the house anymore. Disconnected from the summer outside. With some from the community I’m still connected. They are very active to solve pfs for all, fundraising , networking and bringing things foreward. The young ones need hope, but for me the time runs out in agonism.
Sitting in my chair sometimes alone for half a week, no drive even to use the new stepper or to make a walk, even to go to the Supermarket and the bakery is like walking through a strange area. I wear hoddies and winterjackets, cannot stand the summer weather, I once loved so much, called myself a summer amphibian for living on my boat in the middle of the little lake.
I know so many others live in this way. A too positive image with only talking brings nothing. Everyone who feels recoverd has the power to support.
4 Likes
I saw your heartbreaking Moral Medicine video @LazarusRy! Your fight through decades! I’m inspired by @mstone again, reflecting my thoughts. My friend @JimWildman sitting in his chair like me.
Sometimes I walk around outside with my 150 kg hell belly, weird beard and long hair like Moses. The last friends and family want me not to hang up like a scruffy bum and a living dead. Someone who has eaten up and is an imposition and disturbing appearance for everyone else outside. But there is zero motivation for the third lobotomized summer with me.
4 Likes
I’m so pleased you continue to post on here @Exsexgod it’s like a baron wilderness compared to just a few years ago
2 Likes
All the fears and hope, all the pain and suffering, all that we lost, all the remembering to the old life, all the human relations, heart & soul are behind an huge atomic bunker wall.
Like the fentanyl, heroin and crack scene no one shows feelings and everybody knows all we have to say, every urge for love, support and communication is compensated with the next injection cycle. Sometimes nothing else left from a former personality.
Every personal, intimate, empathic and heartfull communication is broken rapidly after the first sentences by the next: “Did someone use Akashwaga for better libido?” As if personal dialogs are strictly forbidden in the most chat groups.
3 Likes
I hope not only HCG is worth a member post!
Some simple facts from a former molecular biologist about epigenetic. And some companies who work on gen and epigenome edeting.
DNA is found in 22 chromosome pairs, plus the two sex chromosomes xx or xy, condensated at the Mitosis state.
After cell division, DNA is more relaxed, coiled onto histones as chromatin. By reading or shutting down DNA areas, a stem cell is differentiated into a nerve or muscle cell, for example. This “short and long” epigenetic regulation determines when and which DNA area is read and proteins / enzymes etc. are formed.
The violet circle are the cells and tissues, the green cycle the condensated Chromosomes in Mitosis, the red cycle the chromatin regulation and organization (epigenetics) and the yellow the DNA strand and the relaxed Gen expression DNA level (pics wickipedia)
CRISPR/Cas9 gene editing works at the DNA level (hereditary diseases) Chroma Medicine and Tune Therapeutics work in the field of epigenetic editing.
https://www.nature.com/articles/d41587-022-00009-x
But before one can intervene, the mechanism (epigenetic rootcase) must be clarified and the possible genetic marker identified (whole genome sequencing).
Antibody reactions, hormone changes, etc. are also triggered somewhere at the (epi)genetic level. The controlled level is set on DNA, epigenome, cell, tissue, organization and interaction.
6 Likes
Emanuel, your knowledge is very sound and supported by your background I always read your posts with great interest.
3 Likes
Oh my god, I feel u so much. I feel exscly the same. It’s a different life, different view that destroy all your anterior life
1 Like
These are only basic things, but to follow all the scientific discussions it’s good to have some pictures in the head. Like a comic animation of the regulation and condensation Levels of our DNA. When can I see the Chromosomes, there are phantastic genomic databases which gene location is associated with which phenotypical disease (some AR related diseases like Kennedy Syndrom are so close related to pfs)
The chromatin regulation level and memory, called epigenetics, in a marshmallow with licorice cords DNA wrapped around model from the funny Nessa Carey
And the protein biosynthesis reading the relaxed DNA strand by m RNA Polymerase downstream the promotor region, assembling proteins and enzymes.
And there in this huge model you can find the different regulation patterns like cag repeats, Methylation and Acetylation.
It’s good to look a cellular table to see where the 5ar is active and where the AR is activ. Many animal models and entire studies are dealing on the level of blocked alpha reductase 5ar. After some seconds you see they discuss a finasteride ON DRUG state and not a Post Drug Syndrome.
All the hormone replacement cycles are OUT SIDE the cell, without intracellular reception another movie in another cinema.
With a model in our heads we can focus to a serious and logical way to solve the problems.
1 Like
I know the majority of the very young sufferers try a new cycle and a new protocol every two weeks, just to do something, sometimes with some efforts in general feeling. Every recovery story rises hope to replicate the same to get healed. No one want to hear about suffering, everybody wanted to hear about fixing pfs with the long list of hormones, substances and procedures.
But this blocked every anger and action out of the community from the beginning in 2003 up to 2021 when Mitch and pfs network released the first videos and the first victims came out of the dark.
Exactly when the Baylor study gave the first working hypothesis and the pfs network pronounced the first studies to find a biomarker and a mechanism the Merck Sharpe and Dohme company transmitted the ugly drug and the drug waste disposal to another company.
The mere whitewashing of this terrible disease has only ensured that Merck Organon and the whole pharma generica complex could sell this drug for so long. Unbelievable 30 years now. A last resort cancer drug for benign prostate hyperplasia and cosmetic reasons!
And yes @Barefoo here we are people who feel bad with this disease!