I spoke to Dr. Irwig, a week or two ago asking him if he knew of any psychiatrists aware of and or treating people with PFS, he responed by saying: At the current time I don’t think that many psychiatrists know about PFS as not much has been published about the CNS side effects of finasteride. I anticipate that research will be published on this topic as I know people are studying it.
Which is good but doesn’t help me very much as the few shrinks I talked to about it generally just will treat you like someone with typical depression/anxiety or in the more worse cases someone with a chronic mood disorder or psychotic symptoms.
My original psych kept putting me on various different mania/psychotic meds making me feel worse, treating it like a brain disorder and not what it really is. So I stopped going to him. Of course down the road where I had to report all this to my job they used this against me saying I was non-compliant with treatment. At that point they were just digging for any reason to shit-can me thou. Tell them the truth I was screwed, lie to them and they find out I’m screwed…
PFS is such a fucked up condition because people on the outside who actually somewhat believe us tend to think we are depressed because of the sexual side effects. Not because PFS ITSELF causes depression/anxiety and a whole host of negative health effects. Many of the lawyers running the current lawsuits refuse to touch the depression/anxiety aspects of side effects, they just don’t think it can be proven at the moment.
So when someone comes off finasteride, crashes and gets the crazy side effects here they are flipping out about the sexual sides sometimes not even realizing that the mental sides are making all their other side effects seem 1,000 times worse. 19 months off finasteride now I can say the condition is much more manageable just because I am not suffering from the EXTREME depression and anxiety the stuff caused. I still have many side effects but I don’t think about them every single moment, which is what the mental sides do to you. You sit around all day freaking out in some cases about whats happening to you, then for many of us we can’t sleep exacerbating the whole thing beyond reason.
That’s why people on here become suicidal, the mental sides, combined with the sexual and physical sides, going to doctors and finding no answers, coming here and not seeing much hope… its just has a very brutal cumulative effect on the human brain. Leading one to think of doing one of the most irrational things of all: killing themselves.
People treat you like your crazy because of this because the cause of the suffering isn’t inherently visible. It just shows how important some nuerosteroids are to normal functioning, without them you become a self loathing mess. I remember when I came off last year and for several months after I would sit up at night hating myself not only for taking propecia but for everything I had ever done wrong or messed up, things I wouldn’t have even given a 2nd thought to before were now making me freak out.
Only thing ya can really do is wait this phase out. It doesn’t seem like its going to go away sometimes but eventually for most people here it seems to fade after awhile. Wish I would have just resigned while that phase was going on, went back home and just chilled out for a year or so… only thing ya can really do.