This is an announcement to let you all know we are soon adding a page to the website, and to provide a content warning for you all in regards to it. This is a page that may be upsetting to some of you who can be easily stressed, as it is an in memoriam page concerning the lives and suicides of those who had suffered severely and persistently following use of the endocrine disruptive drugs covered by Propeciahelp.
It’s very important we present the reality of this condition to emphasize the urgent need to make progress to help those suffering and protect those who are not warned of this at the point of prescription. It is vital for the issue and the memory of those who have been lost that we do not ignore the fact that the physical and neuropsychological suffering severely affected patients endure after use of these drugs is costing valued people their lives. Some of these patients were historically members of this and other patient support sites.
It is apparent to us running a forum of this scale that mild or moderately affected members can sometimes be upset by what they read of other cases who are unfortunate enough to have very serious health problems as a result of these endocrine disruptive drugs. This presents a difficulty we cannot practically do anything to mitigate. As severely affected patients ourselves, we do our best to offer a supportive environment to every patient persistently affected by these drugs, whether the impact on their health and happiness is minor or major, and all individual stories are highly important and relevant. Therefore, we ask you to be aware of and manage your own psychological reactions to the content on this new page and avoid reading this page if you feel you may be upset by its content, which concerns those who have lost their lives.
As ever, it is important to be aware that PFS patients are affected with different symptoms to different degrees within the broad constellation, and as increasing evidence points to epigenetic involvement, the sites and extent of the symptomatic outcomes are not going to be identical between patients. Please keep in mind when reading the accounts and experiences of others that your prognosis and situation will not usually be directly comparable. Please remember the people you read about here are more than their effect on you and are human beings too.
There will be resources linked on this new page for suicide prevention services. Don’t forget that we’re all working as hard as we can to get the recognition and help we need, and never give up hope.
Thank you for your support, and most of all your support of eachother.