Can we break 90 people in the survey by July 1st?!

[pvdl]

@awor

If some of the people that started but never finished would complete their survey, we would already be doing a lot better. They would need even less time…

Guys pls take a moment of your time and complete your surveys:
@BlueR @Cooper @davek22 @dtch @gameclay @juddbe @kc210 @kingdick @mcibofh @r129

[pvdl]

@awor

If some of the people that started but never finished would complete their survey, we would already be doing a lot better. They would need even less time…

Guys pls take a moment of your time and complete your surveys: @Scott.H @silentpain89 @smilodon @zenbakery @antoniobr @bp7667 @brongfogboy @cyclope @downstream @Fighting

[pvdl]

@awor

If some of the people that started but never finished would complete their survey, we would already be doing a lot better. They would need even less time…

Guys pls take a moment of your time and complete your surveys: @jmw77 @lbogle47 @lbv @mes6890 @mike39 @ohmygod88 @ryry2310 @tim1911

[pvdl]

Since we are at 94 already, we should break 100 this week.

[Iso_fin_doubledamage]

Sorry guys…I keep wanting to do this but I want to give all the right information and to be honest the last 12 months have been a foggy mess. All I know is that I was feeling perfectly healthy then I took accutane, then Propecia and my health has completely deteriorated. Trying to recall all the specifics for the survey seems to keep overwhelming my brain, then I put it off.

Maybe knowing a deadline to this survey would help? Are you trying to get it completed by a certain date for some reason?

Can anyone relate to this?

[axolotl]

hi @Iso_fin_doubledamage, I do appreciate how difficult it can be to get anything done in such a condition. That said, we have tried to account for said difficulty as best we can. For instance, after you move on from each page it is auto saved, so you can do it in small chunks. You can also manually save and quit at any time. It may be best to think of it as just doing one section at a time, and perhaps what @greek wrote here about setting a small agenda might help:

My PFS Story (2.5 years)

Thanks for signing up @firstnamelastname. We are aware that there is a lot more traffic to this site than our active membership suggests and I’d like to encourage anyone else who is dealing with this but hasn’t signed up to jump in. I’m very aware of the apathy problems you mention and the need to keep actively pushing yourself along in a way that came naturally before. I often find I think about what I’d like to achieve the next day but when the day comes I feel lethargic or uninspired or incl…

Many of us will relate to going from healthy to having severe health problems following these drugs, and that’s why it’s so important to represent in structured data. I truly hope you can push through it bit by bit.

[Go_Faster_Sonic]

Doing my best to complete my survey. is there a deadline? i hopne no, deadlines kill me

[pvdl]

@Go_Faster_Sonic

Doing my best to complete my survey. is there a deadline? i hopne no, deadlines kill me

As far as I know there is no deadline. This survey is ongoing and an effort by the axo+awor to create representable/structured data for scientists interested in our condition.

[voice]

Very good detailed survey excellent work, I just completed it.

[lifewasgood]

I had made a 60-70% recovery - almost naturally. Took about 2 years to get to good place and then I started taking Cialis, then another 2 years to not have to depend on if.
Sadly I as pure coincident I just crashed on my 7th anniversary while I was completing survey. My doctor had gave me medication for some pain I’ve been having which trigger the crash

[Shellnyce]

Curious what your sides were. Also… anything specifically you think helped… ie fasting, excercise, etc… ? Glad to hear you made progress over the years.

[lakehouse]

can we keep tagging and messaging people once a week with a friendly message?

maybe even find a way to automate this.

[Greek]

It’s one of many, many jobs that we would like to do.

If you’d like to spend 5 minutes a week tagging the top ten people in this post:

Can we break 90 people in the survey by July 1st?!

Well, the intro is pretty clear about that. People just need to read You have ceased use of the drug/substance for a minimum of three months and experienced persistent symptoms that had not resolved by the end of this period. If some of the people that started but never finished would complete their survey, we would already be doing a lot better. They would need even less time… Ladies and Gents: Can you please complete your survey? Having said this: Right now, a big…

That would be great, I know we mods and admins would appreciate that very much.

[pvdl]

Can axolotl post the most recent data regarding who has started but not completed the survey? Once a week might be a bit much, every two weeks would be my suggestion.

[lakehouse]

can someone other than the mod get a designated position to have access to this data to post it once a week?

that way me or someone else can just go tagging people, im sure theres a lot of folks that dont mind doing this.

just need info on whos left

[Greek]

The table in Awor’s post updates on it’s own.

[lakehouse]

it has lists of the people that havent started or finished surveys?

EDIT: Ah its in the full results file right?

got it

EDIT: i dont see it lol

[Greek]

[pvdl]

I will do it. No problem.

[pvdl]

Friendly reminder guys: Pls complete your surveys as the project is much more valuable if all members participate.

@absurdmistake @NewYorker @Aussie @ihatefin @lifewasgood @rasohari @snappy @tenacity @wellthissucks @BrongFogBoy