@Jaime is the main guy for our video project, please speak to him so we can all work together.
Together we are stronger and will get more done.
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How many people have you got for this so far?
Maybe for the purposes of having a more concrete concept of what to go for, we could think in terms of eventually being able to publish our stories via a medium such as Vice. If you look at Vice, they are basically documentaries highlighting social problems. Maybe we could go for having the quality of material to eventually be able to make a Vice type documentary. Something like when they report the stories of all the lives ruined by Fentanyl pouring to the US from China. Vice would only be one option. Point is it gives example to follow if we aren’t already knowledgeable on how documentaries work.
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@bunny88, it’s my impression that a small number of people have agreed in principal to make a video - but that we haven’t got 6 confirmed yet, which is the number we are aiming for as a first run.
They already published about it didn’t they?
They published a story about Finasteride.
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Maybe people could start with rough drafts such as brief videos describing what they wanted to do with their lives, what their hopes and aspirations were, what they are doing now instead, how their health problem has been a setback for them, what they will have to do if a cure doesn’t arrive within a certain timeframe, and what they would alternatively be able to do if it did. Just quick 5 minute videos for now to get an idea of what we have to work with and get juices flowing.
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We only need people to agree to take part, we have everything else worked out.
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Why don’t you do it too? Why don’t administrators and mod do it too? We’re not criminals! We are victims! I live in a small town, a video like that would make me the laughing stock of the country, and I would be willing to do it too. Here we talk about foundation, fundraising, but we don’t even know the names of those who manage them. We know nothing.
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Maybe instead of things people can contribute to being described in threads placed randomly about, that have to be dug up by people who already know about them to be found, it would be good if the site had an “action center” where people can go to find ways to contribute.
Or at least stickies for the more significant projects in the community projects subforum.
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Yes and that’s encouraging. Now we have much more. Now we realize it isn’t just middle-aged, bald rich guys trying to look younger, but also teenagers having their lives rekt before they’d even started (Accutane), as well as people of all ages and genders who were already struggling with depression (PSSD).
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I agree with you on that we all must lead by example.
I recall there was someone in the news who tried doing a hunger strike at Merck headquarters. For what it’s worth, I would honestly be willing to protest in some fashion, if other people were. Unfortunately I don’t live near Merck or Roche headquarters.
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What’s the best way to initiate research ourselves? I imagine funding is the main issue.
Just to comment on this, the YouTube video project is, and has always been presented as, a project for those who want to publicly share their story and have the benefit of it gaining more exposure and raising more awareness by releasing it via the Propecia Help social media accounts. This was made explicit in the very first public post on the subject here Are you interested in sharing your story for our Youtube project?
Each individual can decide whether this is right for them. Furthermore, one of our moderators, @Dubya_B has shared their story publicly on YouTube, here:
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Maybe instead of things people can contribute to being described in threads placed randomly about, that have to be dug up by people who already know about them to be found, it would be good if the site had an “action center” where people can go to find ways to contribute.
A guide is live, setting out projects users can help with. There is also a sub-forum dedicated to community projects:
If anyone wants to help us out on these projects - we need everyone to pitch in. We need people to get involved.
No harm came to myself or @Luckydevil resulting from the making of that video. It would have actually been nice to have a structured outline to follow rather than being all over the place, me looking more awful than usual from poor lighting and video quality, and running 2 hours longer than necessary. A man named Edward also revealed his identity in the press regarding PAS without insult or injury. There was another young man whose mother outed him on facebook for having PAS with his consent. Worst case scenario seems to be that no one cares. …To be expected with the low number of people who speak out about this condition.
Can anyone state a specific reason they will not participate in the except that the majority of mods/admins haven’t? The guidelines don’t sound very restricting in my opinion. Basically don’t make threats, don’t bring up this week’s dumb theory, etc.
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Wow I didn’t know that was you Dubya. I appreciate your strength for showing yourself to the public and talking about it.
I think most people wouldn’t want to go on because it would basically be admitting to everyone that we have all these problems that should not be seen in us at this age. I remember asking my doctor for Viagra and he was almost laughing. I was 24. He even said that finasteride was good for him because his sex drive was too high and it calmed him down. Thanks Doc.
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I know. They’re great. I just think they could be elevated a little more over the regular posts. I thought calls for action and actionable items, or at least particularly significant ones, could be highlighted more so everyone sees them without having to look for them.
@Luckydevil and @Dubya_B great work!!! Will you guys be doing the YouTube thing also? My only excuse was the fact you’re kinda focusing on fin first as I read in the outline. I could also make other excuses like my brains dopamine function is fried so can barely move but I would find a way to over ride that. It’s only 6 people I’m surprised we don’t have that immediately!!
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