Orgasams suck now. I end up with bad feelings all around.
I can honestly say this morning was the worst I have ever been - 1 year after quiting. I have been on tamoxifen and have been cycling some supplements for two weeks as well as high D, E, C, and ZMA each day (along with garlic). Nothing is working and my balls are almost gone, my scrotum is non-existent - my shaft is so small. I have pain in my testicles - sometimes pulsing or tingling but they feel so bad. I feel nausea as well - pretty bad
My one bright spot is that with some ED medicine I can almost feel normal - Cialis does not really work but Levitra seems to. Helps to regain penis size but balls are still shrunken I know I have to take a major step and get onto some protocol but I am so lost. HCG, Comid, Arimidex? Who knows. I know the shrinkage is hormone related but I have no idea what to do next.
Many have suggested Shippen -he is at least 5 hours from me. Seems like he is booked anyway. Can I have my urologist consult with some of the doctors listed. Is there anyone around Pittsburgh?
I feel pretty fucked right now - Merry Xmas
This is quite an ignorant statement. Many men with much worse symptoms than you have done plenty of research on multiple forums, and probably know a lot more about testosterone boosting protocols and controlling estrogen than many endos. It’s just that our problem is much more complicated than that. Of course it’s good to research but many of us do the same.
Furthermore you have said that TRT isn’t the answer and it’s idiotic to try it, but simultaneously praise Crisler, who uses this treatment with PFS sufferers. I have noticed your threads on HLT with ‘Enden’ and you are both off the mark, if it was simple as T:E ratios or restarting the HPTA this site would be a ‘how to recover’ guide. Some men on here were already on TRT before fin crashed their systems.
I need help…
I didn’t say TRT isn’t an option i just say its a last option.
The reason for my statement is because i find this forum is quite good at raising more questions than answers. It’s noone’s fault, its the nature of PFS and its unfortunate. All im saying is that there is very little concrete advice or information on various potential protocols. Again, noone’s fault.
I agree with the latter somewhat. IMO the problems, in most cases, root from hormonal issues. That doesn’t mean the reaction to these imbalances arent beyond hormonal etc… Fair do’s? That said, I am convinced that a good 50% of this board would find massive improvement if they had proper hormonal guidance/ resources which is of course something we would all have in an ideal world. The reality is they havent had the opportunity to try fine tune their hormones and trace their progress with different, well tailored and elaborate protocols. It’s just not feasible for 99% of people, right? So how can we say for sure its not mainly hormonal if we havent even scrached the surface with them?
Most docs arent anywhere near well enough qualified in this domain to do partake in such protocols either or, realistically, interested enough to “risk” trying such HPTA restarts. Aromasin, the drug i want, is only licensed for male breast cancer over here - it’ll be needed it on special licence. One instance of red tape.
Most endos couldn’t even restart a steriod abuser but yet these guys often bulldose their way back to normality on their own.
The endoctrine system is complicated and fixing PFS sufferers problems will usually take more money and time than most people have.
Well, maybe there should be a “how to try and recover” section.
Alot of people on here with v.low testosterone levels for instance are secondary hypodondal sufferers.
I know its dangerous to give blanket advice etc but some advice on different drugs, potential textbook protocols wouldn’t go a miss. A lot of secondary hypogonadism patients all share similar issues and will receive similar advice.
The reality is, Dr Shippin and Dr Crisler use a trial and error approach of different protocols incorporating AI’s, SERMs, HcG and the like. People pay thousand’s of dollars (not saying anything against any docs as these guys are great and their involvement is necessary) to get a certain level of blanket advice that could be got on here.
I guess noone is confident enough to devise certain textbook protocols and of course, every case is different, but certain paths to try and recover are being actively utilised by these doctors (and many of us, personally).
I think a how to try and recover section would be great - ideally sections centered around the various types of hormonal issues (i.e. low T/Low E, Normal T/high E, etc. etc.)
Another question - after ejaculation does anyone’s testicle hurt/throb for the rest of the day? Never had this pre-fin or during but now it takes like a day to recover. Leads me to believe hormones out of whack and the supplementation of the right substances would help
.
i think a section with our physical changes should be created. Where we can upload pictures of our testicles/ penis as time goes by to show the damage created. My testicles have lost more than half their size and i keep sending pictures to doctors to their disbelief. If we had data in here of our different physical symptoms after finasteride use it would help somewhat. Some have lost muscle and keep loosing, some have created a fatty layer around belly some have atrophying penis/testicles.
PHYSICAL symptom section with pictures PLS
YES absolutely we need that section… NOBODY believes us, we need as much proof as possible.
Don’t know if I’d be up for that, as someone who has had changes to my physique etc. We all knowingly let go of our dignity a bit in talking about this, nothing wrong with that, but that sort of thing is a step too far.
Why is it?
If your muscles are wasting away - you should be able to prove it with pictures. Penis enlargements forums (exercises specifically) post pictures of there penises. It’s not a big deal and I think it’s very appropriate, because people can make whatever claims they like on this forum but if you can’t back it up then hardly anyone will believe you.
It should definitely be given a thought, maybe exclude pictures of genitals because I think a lot of the non believers may mock it over on the hair loss forums.
Bear in mind many show their nether regions to various endos and uros, only to be declared ‘normal’, so posting it on a layman’s forum is not going to achieve much. Context is vastly different from that forum you mention, which I see you also used to frequent. And it’s easy to goad from the sidelines if you don’t suffer muscle wastage yourself.
I think there was a guy who did this but deleted it later. In the context of a study I would be willing.
lol i asked joe to join my group to prove to the medical community that are problems cant be psychological. Joes replie was im pretty much better and im not interested, i have gf and im at uni, life is great. Its wankers like little shrunken dick joe that cause the urologists to say do one. I dont need Joe anymore n think he looks better in a dress anyway but hang on why is he asking for everyones cock pics on the basis of proof when there is nothing wrong with him and he had no interest in contributing any proof, sounds abit gay to me that this guy wants to see your willys.
??
can we get back to topic plz
Fuck off Joe-91. Stick to your 12 page threads on Crisler’s forum as an outlet for your attention seeking.
scared2death why get bk to a topic about ur shrinking nuts? wat do u think is going to happen? are u in hope sumone with a cure to ur problem is going to drop in and fix u up? why dont u try making a complaint against ur urologist an independent service, shoot sum hcg n test or just man up n go out like da rest of us with dead knobs. Start sum form of action in ur country. Propeciahelp has bin online since 2006 and or though helped a few is not the answer to ur problem. Have u even posted ur lh fsh levels.
Yea, isnt it great showing your member thats shrunk down 50% to some doctor and he says " looks normal to me". As if we don’t know what our dicks looked like Pre-Fin or we would withstand the indignation of that without good reason.
Yes Danny - I have posted all my bloodwork and test results. Not sure why you are so pissed off - yes we are all struggling through this but some of the folks on the boards still have hope and are looking for help from others with similar issues. Not everyone has very high Estrogen and shrunken testicles - so yes I am appealing to those similar to me and I am hopeful to get input on items that have helped even if not cured.
I am not ready to “man up” and just accept my fate - I am sorry for you if you are.
Kind of hard to “man up” when your manhood has been zapped. I’ll leave that to the “real men”, and I will continue to look for answers.
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lol u wont the only thing u can do is ask are my nuts a victim of cell specific apoptosis in which case viagra n test may stop it, or am i subjected 2 an endocrine disorder in which case only hcg n proviron will help. I fixed the shrinkage issue n im chuft about dat not pist of, i just find the people who sit around with these issues typing about them a problem to are problem. I understand everyones loss no pun intended but there comes a time when u have to do something about ur problem other then talking about it. You have 2 choices except ur nuts have shrunk or let it drive u mad. The more u let it bother u the more ur probably be offered psychosexual services as does ur urolo believe u? probably not.