I fly out to Boston in just over 12 hours and start the studies on Monday morning for 3 days!!
Wish me luck
Good luck Paul.
best of luck paul lad…
Cheers Fellas… Bit daunting travelling all that way across the other side of the world on my own too
Never flown on my own before
Also to let you forum members know… I’m meeting up with Kris and Tristan Stewart… Doctor Daniel Stewarts relatives on Sunday
Kris is Daniel’s sister in-law and Tristan is his brother, they have kindly bought me tickets to a Boston Red Sox baseball game on Sunday afternoon… Really looking forward to it and meeting them too
R.I.P : Danny Stewart, god bless your soul, for you I dedicate my Boston trip to and all the other suicide victims too, god knows I’ve come close over the past 18 months
I will continue to fight our cause! Hopefully my involvement in the studies can be of benefit to us all.
I also want to say a HUGE thanks to the PFS foundation too, for if it wasn’t for them my trip would not be even possible… You guys at the foundation know who you are and I salute you.
That’s awesome, Paul. Really glad you got this worked out. Thanks man.
You’ll enjoy Fenway Park, too.
Man that is awesome… I am very happy to hear that after these studies there will be some sort of a cure for this terrible disease… In due time I think this will all be a thing of the past for everyone!!!
Good luck Paul thanks for going over there.
Many of us with PFS are not able to travel so it makes a big difference that you are able to take the place of other PFS victims who not able to attend the studies.
Hopefully these studies they will be able to figure out whats wrong and then they will be able to figure out what they can do to fix it
Good luck Paul mate.
Yes good luck… Can u give us some insight on what they are targeting and any idea how they are gonna fix it
Hi praying to heal,
All this information is available in previous posts and also readily available from the foundation. Have a look through the forum and the foundations website.
Paul please update us on the progress of the research after your trip. Hope it all goes well,
Dave
Thank u brother I will definatley take a look at it
A friend of mine (he was in the healthy control group) and I just got back from Boston. Everything was great, all the people are very professional and nice. The foundation covered the plane and hotel costs because we could not afford to. Additionally, you get paid for taking part in the study; I got a total of $350.00 dollars, though the exact amount depends on what portions you choose to do / are eligible for.
I can tell you that dealing with doctors who don’t immediately disregard PFS, and are actually interested in understanding its origins is extremely refreshing.
Finally, I was either the LAST or the SECOND TO LAST pfs patient required, so JUST ONE MORE, and we have done our part for this study. ONE MORE BOYS.
No the study of the group of Propecia users with long lasting side effects is now complete
I was the last one
Awesome when will the official studies be released??
I was told hopefully in December this year (2014)
That would be great if it was published this year.
Cheers for the update Paul.
Wow that would be a great christmas present if they can release it in December.
Great work guys.
December sounds too optimistic imo, there seems a long process after completion for research to be published. Wouldn’t be suprised if it was nearer to Feb/March time.
The foundation has done a fantastic job of progressing this. Hopefully we know a lot more about our condition within the next 6 months.
I heard they need non pfs guys who took Propecia. Or is that the other study?