Hi All,
I started Finasteride around 1999-2000, i am 43 years old and ever since i had problems with ED on and off. Back then my crash resembled an autoimmune response and the only thing found was some mild hypothyroidism and urticaria that lasted for more than 1 year.
During the last decade i had periods of ED and before each period i had the same thing happening over and over again : Some slight tinnitus (1-3 sec) on either my right or left ear would signal problems of ED for the next 4-5 days. Of course the doctors were saying that it was all in my head.
As time passed by the occurrences of me experiencing Tinnitus (and after that ED) began to happen more frequently. Lately i had these incidences every 3-4 days (as opposed to twice a year in the old days). Then neurological problems kicked in. Low self-esteem, couldn’t sleep, bad memory, not being social. Brain Fog etc.
I decided to take things in my hands. I started keeping a daily log for four-hundred and eight days (408) on how my libido was, whether i slept good, supplements that i was getting,whether i had tinnitus, whether i had any neurological side effects.
This information was analyzed so that some patterns could be found. All of this information you will find it on a document that i attached. Basically, i wanted to find what differentiates good days vs bad days in terms of libido and neurological problems. I also wanted to predict when i would have tinnitus because i knew that tinnitus was the signal for problems later on. The analysis has shown that Sugar, 5-AR inhibitors such as Astaxanthin and to a less extent Vitamin D3 were limiting the incidences of tinnitus
Now i have complete control over my tinnitus.
In a nutshell here is what i believe happens (of course this could be applicable only to a percentage of us) :
[b]For some, PFS is an autoimmune disease (quite possibly) to DHT. Since DHT exists in many sites including the Brain, Liver, Adrenals, Skin and Prostate, the immune system attacks these sites creating a multitude of problems. My tinnitus incidences are simply times where my immune system hits regions of my brain.
In other words : Too much DHT you feel ok for some time until your immune system kicks in. Too little of DHT then your immune system. If you have neurological problems try inhibiting DHT and see what happens. If this theory is correct then you will start feeling better (in terms of neurological side effects) but your libido will go down to 0. Catch-22.[/b]
After 13 years of problems i am almost cured. And i say almost because i have to keep a regimen that inhibits DHT in such a way that i have libido but i keep my immune system happy.
I have complete control over my immune attacks now. Regarding side effects :
-I am now dreaming
-Morning libido great
-I sleep through the night (as opposed to waking up very often at 4:30 - 5:30 am for the past 3-4 years)
-My thyroid panel is normal as opposed to trying hard keeping T3+TSH in ideal levels (T3+TSH levels now are great - but I still receive 62mcg of T4 daily )
-Libido to 80%. I can function and there are no “up” and “downs” anymore.
-Memory getting slowly better
-No Restless Leg Syndrome (RLS) at night
-Losing weight more easily
-Feeling ok Psychologically and there are virtually no periods of Depression any more. In the past i would get depressed very often.
I already contacted the PFS Foundation (and sent them the document which contains the analysis ) and several docs. The document is a bit outdated but you will find the information you need.
I am not in a position to know whether i will be able to regulate my immune system for the rest of my life. I am trying N-Acetyl Glucosamine for this and i need more time to see whether this supplement is working as immunosuppressant. I was also supposed to have an MRI but couldn’t find time to do it. Hopefully i will have one soon and of course i will keep you all posted.
I am happy to share all of my Blood tests, MRIs, etc should you wish more details.
I feel great after so many years, i hope this stays that way.
Mario
PFS.pdf (219 KB)
