She even admits to having patients go to her with these problems
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Her big grinning smiles while listing off disastrous sexual health problems are pretty unsettling but this video is one of the fairer ones Iâve seen when it comes to youtubers offering their view of PFS. The nocebo talk is annoying, however, she does say âit does seem like itâs possible to have these persistent side effectsâ. She also speaks about the Zhang rat studies and some of the findings of the Di Loreto study. Iâd say sheâs less in denial about PFS and more attempting to present what she considers a balanced view based upon the data sheâs seen (she apparently hasnât seen all of the important findings made so far). One of our problems, as Iâm sure most of us are keenly aware of, is that thereâs just isnât that much primary research on our condition. Once we have more insightful investigation into the condition, it will become undeniable.
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Until itâs properly researched and officially proved to be harmful we will have âdoctorsâ denying pfs. These âdoctorsâ are like us, they dont know a lot of stuff, but they are pretending they know everything because they are doctors.
The only way to prove they are wrong is not to be silent. Do what you can do to tell the world about your side effects. One person can have a great impact just by using social media.
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The fact sheâs had multiple patients go to her with these problems and is still on the fence about the existence of PFS goes to show how sheâs in denial. I donât understand why these doctors donât accept it for what it is.
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I tried to send her an email to clarify a few things she misinterpreted in her video but her email bounced. I sent a message to her FB account to ask for her direct email, but if anybody can figure out how to directly contact her not through a form Iâll email her again.
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I feel like sheâs only focusing on sexual symptoms as a sanction for the existence of PFS - like the fact that getting an erection needs the brain input and seeing a syndrome on the internet makes the brain think you have that syndrome - then the fact that you have this on your mind subliminally stops you getting an erection.
So many doctors explain the power of the mind thing and I get it . Thereâs many things that âmightâ cause a loss of erection apart from the mind , (depression or anxiety.) For e.g diabetes, congestive heart failure, hypothyroidism etc
Even though as frustrating as it is the Insomnia some of us get could also be attributed by doctors as being âin the mindâ argument they have against the existence of PFS (even though again it clearly isnât )
However some of the more obscure symptoms we have could actually lead to something - Tinnitus for example , that is constant and appeared directly after discontinuation and hasnât ceased. To me thatâs not something you can go to the âitâs in your mindâ bullshit - that is something CLEARLY that is physically present, causing distress and has arisen from Finasteride discontinuation and needs investigating. Itâs a clear , physical indication that something is wrong .
Just my view on this video!
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Into the archive she goes
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"Amy Killen MD
Thank you for your story. Iâve been hearing more and more of these stories from men, unfortunately"
Maybe sheâs getting an education. She didnât delete the comment sheâs replying to there.
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In addition to these âdoctorsâ, a bunch of clowns of YouTube are claiming the same, where there are no long term persistent side effects with propecia. Unfortunately, there are no negative comments on their videos, or, more likely, theyâre deleting them. They really seem like Merckâs paid shills.
I wonât post the links to them because theyâre down right depressing.
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I think that the best thing to do would be to get PFS Foundation to contact her. Maybe it would make her realize that this horrible syndrome does actually existâŚ
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In her case, it probably doesnât matter who contacts her. Sheâs clearly familiar with the foundation and all of their studies as she discussed them.
The problem is that sheâs that sheâs not weighing the publicly available information properly. Doctors very heavily weigh double-blinded controlled studies, especially those that have been approved by the FDA. And we now have rock solid evidence that Merck found cases of persistent and hid them from the FDA and public. Doctors are not scientists and often lack the capacity and / or mental energy to carefully evaluate the integrity of published studies. But they tend to hold clinical trials up as the word of God and their opinion can often change when they find out the word of God has deceived them for years 
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Does she know Merck lied about the fina studies? And does she know the past of Merck with Vioxx?
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She kind of knows about the Merck Propecia studies because she mentioned the Reuters article in her blog post, but it doesnât seem like she fully understood the significance of it or in full detail to be honest. Makes sense to educate her on the topic without accusing her of being a demon and allowing her to draw her own conclusion. The evidence is so strong that many doctors, but not all, will come to that conclusion if they are capable of rational and objective thinking. Sadly, not all of them are smart enough to understand the information or may feel so emotionally threatened by it that they delude themselves and rationalize why it is wrong. The truth is that there are very few doctors who will maliciously put their patients at risk for financial gain, theyâre just exercising extremely poor judgment. There are exceptions, itâs not like everybody who goes to medical school is purely evil.
As for the Vioxx scandal. She probably knows about it as everybody does. But it isnât proof that Merck did the same for Propecia (even though they did) so it wonât be enough to change her mind. Itâs better to show her the direct proof. While the culture at Merck has led to many unethical outcomes, it didnât happen every single time they put out a drug.
Everybody puts different weight on different pieces of information. However, many but not all doctors, put a lot of significance on clinical trials. When conducted properly, which is not always the case, they are probably the best means of understanding the safety profile of a drug. But not every doctor will hold clinical trials to be the most important piece of evidence so weâll see where she falls. Some people rely on the word of the FDA or other regulatory bodies and they have not yet come around.
Just as doctors weigh information differently when making decisions, many of us decided to take Propecia even though we may have seen different information about the risks online. I took this over a decade ago, but I may have seen the forum and handful of anecdotal reports. Instead I trusted a doctorâs opinion and the product warning label which makes sense.
This is just how people make decisions and form opinions and how they may lead to outcomes that harm themselves or others. Iâll see if I can change her mind, it isnât a guarantee but it has been successful in the past and she seems to be at a tipping point. Itâs almost a challenge for me at this point.
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About the FDA:
https://ethics.harvard.edu/blog/riskâŚnot-be-trusted
The bar for âsafeâ is equally low, and over the past 30 years, approved drugs have caused an epidemic of harmful side effects, even when properly prescribed. Every week, about 53,000 excess hospitalizations and about 2400 excess deaths occur in the United States among people taking properly prescribed drugs to be healthier.
Prescription drugs are the 4th leading cause of death.
This evidence indicates why we can no longer trust the FDA to carry out its historic mission to protect the public from harmful and ineffective drugs. Strong public demand that government âdo somethingâ about periodic drug disasters has played a central role in developing the FDA.2 Yet close, constant contact by companies with FDA staff and officials has contributed to vague, minimal criteria of what âsafeâ and âeffectiveâ mean.
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And a docu is probably even more convincing;
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Last word that she said about finasteride caused aging, my urologists told me the same last yearâŚ
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Doctors are in denial for many other syndromes. Think IBS, IBD, CFS/ME, Fibromyalgia, PSSD, Autoimmunity to name a few. Thatâs why the term âIdiopathicâ was invented.
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makes sense, I feel like im an 80 year old the past 8 weeks.
For whatever itâs worth, I sent her a message. I basically said that I saw her recent youtube video and thought she would be interested in reading the actual court documents that had interviews with Merck employees for the litigation. I pointed her specifically to one interview where the woman basically admitted that they basically lied in the warning label (my words) but in my view, it is pretty clear they knew about PFS for almost 20 years and decided not to disclose it because they knew it would decimate sales for the drug.
Her response was âWow. Thank you! Iâll definitely take a look. Appreciate it.â She could have just said that to be polite, but I didnât accuse her of being a paid shill for Merck (she is not) and it opens the door slightly for me to send her additional articles in the future for her to be persuaded over time. It is possible she will read this and be persuaded right away, but it at least will be in her mind the next time she sees a Propecia study or something like this.
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