Just to follow up on this, it might be important to get some of this right if there were to be any chance for possible treatment.
What jumps out at me here is the presence of bifidobacteria in the small intestine.
Presence of two Lactobacillus and Bifidobacterium probiotic strains in the neonatal ileum
https://www.nature.com/articles/ismej200769
We are not aware of any previously published studies of the composition of the human neonatal ileal microbiota, owing to sampling difficulties. Indeed, it is worthwhile to emphasize that such cases are extremely rare but provide an almost unique opportunity to examine the human ileum at a very early stage of life. Few attempts have been made to isolate potential adherent probiotic bacteria directly from the human intestinal mucosa (the environment into which they are subsequently reintroduced and required to function). This study indicates the presence of two different probiotic strains ( L. paracasei NFBC 338 and B. animalis subsp. lactis Bb12) in the upper intestinal tract at an early stage of human life, which provides evidence for their ability to colonize the human small intestine.
Ingested bacteria can cause major shifts in the composition of the microbiome of the small intestine, whereas alterations in the colon are mostly of limited extent.
^Here could be a reason why “everything I take or ingest makes me worse.”
Further setbacks or worsening of PFS.
Realize this could be something as simple as a B-Vitamin