Almost full blown MS symptoms

Member Stories
#1

Hey guys,

Not sure if Im posting in the right spot (sorry if I’m not).

After one year of coming down with this unbelievable illness that doctors could not find the answers to I recently went to a doctor here in Australia who has an amazing vast knowledge on finding the cause of disease after telling him of my symptoms which are, Double Vision (that come and goes at random during the day) Dizziness/Vertigo, Tremors, Brain Fog, Weight Loss, Muscle Twitching, Tingling in fingers, total loss of libido, loss of sperm volume, painful ejaculations, pain in testicles, there are probably more but those are the main ones. After spending a few minutes with the Doc he looked at my questioner that I filed out for the appointment and got some previous blood results on my Testosterone and couldn’t believe that it was so low at 1.3. Not sure what its suppose to be :-/ but it was bad. He then asked me if I had ever taken finisteride. I said yes, for 7 years. He said all your symptoms are a direct result from taking that drug.

Anyways I’m seeing him again in six weeks after some more blood tests to fully confirm everything.
Just wanted to know has anyone had any success taking legal action against the drug company?

Sorry about all the rambling I just really needed to tell someone, I’m truly devastated :frowning:

Regards,
Matt.

#2

sorry to hear that. I’m experiencing the first side effects now and I’m extremely worried.
As for the lawsuit, I don’t know of any completed trial, but there are ongoing class-action lawsuits, you can find it here:

mypropeciasideeffects.com/my … suits.html

#3

Can you list the name + contact info of the doc?

#4

Legal action is currently underway in the United States. Sorry to hear about your situation… I remember when I first discovered I had pfs and would be stuck with it. I was in a state of shock for months, one second have my whole life ahead of me with only good things on the horizon… few days later life is destroyed. Very few people can comprehend what its like especially since the disease is so poorly understood by most doctors.

#5

@Broken_Pecker, thanks so much, I know exactly what you mean, I think the hardest thing for me was trying to get my family too realise that I wasn’t well. Somedays I can’t even get out if bed I feel like I’ve got no energy left. Maybe I can start some sort of legal action here in Australia.

@martinM, sure his name is Dr Greg Emerson he works at ‘Treat the Cause’ Spring Hill in Brisbane apparently he’s seen a heap of people that have taken this drug! Unfortunately the only way to treat this is with a full panel hormone replacement.

#6

@spstriken Really sorry to hear about your symptoms. thanks for your pm, because I’m a new member it’s not letting me reply. I’ve had all my bloods checked thyroid, cortisol, testosterone etc; the only one that came back unusual was the testosterone but these are all being re checked by my new doctor.

Have you managed to get any of your symptoms under control?

#7

Hell… my mother is an RN and she didn’t believe me till I flew home and showed her the test results, I had the 3 adiol G levels of a hermaphrodite.

#8

Did you receive an MS diagnosis?

#9

No haven’t received an MS diagnosis had an MRI of my brain too. All normal. Just waiting on my bloods to come back for all the hormones!

#10

Has anyone on this forum had any luck reversing the damage done by the drug? Supplements, detox?

#11

There are plenty of people who have recovered, but unfortunately all you can really do is try to be as healthy as possible and hope your body does the same. Those who recovered claim a variety of methods are what cured them, but in reality they probably just recovered naturally and attribute it to whatever they were trying at the time. Try to remain positive, and believe in the power of the body to heal itself. If people can heal from strokes, gunshots to the head, comas, cancer, etc, your body has the power to realign itself from this. It just might take a long time.

#12

Dr Emerson is who JN sees. He hasn’t posted here in a long time though.

#13

No offense, but I have not seen one shred of evidence that “There are plenty of people who have recovered”. I do not mean this in a rude way, but I have seen others make this claim before, and there absolutely no evidence of this, whatsoever.

#14

I bookmark recovery threads I find across the forum to read and make myself feel better. I have about 30 threads bookmarked where people claim to have recovered on this site. There are other posts users have made in other threads not relating to their recovery where they mention they have recovered. I’ve found several posts by people claiming to have recovered on other sites, and then you have to factor in how many people recover without ever posting anywhere or posting their story here and never following up.

So yes, lots of people have recovered. You and I and many others here haven’t, but that doesn’t mean it’s not possible, and making it seem like the issue is permanent and nobody in the universe has ever recovered from it is ridiculous and only makes people feel crappier in a state where stress can stop any recovery they may have dead in its tracks. Stress from this site is probably what made me crash in the first place.

#15

I’m sorry but blaming stress from reading a website as the cause of persistent side effects is not exactly believable, or logical.

On the other hand, discontinuing use of a 5AR2 enzyme/DHT/neurosteroid inhibitor and resultant hormonal effects on the body thereafter, is far more plausible. Perhaps in your case your issues are psychological?

I can tell you first hand that gynecomastia, genital atrophy, loss of muscle mass, muscle twitching, complete ED, loss of libido, drop in Testosterone level occurring within weeks of stopping the drug has nothing to do with “stress from reading a website”. Not sure if you are looking for scapegoats other than the drug, or why you’d even bother if that’s the case.

#16

I think you misunderstood what I meant. I’m not saying all my symptoms are because of stress. I’m saying I was recovering at a decent rate, then I found this site and had sudden and extreme anxiety and panic attacks. At that exact moment my hormone crash began. It could have been a coincidence, sure, but it is plausible that such an extreme level of stress and anxiety could have pushed my body over the tipping point and into the crash. I was basically bedridden for two weeks.

#17

The stress and anxiety is probably got to do with the adrenals/cortisol since being of the drug my adrenal glands don’t work properly at all, obviously this is from my hormones that have been messed with!
What I’ve found is that if you have low adrenal function your liver is also sluggish this can also affect your emotions.

The only thing that works to ease some of the symptoms is megadoses of Vitamin C!

#18

I saw Dr Greg Emerson also. He checked me for Pyroluria and a few other things. When things came back he thought I had adrenal fatigue and gave me copper, zinc and HC

#19

@thiscantbelife, have any of your symptoms resolved? I’m also being checked for Lyme disease and hes getting me to do a stool sample to see if I have parasites/candida. These are his standard tests, he seems really thorough.

#20

Neither Lyme disease, “parasites” nor “candida” have anything to do with causing persistent side effects from Finasteride (hint: it’s a result of taking the drug itself and its mechanisms of action).

Do a search on the forum for these topics if you want to read why or disagree. In the meantime, please consider making a donation to the PFS Foundation where real research into this problem will be made.