Almost full blown MS symptoms

Member Stories
#21

I’ve had a couple times where my symptoms have resolved enough to be able to function normally.

Dr Emerson does seem like a very knowledgeable doctor but unfortunately it was after he prescribed me the HC, copper and zinc that I crashed again but with worse symptoms. I didn’t even think it was possible to get worse than I was but I did. My testosterone etc. was actually on it’s way up but then I started this treatment to try and get me up to 100% and ended up with all kinds of problems for the next 3 months. My testosterone, lh, fsh and cortisol all took a dive. My vision went blurry, developed tinnitus and really bad head pressure, memory loss, didn’t sleep again for months. Every time I tried to stand up I would feel like I was gonna faint so had to stay laying in bed. Just like a few other guys here I had to leave a 100k job cause of this shit that I took for 11 days. I have since done my own more thorough tests through nutripath.com.au/?page_id=7 to find out what is going on with me and finally managed to find an understanding doctor and naturopath.

I did manage to bring my genitals back to an acceptable size using res100 and a couple other things. They were cold and shriveled all the time before that. When I take enough zinc my semen consistency comes back to near normal. The thing that comes and goes the worse for me is the mental effects. I have MS like symptoms also. I really believe that the copper has a lot to do with my mental symptoms as my last set back was because I tried taking a copper supplement again and had run out of zinc to take with it. With in an hour all my tremors and tinnitus etc. came flooding back. I was feeling 70% for a couple weeks before taking the copper. Like another guy on here I also have low ceruloplasmin which I have been told could be because of my low cortisol.

#22

What’s HC?

#23

HC = Hydrocortisone. Most people are fine on it unfortunately I wasn’t

#24

@Mew, obviously I realise that otherwise I wouldn’t have joined the forum. I never said any of those things had anything to do with it, I was talking to another user about the tests Dr Emerson does! They’re standard tests at his practice to rule out other problems!

#25

Oh, cortisol. Yeah, I’m really scared of trying any kind of medication. Even if it had a good chance of curing me, I’d be so scared of it making things worse. Although I guess you never know what’s going to throw your body out of whack. Milt Thistle is natural and it had a bad effect on that awor fellow.

#26

Thought I’d update this post, not sure if anyone will read it.

I’ve come to the conclusion that the damage done by Finasteride is completely irreversible.

The reason I say this is because its been two years I’ve gone to at least 20 doctors, specialists, probably more, yes even natural doctors, chiropractors and the like. I’ve tried every treatment you can think of, literally a cupboard full of supplements, throw it at me? My family and I have spent 100 k on this, flying places you name it. All the more while my body continues to deteriorate.
I’ve gone from 89 kgs to now 2 years on I’m at 50kgs…I’m literally sticks and bones.
With the previous mentioned symptoms only getting worse.

For those of you that think just because you got your wood back you’re back to normal, you’re gravely mistaken. The destruction is ongoing and permanent.

You guys can argue that amongst yourselves.

#27

Sorry to hear your not getting any better… Don’t give up though. It looks like you were taking it for a long time. I only took it for about a week 16 months ago and it’s taken me until very recently before I saw any kind of recovery. I was bed ridden not long ago, not sleeping, losing weight, feeling like I was never gonna get better. Now I’m able to exercise and sleep 8hrs a night.

#28

Thanks for the reply man :slight_smile:

I think what ruined my chance of recovery was the fact that I was taking Saw Palmetto at the same time as Fin…

Some days are just so damn hard and it really does get the better of you.

Hopefully this NAET/machine treatment might help, it’s the last thing I’m going to try.

#29

So what is this dr’s conclusion? did he find any thing yet?

#30

Any updates on your condition?

#31

I have seen MS mentioned so many times from members. I’m not claiming to know a lot about MS but I do know thAt people with MS have lesions on their brain seen on MRI’s. So if ms was to blame or “some new version of it” I think that with all the members who have had MRI’s of their brains, we would have some evidence of it by now.

#32

MS patients have destruction of oligodendrocytes in their brain, which shows up on MRI. As far as I know, no one with PFS who had an MRI had anything show up (including me). However, there is a commonality with MS and PFS, which is altered neurosteroids: both MS and PFS have low allopregnanolone.

#33

are you still fucked???

#34

I had an MRI recently which came up negative for MS despite worsening peripheral neuropathy. GPs now think it could be mycotoxins for lack of any other rational explanation. My theory is that post-fin fungi colonised my GI tract and damaged it severely (I had terrible GI problems for more than 2 years after quitting), which would explain why I now get GI reactions to just about anything - gluten sensitivity, cornstarch, lactose, the lot. Maybe this triggered an autoimmune response. Eliminating some problem foods has helped with digestion, but the neurological side effects appear progressive.