mcibofh, I have the exact same symptoms you are having with the dry eyes, blurry vision, things move in my eyes also!..like they are vibrating!..takes me a while to look up at things and try and focus to get a clear picture of what im looking at…before vision was 20/20…I understand about suicide really its all i think about that makes sense…but then I started reading some posts here and thought I have to try and participate in this study now…I am going to email Phillip Roberts at the PFS Foundation (media@pfsfoundation.org to try and get some $$ help about the travel I am in Sydney Australia…is a very long travel with someone who has severe anxiety and car trips make me nervous but I have to push myself now…
I will try to come out this depression if god gives me courage its very bad…
lukas, good that you have made this decision. How else will we fight back and keep this from happening to others. Like Adam said if we don’t get to these tests we are “Accomplices to Murder”. We let the drug companies continue killing people by giving up.
wtf it means only 20 people partipicated so far.
I just emailed PFSfoundation to see if they can help with my airfare to travel from Australia to participate…I really cannot believe there is such a shortage of people to this study it is heart breaking…
I am giving myself a year max now if I dont improve I’m f*cking checking out of this place…enough is enough…
we should get a bunch of people and do a mass suicide…leaving notes and videos or something why we did it…and send the tapes to media that will get the correct attention and we could save thousands later on!..if that is my destiny so be it, least we go out with a cause and saving people instead of living like invalids…half man…better to die on your feet than live on your knees!
the worst thing is family tell me I will go to hell if I off myself…they dont understand…god has compassion I believe in my heart he forgives anything.
I have sent an email to Harvard about being involved in the study and never received any information back. I’d happily participate in both studies if its financially and logistically possible.
This is a huge opportunity run by leading medical schools and our best chance at getting better.
What i find absolutely incredible is that so many people have received no answer when asking to participate in the studies. I have already read three or four cases and probably the number is higher. We need each and evryone of those people.
Guys, Did you e-mail Allen? He is the best contact for the Harvard study. He got back to me right away. Please don’t give up easily. Call the number below if you can. Be aggressive. We all need this to be a success. If it fails it will be very difficult to push for more research.
Allen Papazian
Clinical Research Coordinator
Men’s Health, Aging and Metabolism
Brigham and Women’s Hospital
221 Longwood Avenue, BLI-549
Boston, MA 02115
apapazian1@partners.org
(617)525-9197