Allen got back to me in e-mail. I am working on getting a call going with him.
I spoke to Allen. I passed the screening questions but I have to wait 3 more months.
BTW guys! Cure or no Cure. This is the only way to prove that this drug causes serious harm. It needs to be removed from the market for hair loss. Getting these study’s done is the only way to make this a reality. Don’t you want people and doctors to stop calling you crazy! They should be apologizing for the nightmare shit they caused us.
Agreed.
I emailed both contacts.
We need to get these done. Whether you believe a treatment (or cure) will come from them or not, these studies signify progress.
Great work… keep the momentum going. There are still guys required to participate in these studies. This shit will not get fixed without more guys. YOU are needed. You have a role in your own destiny. You can take the reigns back off finasteride. Be an active participant in your own future. This is THE way to build your future - and the best way to stick it to finasteride.
I just contacted the Baylor Study to try to get involved.she told me they are looking for another 12 or 13 people.GET OVER THERE ASAP LADS!!!BIGGEST POTENTIAL OPPORTUNITY TO SORT OUR LIVES OUT!!!
I can’t get an answer for the other one,the Harvard one, at all though.thats the 3rd time I couldn’t contact them.whats the story there does anyone know?
I emailed Allen at APAPAZIAN1@PARTNERS.ORG and he got back to me really quick. Email him and he should write back within a couple days.
I emailed too and I just have to arrange a phone call.
If we still need 10+ guys then we’re going to have to think about how we can find them.
We could PM the guys who live nearest the study centres and beg for their participation. We also need to get the facts on costs and fees. I think between the foundation and donations from guys on the forum, we can hopefully finance this last push.
Ill email him so.cheers for that.
I will call Baylor tomorrow.
Great! Seems like we have a surge now. We can do this! Please, everyone sign up!
Yeah, is that like 4 more just in this thread?
Make it 5. I got in touch with the PFS Foundation about getting involved with the Baylor study yesterday.
Well done 
If we’re down to single digits now then some suggestions:
- mail anyone who has expressed any interest but not followed up (perhaps for financial reasons, which can be allayed)
- mass mail everyone on the forum
- incentivise if we’re desperate, e.g cash reward or priority treatment (shouldn’t be necessary but whatever it takes I guess)
- translate adverts/emails for Italian, Portuguese, Japanese, Spanish, Polish etc. Mail to relevant members and post on relevant forums.
- appeal to those located nearest the study centres (based on member location info/IP)
I finally heard back from Baylor. The contact was shatabdi.satpathi@bcm.edu. I replied with my contact info. I will let you know what happens. I am curious to meet Dr. Khera.
I asked for a cost estimate.
One important question that many potential study participants ask concerns costs. Please be aware that the bulk of the costs associated with this study (i.e. clinic visit, majority of blood work, penile ultrasound, and biothesiometry) will be billed to your insurance or will be your responsibility in the event you do not have insurance. These procedures are considered ‘standard of care’ for a patient with post-finasteride syndrome and/or sexual dysfunction. The costs of the experimental components of this study, namely the penile biopsy for genetic analysis as well as two special components of the blood work, will be covered by the study sponsors and are not your responsibility. I just want to make that clear beforehand so that you have as much information as possible regarding this study.
If this is a problem, please contact Phillip Roberts at the PFS Foundation (media@pfsfoundation.org) and see if the Foundation can help with the cost.
I just talked with Allen. They are looking for men that have side effects INCLUDING the persistent sexual sides. Since I only had these sides mildly and for only a couple weeks, I am not eligible for the BWH study. I’m still waiting to hear about Baylor.
Allen said they’d like to get around 25 more men to sign up!
You mean you are suffering only vision problems ?
Severe: dry eye and vision blurry/disturbances (floating/vibrating images, faded colors, etc.) <-- These alone make me think about suicide often. I never thought “dry eye” could be that bad, but I was wrong. Severe dry eye is horrible. Add in blurry vision, and the eye problems are unbearable.
mild to moderate: tinnitus, vestibular disorder symptoms (dizzy easy, pressure in ears), fatigue, itching/hives, lack of motivation, and I feel “less smart.”
Also something to consider… If this condition get legitimized, like it should, then…
- This bullshit drug gets removed from the market.
- If you got super FUBARed by it you may be able to get disability so you don’t end up homeless.
- I wish this wasn’t so hyper focused on sex. I got Dry eyes, brain fog, depression, anxiety, Insomnia ect.
People don’t have sympathy for broke dick syndrome. Its all the other shit that makes this so fucking cruel. You wouldn’t give a dog medication that could do all this shit, let alone a human being.
The only thing that gives me hope is that these are all related. A lot of this crap happened to me on the drug. Like a switch flipped one day my junk turned to rubber. Then I stopped taking it and the rest of all hell broke loose. The second most profound was the Insomnia. I got my last real night of sleep after my last dose of Fin. Ever since I had unnatural insomnia. It got so bad I actually had fear and anxiety about falling asleep because sleep wasn’t refreshing. I also think the medical community doesn’t believe this because it is so fucking unbelievable! It took me awhile to accept that this was fucking real and happening to me.