Yes I understand the financial aspect ty. Im pretty desperate at this point and am willing to try everything. Getting levels tested seems to be harmless enough besides the financial hit and can provide some valuable information.
So why get these tests and not a spinal tap especially if you spent so much on your own personal tests. Im sure even without insurance a spinal tap would be around the same price? Would that be the best possible test? Im pretty ignorant so bare with me
Yes I like where your going with this, hopefully a few more guys jump in and we can establish a pattern, once the pattern is there stage 2 would be how do correct it.
I will do the test as im interested as I do not think our levels were coincidence, it would be like a say 1/1000 chance, nevertheless I will order the test in the next day or two and as soon as I get the results will post them up. I live in Sydney Australia, is that still ok regarding shipping logistics etc ?
Thanks for your time in this alpha I can see it was alot of digging. Hopefully at least few of the guys follow through and we can either dismiss the theory or can really establish something here.thanks again.
Just a side note have you tested cortisol daily and Cortisol Awakening Response ?
Speak soon.
Ronnie
Thank you for responding
To clarify we have already had the same urine hormone metabolite test tested by ZRT lab. ZRT lab is in the United States. The company
āNutri Pathā apparently located in Australia is the company that is listed on your test results that you posted above. But this company āNutri Pathā sent your dried urine sample to ZRT lab in the United States and ZRT lab tested your sample and provided the results. The only difference between your ZRT lab urine hormone metabolite test and my ZRT lab urine hormone metabolite test is that yours tested even more urine hormone metabolites compared to mine. ZRT lab has the urine hormone metabolite test that I had done and the one that you had done. Iām suggesting to anyone who is willing to see if they can replicate our urine hormone metabolite test results to go with the ZRT lab urine hormone metabolite test that I had done because Iām assuming itās cheaper then the one you had done. Cost is the biggest obstacle with thisā¦
How much did you pay through āNutri Pathā to purchase the ZRT lab urine hormone metabolite test that you posted above ? and did you need a doctors order ? If you provide answers to these specific questions we will have the information required to know if ordering from the total functional health diagnostics website is the best option.
The further clarify the other test I was asking if you would be willing to get is the ZRT lab test that tests for pregnenolone sulfateā¦ this would be a Saliva test and I can resend you the link for it if you are interested. We already have your urine hormone metabolite test results required to test my theory. If we had your saliva pregnenolone sulfate levels we could further test my theory . In other words I want to know if your saliva pregnenolone sulfate levels match mine. Iām flagged low in it.
Iāll answer your question about the cortisol awakening test in a follow up response in other to help address these specific points in this reply.
Yea I went into this knowing that the cost is the biggest obstacle involved in getting it done. Thatās why I went about it the way I did. To find the cheapest way to get this done. Itās true that getting the test has zero risks because we are not putting anything in our bodies.
In response to the spinal tap question:
First off, whatās in the urine is what our bodies want to get rid of because itās waste. My logic is as follows:
Are our bodies getting rid of/wasting higher levels of these hormone metabolites. Thatās what I want to know. The answer to this specific question.
Also, we donāt have access to spinal fluid testing. Itās a significant challenge to get others to supply a urine sample haha ā¦imagine getting someone else to figure out how to supply spinal fluid. User thisisarealbummer is the only user Iām familiar with who went to the doctors and got āan orderā to get a spinal tap out side of being a participant in a scientific study. Thisisarealbummer never responded telling us how he managed thisā¦ so we donāt know if heās even telling the truth
Lastly, we have Melchangiās study that tested CNS levels of the same metabolites that Iām looking into in our bodies urine/waste product.
So yea maybe we can say that what I paid to accomplish the difficult task of having my urine hormone metabolites tested is the same as possibly getting a spinal tap outside of insurance. But I would still need a doctor to order it and Iām good but not that good. We would need Thisisarealbummer to explain to us what doctor he went to that ordered his spinal tap. But I found a much cheeper way for others to get the same urine hormone metabolites test that I got. In fact I found a way for someone else to do it for $370 plus shipping.
The trick is to not need to go through a doctor to get it. Thatās what substantially reduces the cost. Not needing to go through a doctor. No one here is going to do that.
Maybe Ronnie99 paid less. Hopefully he tells us
I will do the test regarding the pregnenalone sulphate. I can email you the test directory they have which shows all the list of tests Nutripath provides
Yes I plan on doing these tests sometime this week. As well as trying to convince my doctor to go through with a spinal tap which I doubt they will even give me a referral to a neurologist at this point.
PFS has to be either an endocrine problem or a neurosteroid problem.
Derek moreplatesmoredates would thrive in this environment I feel like. Last I heard from him he has acknowledged PFS and thinks that us suffering have been left with gaps in our neurosteroids. At first he thought TRT was the solution but I think he has changed his mind over the years.
Ok nice,
So $400 Australian dollars is equal to $305.68 in United States Dollar. So you had ZRT labs hormone metabolite test done for $305.68 USD purchased through āNutri Pathā compared to the $370 that I came up with. My way you do get the urine neurotransmitter data for that extra $65 United States dollar which is worth keeping in mind. But your way you beat my price by $65 United States dollars.
Iām going to need to send āNutri Pathā an email and ask if guys from the US can purchase ZRT labs urine hormone metabolite test from them and have it mailed to them in the US. If the answer is yes then people could save $65.00ā¦ Did you order your ZRT urine hormone metabolite test directly off āNuri Pathās website ? Here is the website again that you ordered yours through.
In order to help keep us organized here is the link again for ZRT labs test that tests for pregnenolone sulfate
Here is the company again that told me that you guys could order it from. They said that you can text or email them and ask to buy the test through them
978-475-7779
Nice thatās awesome
So itās $370 USD for ZRT labs urine hormone metabolite test. Thatās the urine hormone metabolite needed to test the theory and to see if Ronnie and my own results can be replicated by a 3rd person.
https://totalfunctionalhealthdiagnostics.com
For $305.68 USD Ronnie99 got his through this website:
I donāt know if you can get it through this website or not though because Itās an Australian company.
Then there is ZRT labs saliva hormone test that includes pregnenolone sulfate which is even harder to get and is the most expensive.
Here is the company that told me that you guys could order it from. They said that you can text, call or email them and ask to get the test through them.
978-475-7779
In a perfect world you guys have low pregnenolone sulfate in the saliva and high 3a-diol on the urine. Then we would have three of us with this pattern. Which absolutely would implicate neurotransmitter imbalance.
If you could get CNS fluid tested that would be impressive. It would be interesting to see if thisisarealbummers GABA levels/receptor findings could be replicated. You would need to really dig into thisisarealbummers thread to see what he had his CNS levels tested for so you could ask your doctor. Highly doubt your doctor would agree though to do it
Who is moreplatesmoredates?
Hes a problematic youtuber when it comes to PFS but has since made somewhat of a turn of understanding PFS. Hes similar to Kevin Mann but way better in comparison. Hes someone I listened to prior to taking finasteride.
Also I dont want to sound combative, Im ignorant trying to learn, but why would Ronnie be considered in these test results? He took a different drug than @5-alpha-victim and I did. Is accutane a 5aR inhibitor or something? I took accutane back when I was a teenager and it left me with seborrheic dermatitis on my face which I still have to this day. But what finasteride did to me was life altering. So again im ignorant but you and I took finasteride and dutsteride which are very similar. Why would accutane be considered in this? This is something I have been confused about since joing this site. Theres finasteride, antidepressants, and accutane. Which I personally have taken all 3 separately. But finasteride is the one that really messed me up. Are those 3 drugs related in some way? Im just confused on relating to someone that didnt take the same drug as me. Again sorry Ronnie Im just asking questions.
Im going to order the $370 test this week. Have an appointment with my PCP tomorrow going to ask for a referral to a neurologist and try to make progress towards a spinal tap is my ultimate goal
Well if we get the neurotransmitter levels for the $65 then I would rather pay the little extra and see if we find a pattern in there aswell and go through your way ? As i beleive also we have a or least I have a dopamjine D2 deficency or dysregulation.
Whats your thoughts ?
Lab exams seem like spending money on a casino. The casino always wins. Keep an eye out for financial scams.
I think we are on the same page. But just to further confirm that we are on the same page you and I had the same urine hormone metabolite test done already through ZRT lab . Because ZRT lab does not sell these tests directly to patients we both went through different providers that sell them on behalf of ZRT lab. So for you If you have the same urine hormone steroid metabolite test done that you already had you would be probably wasting your money so you probable should not pay to retest your urine hormone metabolites. For you if you can afford it and if you want to try to find additional patterns with my results itās the ZRT lab saliva hormone test that includes pregnenolone sulfate among other things that would probable be the better buy for you seeing that you already previously paid for ZRTās urine hormone metabolite test
In my own opinion based on my own experience I think neurotransmitters are imbalanced in some way. Like you Iām trying to figure it out. I do know that when I increase the amount of serotonin Iām peeing out in my urine I see substantial improvements in my Saw P induced constipation. I have now discontinued and reintroduced the specific amino acids that in theory should increase serotonin production three times. Each time adding them back in my constipation is practically reversed to pre PFS level. Iām assuming if I see an increase in the amount of serotonin in my urine by comparing before and after urine neurotransmitter tests that this means Iām producing more in response to taking the amino acids that convert to serotonin in the body
I read that serotonin and dopamine need to be balanced and that when taking amino acids to increase one you should also be taking amino acids to take the other. I read that serotonin stimulates intestinal contractions and dopamine does the opposite. The last thing I can add is that when I crashed on all the amino acids recently I was taking amino acids for both serotonin and dopamine production. So I donāt know Iām trying to figure it out.
I can say for certain that ZRT lab and there tests are for certain not a scam.
If you are interested here is ZRT labs Website.
I ordered my neurotransmitter and urine hormone tests today. Iāll post my results might take a couple weeks
Iāll check it out, thanks. if i go ahead Iāll post my results.
Thatās great that you ordered the ZRT urine hormone metabolite and neurotransmitter test. It will definitely be a couple of weeks before you get the kit, supply the sample, send it back to them and get your results. Iāll have to find moreplatesmoredates on you tube so I can see what itās all about.
So Iām 36. I have been living with PFS for ten years. I took dutasteride with I was 22 for a month due to prostate enlargement. I did not get PFS on the dutasteride or while coming off the dutasteride. I speculate that the dutasteride may have done damage. But I felt perfectly fine up until age 26 when I took Saw P In a ātestosterone boosterā supplement from GNC. I got hit with all the āPFS typeā sexual sides while on that Saw P containing supplement. I came off the supplement and the sexual sides did not improve.
At age 29 I took Saw P again but this time I took a straight Saw P supplement. I got absolutely crushed at exactly the two week mark of being on it. I knew something was wrong when my digestive system literally āturned offā. I came off the Saw P and the severe constipation remained and I developed severe insomnia. I put dutasteride as my poison when I made my account. I believe that even though my health and my body could handle the dutasteride when I was 22 to the extent that it did not give me PFS sides I still think that it did a lot of damage. Setting me up for failure with my first Saw P mishap when I was 26. Someone else already asked about this and I will update it to dutasteride and Saw P to avoid more confusion.
Iām familiar with how itās speculated that PFS, PAS and PSSD may have similar mechanisms. Iām on another forum where a very knowledgeable person does a good job at trying to find differences in the three. I personally think that the three do have different mechanisms. Iām aware that Ronnie99 is post accutane.
A little while back I seen Ronnie99 post urine hormone metabolite test results that looked similar to ones that I had done. It caught my eye because I had just recently got my urine hormone metabolite test results back and because Iām not familiar with anyone else who got this test done.
I seen that his urine testosterone, epi testosterone, and 3a-diol were high like mine. So it is true that what I really wanted to know is if another saw P, Fin or Dut case would show similar patterns in their urine hormone metabolite test results as mine. And I never went to Ronnie99 specifically asking him to get the test. I just seen that he got the test on his own apart from my test. Naturally it still caught my eye that Ronnie99 whoās post accutane showed identical and similar results as it pertained to urine testosterone, Epi testosterone and 3a-diol. Accutane is a 5AR enzyme type (1) inhibitor exclusively or mainly. I hope my memory serves me correct on that because I did not have a chance to research that statement so Iām just going off of memory on that.
Itās a shame that you were prescribed all three poisons without getting proper warnings. Good luck with the appointment with your PCP and please keep us posted. Iām looking forward to your results on the urine hormone metabolites so that we can see if there is a solid pattern here with the metabolites among people who took 5 AR enzyme types (1) and/or type (2) inhibitors
Thank you for doing this (fingers crossed for pattern)
I havent got money to just throw around, but I done this test about 2-3 years ago, so I think its best i do it again and also the pregnenalone sulfate test you recommended. Will post results when I have them.
This could be interesting as we got a few other guys giving it a go which with about results from 5 people you could definately see somewhat of a pattern if there is one which will be presented.
Speak soon.
Wheres the pregnenalone sulfate test?
Yeah Im 26 now. I took finasteride a year ago noticed side effects immediately, didnt know what to expect thought it was just my body adjusting to the medication. Ended up taking it for like a week before I reported side effects to my doctor who said stop taking it. Of course it was an online doctor who cant help at all and takes no responsibility to do so. Just sends me to my PCP who just thinks its anxiety even though I have messages with my doctor reporting the side effects. It gave me cognitive issues, eyes, muscles, skin, fatigue, slight ed but that is the least of my worries. My balls ached for like 6 months even after stopping. It left me in a state where Im not able to work like I used to.
It has to be either an endocrine problem or neurosteroid problem. The solution seems so close but so far away.
Im surprised you were able to somewhat handle the dutasteride or anyone for that matter. I know Ashton Kutcher took that for over a decade
So your issues are mainly cognitive ? you did not get smashed with the sexual sides? just slight? and you did not get the insomnia and digestive issues?
creatine HCL helped me with the lost muscle mass. Never got all the muscle back in my legs but almost all of it.
Here are my ZRT LCMS saliva test results. This is ZRT labs test that tests for Pregnenolone sulfate. You can see that I am flagged low in it. ZRT actually made this test for doctors to monitor their patients while on Finasteride. Note that the saliva allopregnenolone reading in ZRTās salvia hormone test cannot tell you what exactly your allopregnenolone levels are. Thatās why the reference range for ZRTās salvia allopregnenolone is ambiguous. ZRTās LCMS testing technology is not currently sensitive enough to provide an exact reading of allopregnenolone from a saliva sample. The only thing that the allopregnenolone reading is good for in this test is that it tells you if the amount of allopregnenolone in your body is high or now. So when looking at my saliva allopregnenolone reading in this test all itās telling me is that I donāt have high allopregnenolone. So based on this we know I am not producing high amounts of allopregnenolone in spite of my body getting rid of a high amount of it in my urine from the other test
Yes main sides are cognitive issues, muscle tremors (leads to exercise intolerance), visual snow, after images, dry red eyes. I guess ball ache could be considered a sexual side. Slight ed.
So your body is not producing allopregnenolone. What role does it play as a neurosteroid? Is the 5aR enzyme related to it?
Also strange if your body isnt producing allopregnenolone then why would there be so much in urine?
