A clarification on my correspondence from Dr Mohit Khera (Baylor)

Yup I think many guys have it or try to dismiss it because they “aged” and not because of the hormonal treatment they’ve been on for years…

I think for some kind of mini-documentary that is the best length for mass viewing anyway, it would suffice to have 2 people with PFS, 2 people with PSSD, and two people with PAS. That combined with say 5 people (e.g., family members, loved ones, etc) who can report how they’ve seen the victim affected, should be sufficient for a very compelling video.

It’s hard to imagine it would be impossible to find two people with PFS. This forum has been talk talk talk for 15 years with no positive outcome. It’s time for some DO.

2 Likes

Here’s the response straight from Khera…Its not completed…

“Still working on it and in collaboration with the University of Utah and their genetic department to analyze and interpret the data.”

Mohit Khera, MD

5 Likes

What ever this shit is it must by a highly complex beast…

3 Likes

Shit that’s crazy they had to collaborate with another university, so who really knows when it will be released.

1 Like

Not anytime soon thats for sure…

1 Like

What I’d give to be a fly on the wall in that lab…

6 Likes

Or maybe, his university is not that specialized in genetics, so he prefers collaborating with specialists.

1 Like

Khera isn’t a geneticist, I see no cause for alarm over the fact he’s collaborating with geneticists over genetic data. Business as usual. I guess we’re just going to sit here wringing our hands and waiting on someone else to do things for us for another year or whatever until the study comes out and then if it doesn’t tell us what PFS is then we resume talking about herbs while crying about how screwed we are indefinitely.

2 Likes

I believe University of Utah is more specialized in in gene expression, epigenetics, neuro aspects…

3 Likes

You know specific people or presume that some have pfs?

2 Likes

Or we wait and see what information it provides, and then plot our next step accordingly. No point wasting resources running two identical studies in parallel.

1 Like

How many years have you felt that the best course of action is to sit idle until this one study comes out?

2 Likes

Ever since I got PFS 4 years ago. And with the utmost respect, I’m a little over listening to you bleat endlessly about how we’re all so stupid and misguided for not coming together and ‘making more research happen’. It’s a position which simply isn’t realistic and doesn’t make sense given the circumstances.

3 Likes

I can think of very little of meaning which can be achieved in the meantime, correct.

Example of things that could be done to facilitate greater public awareness and scientific attention: A letter to you, forum

Okay but at this point it’s confusing the way it’s being posted here

Did OP say khera said 6 months until genetic study is published?

If so, then it makes sense then are still working on it given it’s not November?

Collaborations are common, especially with complex projects. You need to give work to specialists to handle

The context here should be clarified

Do you know them personally?

They sound like great candidates to fund for the next big Study…

Specific people.

You write mocking messages in every thread here. I know its better to try to silence you but you need to change this. Its unbearable.

3 Likes