Thanks again for sharing.
You have had a real stunning pre fin Sex live. Congratulations! And after fin, you have developed the typicall pfs problems?
Super interesting ist, that your doctor ist going to sequenzize your genome. He should connect a university to get an Science Enterprise Project. Search for more sufferers an trying to treat you with Gentherapie and Crisper…
Several members here have improved by taking bupropion for motivation and libido. Several have improved but a few have gotten worse they feel. Might be worth a shot as it’s non-hormonal and isn’t an SSRI.
Thanks for your advice, I have tried buspirone before, it helps with my anxiety but did nothing for my sexual sides, bupropion seems is a very controversial med since seems like somebody get good result but somebody feels terrible, I am still hesitated if I will give it a try. I just brought some GHB from HongKong, I will give it a try first since I have seen some members seems like improved significantly by using it, for example one of the most famous recover story by Chi.
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Thanks for your reply, my doctor works for the best hospital in China, which is affiliated to the best Medical college in China, so it seems like the study on me is already a Science Project, but he also told me it is only a try, maybe they cann’t find anything, maybe although they find something special but there isn’t targeted treatment available.
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Welcome to our forum!
I am deeply sorry that you have been hit hard by persistent symptoms from Finasteride treatment. Here you’ll find many people who can relate to your problems.
Unfortunately, what we call Post-Finasteride Syndrome is still widely unacknowledged by the scientific and medical community, which means, as you have experienced, that people contemplating treatment with Finasteride are often misinformed by doctors who claim that the symptoms will resolve after treatment is ended. Accordingly, an important mission of this community is to spread awareness about this condition among doctors, the authorities, scientists and potential consumers of Finasteride. This is something, we need everybody to help with:
We have recently launched a series of YouTube videos (https://www.youtube.com/channel/UCQXyXbJNqxzjEhPp5RVI88A) with patient stories and an explainer video. We need everyone to like, share, subscribe and comment as visibility on social media is largely dependent on interactions.
We are always looking forward to volunteers to share their story in form of a video or as part of a podcast series that we are going to start. Check here for more info: RARE DISEASE DAY 2021: Announcing PFSNetwork.org, a watershed moment for PFS awareness. PLEASE READ AND SHARE
Additionally, we ask all users to report their experience with the drug to the authorities. Reports of (persistent) side effects have in the past lead to amendments of leaflets in several countries. This is a cheap and important way to raise awareness among the authorities. Please check here for additional information: https://www.propeciahelp.com/report-your-propecia-side-effects-to-drug-regulatory-agencies/
It’s good that your condition is checked by some good doctors and please report what they find. It is likely, though, that to find clear differences that make us (more) susceptible to this conditions than the many who do not experience any (persistent) side effects, we may have to look at a larger population of affected patients and compare them to a control group. Hence, the staff of this forum is working on initiating several clinical and other studies to find out more about our conditions. These projects are not yet finalized, but if we succeed we will need help from the community in recruiting participants and with donations. So, stay tuned!
Finally, a major problem is the fact that the full symptomatology of this condition is not yet fully appreciated even by doctors and scientists who acknowledge the existence of PFS. Hence, we have created a very detailed survey to create systematic data across all symptoms that have ever been reported on this forum. The data is used to inform our discussions with scientists, may help with identifying particularly severe cases of this condition for future studies and will hopefully be published in a science journal. Please consider participation: Post-Drug Syndrome Survey FAQ. Survey NOW LIVE - Please Participate
Unfortunately, for many of us this condition appears to be permanent (I have been suffering for 14 years now) as long as we do not find a treatment. I cannot promise that we will ever find one, but we are quite confident that there are low hanging fruits that we can take that will significantly increase awareness and understanding of this condition. To do that we need everyone’s help!
Thank you and good luck,
N.
The first thing u need to do is to take the survey here, then u can try those homebrew treatments which have already been tried here for decades.
Hi, thanks for your reply, during this 14 years is there any improvement for you? can you still have sex life and maintain a relationship.
I had improvements initially and was very stable for over a decade. Unfortunately, I had a new crash in 2018, I am not sure what the trigger was. Now my condition is worse and not improving. Sex is difficult, but often works with Cialis and I can maintain a relationship. Although, I have to say I am very lucky to have a loyal girlfriend and we got together before my second crash when my performance level was much higher.
My impression is that most people improve at least somewhat during the first two years.
Hi, I wish to share my mental journey after I crashed. I actually feel really lucky and grateful toward my 23 years’ life if I haven’t touch fin, I have so many awesome friends and so many cherishable experiences and memories, my parents offered me the best life and opportunities, I am handsome and smart, at least above average, my family are even planning immigrate to New Zealand recently, life seems keep going in a good direction and everything is wonderful, but I screwed it all up just by some fin pills, for a sake of vanity: my obsession on my hair. So when I crashed in 2021.02, I feel so shock, sad, desperate and regret, I cann’t stop from thinking killing myself everyday, this situation continue for at least a month.
But after I calm down, be rational and contemplating, I realize if the moksa really exist, and I can have another chance in a different life after suicide, it is highly possible that I won’t born as lucky as this life, I still miss my awesome friends, I cann’t leave my mom in this world alone, and I still cherish this 23 years’ wonderful experience and warm memories… After that, the suicide thoughts never came in my mind again, I know that I should move on despite how tough the problem is, and made up my mind to fight PFS at my best.
After that I read plenty of member stories about recovery and significant improvement, such as:
Chi, Mens_Rea, 12345, StartingOver, JoeKool, John_Coleman, Mitch, Reason, anonymous1968, Finatruth, D11, pine909, mlevyholden, iwillrecover, Deadballs, searchfhealth, mrmoskowitz… and many others, I think I may can create a recovery compilation in an new thread.
so those gentlemens’ story really give hopes that a lot of us can improve with time, and as I am still in this early stage I should stay optimistic and expecting a recovery no matter via medical or natural.
So I just set a clear plan, I will give my body 3 years (from 2020.08 when I ceased drug) to recover naturally or with some medical assist, hope before 2023.08 everything will be fine. But if there is no significant improvements until 2023.08, I will just take a penile implant surgery to make sure I am always available for sex life, since my other sides are minor I am pretty sure PFS will be negligible if I get my sex life back. I just cann’t live without sex! I am the only child, my family divorced when I was very young, my parents love me, they are successful and prestigious in their career and offered me the best life, but they are busy so lack of accompany, so I start sex very early and since then, it became a major way that I can get some sense of belonging, security and warm. so even right now I actually have almost no libido, but I still miss the sense of intimacy from the sex.
Thanks for sharing your experience, I am so glad to hear that you have a such wonderful girl friend, my best wishes for you.
I have had the same wild live, broken by depressed Times and Times living by Mom again. For me the Finistarid shock was so drastic that I walked along the railways. Im 60 but without my Cock I dont feel Like a human being anymore. I don’t want to meet someone. I live in Isolation. Only my little daughter needs me. But what a Zombie Live with Out be a real man. So If you get your manhood with Recovery or in 3 Years with the Titan back, I find IT wonderful.
Hi, Thanks for your reply, according to your age, if you only have sexual sides, penile implant will be a perfect choice.
Please join the QQ group 826599709 to communicate
Forgive me, I quit, that QQ group is so negative, some suffers seems already got some severe mental disorders, I just formed a new smaller Wechat group.
10 months update, I am still stay on the protocol, 25 mg daily clomid for test boosting, 5mg daily tadalafil to treat my ED, buspirone for my anxiety, and I just start mesterolone by myself today. my current status is: mental sides manageable, only feel anxiety in the morning after I wake up, ED also manageable by daily tadalafil, I always get an 20 minus full erection before fall asleep, but I haven’t had any sex after my crash, I get a road trip appointment with my old lover this July, and she knows my current problems and is very understanding, maybe we will have a try this July. My most annoyed symptoms are still no libido, lack of motivation and shrunken balls, I tried GHB before, it improved my sleep from 6-7 hours to 8-9 hours, but did nothing for my libido, hope that mesterolone will help, if the mesterolone still not working, I will try growth hormone or bupropion next.
Best wishes to you all,
Hanru.
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Hi guys,
a brief update, my doctor and his team finished the entire human genome sequencing for me, and they find more than 2000 mutations, they wish they can find some mutations which maybe the cause of my symptoms, we will meet and have a discussing about this next week, with the whole team, hope that we can find something make sense and treatable. Hope is the most important stuff which supporting us keep up going on.
Best wishes,
Hanru.
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Could you elaborate this please?
He has to be like the best doctor ever
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I cann’t explain it since I do not know gene science either, it is super complicated which looks like this:
They said it is normal gene mutation happened because of the environment, they just want to find if some mutations are likely induced by finasteride exposure and may be responsible for my symptoms.
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