Welcome @Akiyah,
Though nobody would wish membership of this group on anyone, I’d like to say that I’m glad you’ve found us.
You are absolutely in the correct place.
Firstly, I am so sorry to hear of both your personal and professional difficulties. What you are describing is very common here, sadly.
On a purely conversational note, may I ask what your physician said when you reported your side effects while taking the treatment? Were the side effects a surprise to them? Did they expect them to clear up after cessation?
You may or may not be aware of the projects that we are running, firstly you will receive an invitation to take our survey soon, we are generating clinical data on our condition, effectively for the first time. Please do fill out the survey, it will take around an hour. It is one of the most important things people who sign up here can do.
We are also running a 23&Me project which aims to identify what we all have in common genetically - why do we get side effects when others do not?
Thirdly we are intending on releasing a series of short videos explaining the symptoms many of us have been left with. I’d love to have someone talk to you about that project, I hope you’re interested at least to hear what the plan is.
Feel free to reply with any questions, or to direct message me and I will help in any way I can.
This situation is dire, I know. But by pulling together we can achieve great things.