18yo: Erectile, pleasure and libido problems due to accutane

Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.

Where are you from (country)?

France

How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)

Reddit

What is your current age, height, weight?

18 years old 1m86 (6’1) 70kg (155)

What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?

I take Isotretinoin who is un France sell with this name : Procuta

What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?

20mg I rhink

What condition was being treated with the drug?

Acne

For how long did you take the drug (weeks/months/years)?

7 months

How old were you, and WHEN (date) did you start the drug?

17yo, October 2017

How old were you when you quit, and WHEN (date) did you quit?

17yo, april 2017

How did you quit (cold turkey or taper off)?

I don’t understand. I stopped the drug because of penis problems 3 weeks after the begining of the side effects

How long into your usage did you notice the onset of side effects?

7 months after the start

What side effects did you experience that have yet to resolve since discontinuation?

Bad or no erections depending on the day, decreased sexual desire, strange sensations in the penis, shortening

Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.

Sexual
[*] Loss of Libido / Sex Drive
[*] Erectile Dysfunction
[ ] Complete Impotence
[*] Loss of Morning Erections
[*] Loss of Spontaneous Erections
[*] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[*] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[*] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

I don’t

If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)?

I didn’t do any test after

Anything not listed in the above questions you’d like to share about your experience?

I have a cyst under a testicle

Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.

It’s been over 8 months since I started having these symptoms. I spoke to no one other than my dermatologist about this problem, who did not help me. I have not seen any testimony in French and my English is bad, I do not know who I can speak with and what should I do. I’m terrified, it rots and ruin my life. What kind of doctor do I have to go see? I do not know if it has the drug or my symptoms but I found a month after stopping the drug that I had a cyst under the left testicle. I made a radio and was told it was not serious (but I did not say anything about my libido and erection problems, I just said I had a ball odd). I think it’s possible that reading all these horrible stories have an impact on me but it’s after two weeks of erectile problems and strange sensations that I searched the internet. I am sure there is a real physical problem with the medication, although it may be magnified by my concern. Please help me, no one answered me on Reddit and Twitter, I do not know what to do. Thank you very much, I hope my english is a little understandable

It’s very late in France, I will read you (I Hope !) in few hours

2 Likes

Hey man 22 years old from Canada exact same story message if you wanna chat

Sure, I send you a PM

My story is also similar to yours: 2 Sexual side effects from 2 doses of Accutane. Is there anyone like me in the world?
Please check it out.

2 Likes

Hi ScaredGuy. Sorry to hear your story.

There is a hidden epidemic of men with this problem. We want to support each other through this here.

Use Google translate to view this. It may help you see you are not alone. It may also help give a background to your situation:

2 Likes