Would anyone be open to starting an in person community?

Hello everyone

I’ve been suffering from PFS for 10 years. It’s been a tough 10 years, but what made it tougher was just feeling like there was no one that could relate to what I was going through. I confided in a handful of really good friends, but we all know they can’t really understand this, only we can.

In recent years a lot of my symptoms have gotten better (but I’m still a sufferer) and I have gotten to the point where I’m ready to start trying to live again and not just survive from day to day. I have my close friends but I really want to branch out and make my life better. That definitely means more relationships. I was thinking about how hard it is to make friends (particularly at 40!) and i started thinking about communities I could be a part of and I thought about you all. We have a shared experience that no one else can relate to.

So to put it out there, would anyone be interested in trying to establish some kind of social/support community? I’m not sure if anyone has tried this before. And I know until recently the thought of acknowledging this part of my life to anyone in real life was terrifying. But if we can overcome that fear and the hopelessness of PFS, maybe we can establish something we could all benefit from.

If this isn’t the right time for it, I can accept that. I’m in the Los Angeles area. Just let me know if you’re interested, either in this thread or through private message. Thanks!


I would have been up for this ….I was in Los Angeles for 7 years and was living there when I first got PFS.
I’ve come back to UK now!

I met up with @Ukguy82 for a couple of coffees a while back in London (UK)

I think a regular group meet could be positive.

I know one was spoken about a while ago.


Let me know if you guys do this again….I’d like to join !

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