oscar, come out and say what you want to say… it seems like you want to drop little hints, just come out and say it if you want people to buy into this
Raising awareness toward what end? Nobody is blinding saying the androgen receptor theory is the holy grail of PFS…
Whats important is that this illness is being seriously looked into, and thats realistically all thats important… if it turns out to be false then we can look down other avenues. And along the way, maybe this research will uncover the true problem if it is not the theory being discussed here.
You’re not raising awareness but you can always pretend.
If you really want to raise awareness, get in touch with liability lawyers in the U.K. and file a lawsuit against MSD. The lawsuits will drive the research. Awor’s team isn’t the only team doing PFS research.
Some people think that if they just google enough they’ll have the answer, instead of leaving it to professionals. Which is just another layer of shit that Ive got to deal with.
This is far from a “blatant lie” as anyone here will tell you. This his opinion, incidently an opinion worth more than any of the rest of us due to all the work he’s done on this.
unless the administrators of this board have in fact been lying to us and keeping secrets, perhaps someone with the authority to do so should have a little chat with our friend of the never ending negative OPINIONS, and smack some sense into him … getting really tiresome … oscar, if you have any ACTUAL proof of what you are saying here, lets see it … put up or shut up
For how many yearss do you think its been known that neurosteroids are low? I dont consider it a good thing to not share that information here for such an extended peroid of time.
Disinformation to what end? Those postings surprise you? The twitter feeds are based in fact. A causal link between PFS and Finasteride has been proven scientifically just through the projects that are known publically here, not to mention other things well along in the pipeline.
To what end? - What does it matter, good or bad? Either its true or it isnt.
The twitter feeds are based in fact. - There is a difference between fact, and simply repeating opinion over and over again because you want something to be true
I think you would agree a silenced androgen receptor is a pretty groundbreaking thing if discovered. Im afraid the guy making these tweets also doesnt care to wait for any actual discovery to take place. Or doesnt know if it has. Or care. Or understand either way. This is actually the biggest problem with the ‘androgen receptor theory’.
You mean unlike repeating over and over ad nauseam that there is nothing at all to it because you don’t want it to be true? The research is in the hands of people infinately more qualified to make judgements about what avenues to investigate than any of us here. Why drive yourself mad with the constant second guessing of the scientists and institutions that have chosen to investigate PFS? Maybe focus on things you can control like helping to spread media awareness in the UK?
If you don’t know who is managing the twitter account then why speculate to their motives or knowledge? No part of any of those tweets really surprised me.
I’m not a scientist so I can’t comment on how “groundbreaking” this data collected in these early projects is in the scope of things. I do know that negative autoreguation and epigenetic effects of pharmas and the environment in general is very well documented and is the basis for a huge volume of research currently going on in institutions around the world. As has been said on here… this isn’t the only study underway and further work will confirm 100% causal relationship between Fin and PFS to a degree to make any argument against it preposterous both here in the forum and in front of any federal and/or state court.
Are the twitter statements true or untrue? I have not seen any other reports, official or otherwise, regarding axonal damage. If nothing official has been reported, claimed or published, what is the source/credibility of the precise verbiage used in the twitter posts? If you do not have official inside knowledge, please don’t bother speculating or editorializing here. Patients are trying to get things like MRI testing and treatments in real time and need to know if something has legitimately been discovered or announced. Those with authority to speak: please clarify. Thanks.