I don’t want to depress anyone any more on here, seriously looking for some support. Anyone have any words to help me hang on for life?
Well, this is your first post?
There are many ways to work on your problem. I have spent lots of time on this and have found some important stuff. I think I will be able to cure many of my symptoms soon.
What are you symptoms. Can you fill out the template?
Get all the blood test.
Siliva cortisol / body temp / blood cortisol and transcortin.
Once you have all your tests and we cant help you and you don;t wanna live go take out a few people at Merk before you decide to kill yourself…
But seriously we have not yet found the cause of this problem so how can we say its incurable? So why give up hope now?
Because you just don’t know if/how your body might recover in upcoming weeks/months/years, and you don’t know what advancements will be made in the field of medicine. Just don’t give up yet man. There are reasons to be hopeful, though they are not always easy to see.
The reason you should not kill yourself is because there is hope we can have relief of our symptoms if we can catch some breaks along the way of the research process.
Then, think of the appreciation for life you will have. You will take this hellish experience with you for the rest of your life, knowing you beat something that most people in the world could not even imagine.
Do not give up. Beat this hell the best you can for now, one day at a time, and have hope and faith that we will have an answer. Remember, being strong may end up being the most amazing reward you will ever get, but giving up accomplishes absolutely nothing.
Just think, we find a way to treat this and you feel like your old self again, imagine how beautiful every second of everyday would be. Picture it. We are here for you. Never say die.
Thank you lennon, your words certainly are kind and help me to see that I should refrain from thinking like this as much as possible, I still have questions though. it seems from most people’s experience that there is no real cure for this. I want to know what kind of quality of life can I expect as this progresses. Is there any group of people who experience the beginning symptoms and crash, but this goes on to resolve itself relativley quickly? Is this just wishful thinking and am I looking down a long slow road pf impotency, infertility, and crippling depression? It has been almost 48 hours and the weight of this new knowledge is crushing me. I dont know how I will make it through work monday, it will be my first day since the symptoms really hit, I haven’t even gone in and I want to quit already. I know this is a big useless wall of text but I feel so alone and I really need some answers.
And to those that suggested the tests and levels, it is hard to justify these expenses right now consider I might lose my job because of my depression, but I will try to get it done.
Its hitting me now, besides getting my blood work,eating clean exercising and getting sunlight what can I do.any early interventions that have had success? Any stories of people crashing then recovering well shortly or is the crash a sure6
sign of years of symptoms/permanence? I will post symptoms when I get ho
me from work. Also any kind comforting or inspirational words to get me through the day/week would be gratefully appreciated
It is VERY, VERY early days for you. If you just quit 2 days ago, it’s likely your symptoms could resolve in coming weeks. Did you quit the drug 2 days ago and if so, how long were you on it? What are your symptoms?
Even for those with ongoing issues, time tends to help the body heal to various degrees, and not everyone has persistent issues. Personally I experienced depression towards end of 11 months on the drug which cleared up within a few weeks of quitting, and the cognitive side effects seem to clear up for a lot of men over time.
In the meantime, if things do not improve over coming months, please fill in the Member Story template so we can better understand your situation/usage of the drug, and offer further advice: viewtopic.php?f=3&t=371
Hang in there. With increasing medical and media awareness, the future has never looked brighter.
Sorry I meant 2 days into the crash, I’m 23, I quit in early november after nearly two months on the pill. Is it strange for a crash to happen over 3 months after quitting? My symptoms are extremely painful testicles, total loss of libido and near complete loss of sensation in the penis. Panic, anxiety, depression, didn’t sleep last night at all so can’t tell if I have brain fog or just tired but I have been slurring words and bumping into things all day, although I can pronounce things better if I focus. Also I have been fighting back tears all day, even now as I write this. I will tell my father tonight, first person who will know. Has anyone heard of symptoms resolving after the crash or does the fact that I crashed mean I’m in the club for good? Thank you so much for being here and for your kind words, I feel like I never knew true fear or sadness until this weekend, but I am thinking less about suicide. Thanks again for the answers I will fill out a member story template and look to get my bloodwork done.
i feel the same way at times this is so shitty.i have a wife and kid.they are the only things that keep me going.ive felt like suicide too.i miss being sexual with my wife who told me not to take this poison after i met her.I can still be with her but its not the same.im holding on to hope that theres a way to reverse this.i wish i never took one pill.the people at merck ARE DEVILS.if u look up there execs alot of them are bald,should have known it was no good none of them took it.everyday is a struggle to live and work and try to enjoy things.hopefully things will get better.
As this get in the news more (and it will be with the class action suit pending) more research and answers should emerge. I’m just learning like you…over the past couple days, that for the past ten years there wasn’t anything psychologically that caused my E.D. etc …and that I wasn’t just getting ‘old’. I’m blindsided and stunned there’s no clear treatment or recognized condition… but that will change.
Day 4 after my crash and I just got a wet dream, haven’t done any sort of treatment yet. Testicle pain receding a little, penis still feels cold and woke twice during the night last night. Anyone else experienced this? I haven’t had a wet dream in a while, quit propecia 3 months ago and probably havent had one since before i started taking it, august or so. Could this mean my body is working it out naturally? Please help.
i know how you feel man. i’m the same age as you and i remember one day i left the gym from swimming and i just started walking around and just sobbing and crying my eyes out because all of this was happening. you can only go up from a crash man as long as you don’t do things to trigger one. ive found masturbation to be a trigger, bad diet to be another one, i’ve read here alcohol is one as well but i don’t drink.
go on an extreme diet (all organic veggies/meat/fish) (be careful on fruit, you may not be able to handle it) and stop masturbating is my advice to you in this fragile crash state. no sugar or artificial fake stuff at all
here’s my goto stuff:
salmon oil fish oil - lots of this
l glutamine before i goto sleep = nice dreams and decent sleep (l glutamine is the pre cursor to GABA)
16oz biotta beet juice per day - beet juice promotes nitric oxide and releases bile acid (nitric oxide makes your penis get hard, it helps with many things, i love this juice, it promotes healthy blood flow in your body)
probiotics/digestive enzymes with every meal - thsi is huge… you need to be digesting your food correctly
ti
anyway, this stuff sucks man no doubt. someoen had a recovery recently doing extreme dieting so i know what i’m talking about isn’t just me… chin up man, things will get better if you follow the diet stuff at least.
where are your test results. Including cortisol siliva, free testosterone, estrogen and all the others?
Improve your diet and exercise. Low sugar, grains, dairy etc… More raw and organic.
Exercise is a potent antidepressant. If you were the only one it would be different but there’s lots of us. Don’t take prescription antidepressants. Hopefully you respond to vit d3 because that also helps depression. Unfortunately a lot of us have low D…
Something will happen i bet regarding a cure.
Stay strong and tough brother. Don’t let this thing beat you, you need to beat it.
Keep a positive mind and exercise the information and options available to make things better biologically. My first couple days after quitting were the most mentally devastating experiences I’ve had in my life. It’s now been 2 weeks and I"m over that hurdle now. Happiness and serenity are in your hands.
Happiness and serenity are not necessarily in our hands. Hormones and neurotransmitters dictate every feeling that we experience and so a disrupted endocrine system cannot just be beaten by positive thinking. Of course, we have to give it our best shot. 2 weeks off the drug is nothing. In my opinion, the real mental test begins at 6 months - 1 year off the drug, when you have to face up to the fact that the condition is likely permanent. I hate to be so negative but we may as well be frank about this.
Since we are being frank -All of your posts are over the top negative. I’m all for looking at this realistically but you love to wallow in negativity for some reason. You have no idea if HIS condition is permanent or not so why even mention such a thing especially considering the tenor of his previous posts? Stop for a moment and consider you are responding to a real person on the other end. Alot of guys report depression is worst right after discontinuation so it’s entirely plausable he will improve in that area and maybe many others.
Your completely right on the point regarding his potential improvements and yes i am very negative about PFS as a whole, but over the top, why? because i have stated that i believe PFS is likely permanent? I have recovered to 100% time and time again only to return to shit, i have received numerous messages from guys that don’t ever post on this forum anymore who joined many years ago and they have made no improvements whatsoever, i have seen all the people that are suffering due to accutane and ssri’s over 10 years later. Stating the obvious about this condition, is not ‘over the top’ in my opinion. I will admit that my previous post was of bad taste but the hormonal-happiness point is very valid.
I do think that you are ‘overly positive’. You seem to honestly think that there is going to be a cure for ‘post finasteride syndrome’ and i have seen you post about stem cell therapy to rebuild damaged penile tissue. If we were living in a perfect world and were millionaires, maybe, but this is the real world. We got screwed over by a billion dollar company, doctors couldn’t care less and science definitely couldn’t care less about a few hundred guys piping up about there dick’s going soft because they took a drug to stop them going bald. This is a nightmare situation that is hard to make up.
I either come on here to discuss treatments or to just vent. I am young and lost to be honest and upon reflection of my post history on this forum i can see how you might view me as a bit of a prick. It was completely unnecessary for me to come into this thread and be so negative about someone else’s positive attitude. I think that you have just picked up on two of my recent posts where I have gave my opinion that PFS is likely permanent. I don’t want to become the new MartinM so i will shut the fuck up.
amsterdam88 just stay positive