I know some of guys have hormonal imbalance but majority have normal mrı, normal eeg, normal bloodwork and others came back normal too.
I mean, i have dark dimmed blury double vision, brain issues like dementia,cfs,tinnitus, sugar intolarance etc.
how, HOW can it be possible there isnt any abnormal results??
ı feel like i saw an real alien and told everyone even took a photo, but everybody say its fake.
I’m guessing we are low in neurosteriods or neurone in the brain or something else very complicated.
maybe our whole reseptors shrunk, ı read shrınkıng ear receptors cause tınnıtus. Lıke that. Even our hormones are normal range, we have short reseptors to respond our body.
This.
Get a dorsal nerve conduction velocity test done and I bet it won’t come back normal.
Or better still: take part in one of the two clinical studies in the US. At present, no one really knows how PFS happ[ens and you could waste a lot of money in tests which wont’ provide any indication as to effecitve treatments. That’s been the case for people with PFS for over 10 years.
BUT (and its a huge “but”), if you go for specific tests designed by scientists specifically on this issue you can find out more, and help us to develop effective treatments. Check out the PFS Foundation website for more info.
sorry buy i cant join to researchs , i took antideprassents 1-2 years ago plus i have strong mental sides i cant go us or uk with this body.
is it some kind of eeg?
It’s tests how well the dorsal branch of the pudendal nerve conducts nerve signals.
It basically involves attaching one pad to the end of your pecker and one at the base and measuring how well electric impulses travel along the nerve.
You’ll need to go to a specialised neurourologist to get it done.
did you test it?
U get the PFS ed symptoms 2?
Or r u good with all that stuff
depressedguy, what about your estrogen, was your estrogen high? I bet it was, maybe 1 out of the 3 types of 5AR enzymes is shut down, and the others are still doing the reducing to test, but the functions of the one enzyme that is shut down is depriving you of its function. The 5AR enzyme type 3 is responsible for ocular and neurological function. If it isn’t working, you would have those type of symptoms, there is a synthetic 5ar enzyme, there are 3 synthetics for all 3 types, if I were you I would go down that road, what do you have to lose? That’s whereI want to go after I talk to Dr Jacobs and ask him about it possibly.