Why is no one taking the damn survey? Only 202 Fin surveys answered. This is a dead end?

110%.all things is better the sleep the muscle the eyes the head but the pudendal is a inferno. Scrotum and gluteus i feel so hot o so cold.
I wouldn’t take any meds for this problem… Maybe a options is a gabapentin but… I’m in a delicate point and don’t a make a another problem… In the doctors I don’t have a feeling.

I contribute to the forum.

This thread wanted to know why ppl haven’t done it. I replied.

There won’t be a cure, Isotrentinoin has been around since the 70’s. Literally nothing has happened since then.

I don’t deserve a cure anyway. I’m pretty sure I glanced some propecia faq site, made by Mew I think, before I took the drug. It didn’t register to me how bad it could be. I got what was coming to me lol and now I’m paying for it.

You deserve this because you considered the opinions of experts/medical professionals & FDA safety trials to be more credible than an internet forum that could’ve been set up by anyone?

It wasn’t your fault. The idea that the medical community (the FDA, physicians) is wholly competent when it comes to treating disease has been indoctrinated in everyone even though there’s plenty of evidence to suggest the opposite. There’s so much about the human body and disease that we don’t understand. I feel like we are taught to ignore this fact because it’s a reminder of our own mortality.

And as a consequence of that, I don’t think any of us really made an informed decision. We weren’t properly informed of the risks associated prior to taking this drug, because the institutions that we are taught to trust when making these decisions did not do their job properly.

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Taking the survey is a good chance to thank the work of those who invested time doing it.
People don’t trust in this disease because it doesn’t have a diagnosis. This condition must to be studied!

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I didn’t consult any professional sources for the information. I ordered the pills online without a prescription. All the info I got was from articles and posts online. The worst thing I thought could happen was your dick might not work for a while, I even knew it could be permanent but my dumbass assumed that only happened if you took it for a long time. Like I said only glanced at that propecia site that used to be up. I barely read it.

So it was all my fault lol. I learned the hard way.

It’s our fault all we are doing is sitting around feeling sorry for ourselves, dicking around with herbs, and googling the same misc more pills to pop that a thousand other guys have tried in vain before instead of getting organized and making things happen. After 15 years of no results it’s total idiocy. We should’ve made research happen 10 years ago and have a cure by now. THAT is OUR fault.

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If a make a rmi Tesla 3 for the nerval pudend it’s good for diagnostic nerval damage?

I just finished completing the survey.
Sorry, but this was very long, and somehow a little painful for me, all those questions about the situation. It could be very tiring for some I guess.
But I did it, even if I don’t really see the point, but I did, I guess it’s better than nothing.

Love.

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I appreciate your candour. It’s just that when I am presented with someone who chooses not to do the survey I feel that I have to in turn try and convince you otherwise. Even if you don’t believe in it I and others would appreciate it a lot if you did it. Our lives are filled with stuff we don’t like doing for numerous reasons, whether it’s because we have to get paid, or just to help out a friend. A lot of our lives is also given away to frivolities like watching the telly, or the mundane essentials like housework or flossing your teeth. The survey represents a tiny portion of what makes up our lives, and although mundane, it isn’t unnecessary or frivolous. I’m really sorry that you are so hard on yourself with regards to your choice in taking finasteride. @borax is absolutely right. You cannot blame yourself. All of us to various degrees zoned out the negative. I didn’t pay due heed to the limited side effects which were being acknowledged at the time I started taking it, probably in part because I already had a history of taking anti-depressants which were accompanied by a much more comprehensive list of side effects and which I hadn’t as yet fallen foul of. Call it complacency through a combination of you don’t really believe it unless it happens to you (or that I thought that they listed every which side effect to cover themselves) and also that I hadn’t as yet had my eyes opened to the fact that the drug industry lies and therefore had trust in the prescribing leaflet. You also can’t blame yourself as the drug industry took wholesale advantage of our understandable desire to keep our hair and banked on us making an emotional decision that would overrule any niggles. For that alone it should have been black boxed, but we now know that they manipulated the original data as otherwise for them it would have been a financial non-starter.

You can’t say definitively that there won’t be a cure. Isotretinoin may have been around since the 70s, but the admins here have been active in joining the dots between that and other endocrine disruptors. The survey would act as a jumping off point for future research. Sometimes things move forward because of a lot of accumulative small acts. Even if you don’t do it for yourself, this may help others in the future.

And you and all of use here most definitely deserve a cure.

Would you please reconsider taking the survey?

Thanks.

Nah this is like curing cancer, it’s not gonna happen. Better off experimenting with more 5AR inhibitors to try to improve.

Can you not do both? Even if you personally don’t believe in it, could you not just do it for the other guys here?

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None of what you said is any sound reason not to spend 30-45 minutes of your life conducting an incredibly simple survey. I don’t give a shit whether you think you deserve whatever fate you brought upon yourself. I certainly don’t feel that way about how I ended up with this condition. Don’t drag others down because you’ve given up all hope. Your tough guy “I deserved this” stance is absolutely ridiculous imho.

Nobody is asking you to do anything difficult. But apparently 45 minutes of your time is worth more than all of our combined suffering. To people like you I give the big finger.

If your only contribution to this forum is a statement that basically says “I do not want to contribute to the mission of this forum” then wouldn’t you say that goes entirely against the whole point of ‘contributing to this forum’?

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Today I spoke to my wife about the concern of never going back to the way I was before. I told her that I am currently taking cialis and she would not want to already but understand that it is important for me to feel 100% and not 70 or 80% of an erection.
I explained to her that I don’t want to stay forever taking cialis even a low dosage to be together with her.
I decided to go to the andrologist to talk to him and see if I have an intake for a long time what consequences it can even if I take it 2 or 3 times a week. Then I will do a Tesla 3 rmn to my pudendal nerve and scrotum and then if the situation is not resolved within a reasonable time I talked to her about the possibility of an implant … First she laughed like crazy then she realized that I was serious and I she said that nothing changes for her and that she loves me just the same. At least on this I am a lucky man to have a woman next to me who loves me who supports me who bears me and who understands me. I hope I never have to do an implant. But I realize that I can’t even go on cialis for life all the time if it always works.

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I’m very happy for you but you’re derailing off topic pretty hard now.

Sorry friend but I need support about the person in a similar condiction. For me is a very important not feel alone in this battle.

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I respect that and understand that, I truly do, you have all of my support.
That said, this forum is organized in different topics for a reason.

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Ok my friend sorry for this. I think all person a make a survey of forum. I make a survey in one session. A make another survey of melcangi in italiy. In Italy melcangi at the finish of this year make a project of allopregnonalone and the guys of forum post finastride italia make a battle legal for Propecia in Italy. And the next year stared a project for new session of tested genetics whit University of Trieste in italy.

Wow Italian PFS sufferers are very organized !

Guys, tone it down a bit!

I think everybody should take the survey, irregardless whether they understand the usefulness of it or think a cure is likely. We already know some scientist who find the data valuable. And even if a cure is difficult to imagine for some, any progress in the science can also help with finding symptomatic relief. That alone makes taking the survey worth it, and it is such a small effort to take it.

Nevertheless, this is no reason to insult people who won’t. Personally, I think people that won’t are holding the community back. But insulting them is both against the rules and rarely a good tool of persuasion. Let’s leave insults out!

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