me too, I got the tick!!
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people complain about doctors’ skepticism, but are not able to complete the survey.
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I didn’t do it because I’ve given up on the idea of a cure. I believe there are solutions to get around side effects which is why I still post, but a full out cure is off the table for me. This problem is way too complicated to solve since it causes other side effects like IBD that have no cure themselves. Finasteride, isotrentinoin are cancer drugs, akin the chemo, and chemo patients experience the same side effects as us like light sleeping. They’ve been trying to improve cancer treatments for decades now since chemo is hell, it’s probably related so our problems are probably trying to be solved in other ways we don’t realize. Plus the majority have the same side effects, you interview one person you have most of the data you need already.
Our issue isn’t complicated and it’s reversible if we can understand the mechanism behind it , + most people get some degree of improvement with time even without taking any medecine ; please stop talking nonsense and spreading negativity , if the medical department took our case seriously and conducted numerous studies , a cure would’ve been found by now @lbv
Nobody cares about your opinion which is a very shitty one at that. Your reasons for not taking this survey are selfish and pointless. In contrast, I believe there will be a way to reverse the symptoms, because I definitely have better days, I just don’t know why.
If you are able to get your head out of your hopeless ass please fill in the fucking survey.
If I was the admin here I would disable/lock every forum member from posting any further who didn’t partake after 4 months of forum membership.
I’d strongly encourage you to reconsider and take the survey. It really shouldn’t come down to your opinion as to the possibility of a cure. If we second guessed the potential outcomes of every decision we made then we would effectively stand on one leg for the rest of our lives. If you don’t do it for yourself, please do it for this community and all the guys here who are suffering. You may feel that it is pointless as there are similarities between our experiences, but that is the whole point. It is the number of completed surveys, including yours, which adds weight to the legitimacy of the survey’s findings. The amount of time it would take you to fill in the survey is akin to spending time here on the forum for a bit, but with the former you will be making a difference to us all. You can’t just sit back and throw your hands in the air. Doing this one small thing will help us all and I for one would be extremely grateful for what isn’t entirely a selfless act as, despite what you might feel, it will play a part in contributing to a hopefully brighter future. If you do nothing then that possibility of hope is pushed further back for all of us. I’m sure that you would take advantage in the future of any therapeutic treatments that could arise from that initial step of the survey. Please give rather than just take. Even this forum is the result of a lot of hard work from a lot of guys who cared, not just for themselves, but for all that are suffering.
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I feel so lost today … I think I’m 36 and ruined my life … I think to be with my wife I have to take a cialis and have anxiety to see if it works or not … I have to pray for it to always work … And procrastinate as much time as possible … Maybe get to 47/50 years old and have an implant … I feel so sad … People have been talking about this syndrome for years and I didn’t know it … Younger boys for years of me they live a hell of pain … I try to be strong to go on I would never do a stupid thing but it is hell come down to earth. Thinking about having a stable relationship and planning sex is a mess … I don’t know if I could have another child … This is devastating for me. I can’t even be positive about a cure … Who the fuck would ever help 500 600 people who have intoxicated their bodies in a search for an aesthetic habit … They can’t find cures for sclerosis for parkinson’s that invest so many and so many people … We are a little dot that makes no noise and is so sad my friends. It goes on with dignity but at times it seems to me that the finastride has also taken that.
I tend to agree. People are on this forum since 2008 or so. Same things been told for years, stop with the negativity, no one cares about your opinion. Sorry, but we got to be real here. No one has a clue on what pfs is, let alone if it is indeed solveable. Be realistic guys. Not saying one should give up, hell no. Go on if your mind allows you, but stop looking down on people who are just realistic, even if you precive it as “negative”.
We need to let go of the thought that we did this to ourselves.
We only took these drugs because the pharmacies, the general practitioners, the people we are told all our lives to trust, told us that it is safe. They simply have not accurately assessed the potential danger of this substance. Doctors are told that it’s safe, they are trained to go by the reports of pharmaceutical research.
It is not our fault that we took a substance where research results have been either incomplete or tampered with for monetary gain. Doctors are being lied to just as much as we are in this respect.
The only mistake we ever made was to trust in our respected medical system.
Perhaps we were vain, perhaps we were a little naieve in believing we could change our appearance without repercussions, but we do not have ourselves to blame for this situation. We were lied to and were told half-truths. That is not your fault.
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There’s people that have had PFS for 12 years and have done nothing but TRT and nonsense like acupuncture therapy or cognitive therapy.
The problem is the time is scored… And only trattamens non help this condiction… We are go straight with pde5 cialis Levitra viagra… And for a lot problem nathing resolve the condiction… If you have at 30years old… And you stay in this condiction for a long time is a sure when you have 50year old you make a implant…
Maybe one day the science community found the causes of pfs but maybe we are a old man… And the best years of the life goes on.
Many people have seen improvements in their erections over the years , you need to stay positive @Preoccupato
I’m positive but I’m realistic.
No one knows what will happen , so take it step by step and don’t look too far ahead , when someone starts planning for an implant just 12 months after contracting the disease it means he’s very pessimistic , if you don’t believe in your own recovery then you’ll probably never recover , belief is everything , penile implant is a good option for people with severe ed but it should be considered as a last resort remedy
I don’t know if a have a ed sevaral o no… If I masturbation in a time I’m a 100%erection but I have a pain nervous. If a take a cialis I’m a 100% maybe 80/90.but after 1 year I have the skin of scrotum plastic. The penis skin is more colured respect at pre Fina.
For me is impossible have a two sexsual performance. In this moment I tray only cialis 2.5 for the trattamens. For the nerval pudendal pain there is a meds. For ed yes… But for a long time a take a cialis… And my sistem blood in the future compromised that cialis?..
Libido there isn’t… My wife a special woman she is a more comprensive… She speack not problem if Im at 80 90%but for me is a very big problem.
If you have a mild ed then it’s easily solvable , things will slowly get back to normal , be patient , people on here have sympthoms which are 20 times worse than yours and they’re still fighting for their recevory , knowing there’s a light at the end of the tunnel , all that whilst helping others too , they’re exceptional people , you should always remain optmistic , things will get better with time
Stop saying that people who only have ED get better over time or that ED is “easily solvable”. Plenty of guys here suffering constantly from ED and never seeing any permanent improvement, even though they don’t have any of the ‘worse’ symptoms. It’s not “easily solvable” at all.
I’m myself suffering from severe ed induced by finasteride and i know what it means to be suffering from that at a young age and how it’s difficult to deal with , ed and libido are my main sympthoms too but in case your ed is mild and you still get strong erections by stimulating the penis , your recovery will be easier , some people are really too negative @Wintermoon
Bro if I stay sit the pudendal nerve meet me in inferno.
Are you sure it’s the pudendal nerve ?