If everyone in this forum donated monthly. This will easily be a problem of the past, we are all suffering immensely. We can figure this out but we have to get together and give the funds the researchers needs. If 10,000 of us donate 20 dollars this will speed up the process immensely. And that’s one month! One month will get us to 200,000. We can win we can get our lives back but we have to do this together. Please guys let’s end this suffering.
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You’re right. anyways, for me its worth if we dont find a cure in 5-10 years (obvously i want to get a cure ASAP) but we prevent that more people get ill. I hope that once all the research is done, they stop selling those poisons.
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If we have more resources we can speed everything up massively
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No need for us to be martyrs. We need to hurry things up so we can get our lives back
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You’right man, we have to push to get the cure as fast as posible. Its a shame what happened to us. Every live is so valuable.
Ask friends families if they are willing to donate. We can beat this terrible disease together. Call and message one another communicate. Be there for one another. We aren’t alone in this fight. We can and will win.
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Hell yeah, brother!
If any of you guys want to talk on what’s App lmk.
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You all know the big pink elephant in the room. Who has been flattening every aproach for 30 years. None of us would have to have this crap. Finasteride could have been off the market for years. My opinion!
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The PFS Foundation estimates 300,000-400,000 PFS victims out there with the number eising daily. If we can only get 1% of these people together to donate 50€ a month this would make a tremendous difference
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I haven’t donated much because i’m a broke student partially impaired by ADHD and PFS who lives with my parents in the 3rd world(minimum wage here is around $200).
I honestly can’t fathom why we don’t have much more money for research since many(if not most) of you live in the 1st world and have jobs, and therefore have a lot of disposable income. Stop eating out so much or something.
Also, is there any way to make a recurring donation on the PFS Network website? I don’t see the option anywhere. I believe on the PFS Foundation one you could do it, through Paypal. Might be a good idea to add it since you won’t have to worry about forgeting.
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I agree we should all be donating more of our income but easier said than done. Yes there is a way to make payments re occur
Your faith really hurts me. It’s not what a young boys life should be. In the 1.world would be money to solve pfs in three years.
After 2 years on all forums I would estimate without criticism and bad mindset that 19.000 registered pfs victims pay between 5.000 $ minimum and 50.000 $ maximum for selfmedication, blood paneels and hormon doctors and expensive hormone and other therapies. Many visit more then 50 different privat doctors, clinics and therapie centers. Sometimes in different countries with flights, hotels rent cars, sometimes over the entire world!
Minimum 19.000 * 5000 = 95.000.000 means 95 million dollars.
Maximum 19.000 * 50.000 = 950.000.000 means one billion dollars.
These are the summs we talking about!
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Absolutely horrific statistic.
Perhaps you’ve exposed why the medical community will fight the recognition of PFS as a legitimate disease or syndrome.
The recovery industry now has an income cash cow that may dwarf the sales of the product in question. (Fin or dute)
There’s a billion reasons against a ban.
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That’s absolutely true. Behind the “normal” medicine and pharma market is a hundred billion dollar market specialized for DESPERATION MEDICATION. It’s very different from the “pharma medication critical and ethical” holistic and alternative medicine.
Everywhere something isn’t treatible, the specialized DESPERATION MEDICATION doctors have the cure.
And alone for pfs it seems to be a hundred million dollar Market for laboratories with hormon paneels, hormone doctors, hormon manufacturers, steroid kitchens, autoimmune antibodies labs and bloodwash clinics, the monthly main wash cycle for 2500 $, vielight helmets the leading model for 5000 $ and the pharma industry like MERCK selling hcg.
And the really unfair and shabby behavior of DESPERATION MEDICATION is that they come along as our friends. In truth they prevent any progress and harm the patient collective because they tie up funds and have no interest in curing diseases or warning new patients of the dangers of finasteride or SSRI’S.
Without DESPERATION MEDICATION finasteride would be out of the market since 2012 already. My opinion. No one of us should have pfs.
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It’s nice to donate but it tooks a decade for a group of guy to figure out what could we actually research so much it is complicated.
so money will be in pending status or…
Without a clear plan it doesn’t motivate to donate at all.
Thats what people said 10 years ago. Fortunately a little group of members (awor, axolotl, etc etc) made individual efforts and we have things thanks to them.
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In our special case, since finasteride trademark protection expired, the product is sold by Organon and as generic, it is absolutely true that MERCK makes profit with their own finasteride syndrome victims as pregnyl HCG customers.
First they kill us, than they “”“cure”"" us.
And the digusting game goes on with hims, keeps, myspring, Romans …
First finasteride, Minoxidil and SSRI’S for suppressing orgasm reflex and than viagra and cialis for them it still works.
46 new pfs victims per month only registered at the pfs foundation. After 30 years of pain and suffering. Let them run into the knife is not beneficial and a bad mindset!
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