Where we need to target awaerness?

[nana123]

So my best friend he is the son of the CEO of the ministry of health in my country, i can easily speak with him face to face about pfs, but what can he do? There arent enough researches about the syndrom, where should we target our voice? Universities? What would do the difference?
I feel like i want to activly do something about pfs and use my voice and face so people will be aware of whats going on, but i dont know where to target my efforts, which people should i nag??

I want to send emails, use connections, raise as much awaerness as i can. How can i convince

[Greek]

Create a video.

We are appealing for people here:

YouTube Video Project: Guide, Template and Submission Instructions

Please read this guide in full to make and submit a video for our YouTube Project. If you already have a video to submit, or have further questions, please send a message to @Northern_Star, @Dubya_B, @Greek or @Sugarhouse . Please do not upload it yourself, as these are to be presented on our new channel together. Introduction We are asking patients with the bravery to publicly share their stories to make and submit to us a video that will be part of our YouTube series of patient stories. It is …

I agree that visibility is important

[NewYorker]

Speak to him. Maybe create a university research project, or a database collecting very detailed testing information across all those with pfs. Please don’t pass up on the opportunity to get the word out.