you know there’s less than 300 folks with even ten posts to this forum. starting to wonder how many are there really heavily affected?
There are 80 men in the Canadian lawsuit, these are all sufferers as a result of Propecia. Canada has a population of 35m.
The USA has a population of 300m. Based on the Canadian lawsuit, this would mean about 750 sufferers in the USA. Also a similar amount of sufferers in Western Europe. I would guess-timate a similar figure again for the rest of the world (middle east, brazil etc.)
That would make about 2,300 people with permanant side effects from Propecia worldwide. This figure does not include users of generic Finasteride, therefore the true figure could be many times that.
Why arent more people active in this forum? Not everyone who is severly effected posts all the time - this is a fact. A lot of people who have had serious sides simply dont post here unless important, like snowking or the guy that started the class action lawsuit.
?
Maybe they feel like most of the stuff we talk about is territory they have already covered. I think most of them have been through multiple treatments. So, they might keep an eye on things to see if anything is new but just don’t feel like going over the same ground. We all have different ways of dealing with this I suppose. I don’t think we can assume because only a handful of us post regularly that means only a handful are severely effected.
Also, I really think that maybe only 5% of men who have PFS realize they have PFS. Most of us would have had no clue in the absence of this forum, especially with our doctors denying post Fin hypogondism. I am hoping the Canadian law firm hits the media hard searching for Finasteride victims as has been done with other suits. I bet there are thousands of men in Canada suffering who have no clue why suddenly they are hypogonadal. This isn’t their first go at this type of litigation, so I’d be shocked if that doesnt happen. Obvioulsy from a purely business standpoint it would make sense.
We are only a subset of the PFS population. Many people are not even aware that fin can cause them sides, some are trading the sides for hair, some are lurking, some haven’t found us. I took fin for years before I realized what it had done to me and how bad it got.
There are many many men that will come out of the woodwork later on as the lawsuit gains traction.
I am not a shy guy, and have never been the type of person to refrain from speaking out and speaking my mind; all of my life I had been known for standing tall and saying whatever I pleased. But, despite this, the shame and humilation of having what felt like a self-inflicted medical problem and then experiencing the stalwart resistence/denial of most doctors that I’d seen (especially initially) intimidated me greatly. I almost gave up then and there.
Therefore, I do not think it is unreasonable at all to assume that those 80 guys in Canada are 1%, or perhaps even less, of the total group in that country who’ve been affected in this way. Perhaps even after this lawsuit is litigated fully there will still be a significant majority of men who keep quiet out of fear that this embarassing situation for them could become known publicly.
Consider this: Dr Crisler says he has seen ‘a couple hundred’ guys about this, we have heard from maybe 20-30 at the very, very most. Given that Dr Shippen was seeing guys for PFS a few years before Crisler, a conservative estimate would be that he’s seen 300+ guys. We have heard from even less of them.
If men are going to see these docs they must be in pretty bad shape. So that alone indicates there are many more sufferers out there.
I wish everyone who has PFS would at least sign up here and visit every so often, so we would have a stronger pressure group and a better idea of numbers affected.
The only way to get attention of sufferers is constantly advertise in TV. Seriously we should do it, collect money and start advertising asap.
Well he could forbid me all he liked. If he cured me I damn well be back here there and everywhere telling you guys how to cure yourselves!
I assume law firms will start to advertise soon looking for victims as Propecia lawsuits become a cottage industry.
I don’t think Crislers protocols are any much different than Dr. Shippen’s. They have a pretty close relationship and seem to share alot of ideas. I havnt heard this “oath of secrecy” from one of Crisler’s actual patients. If Crisler had something that was working I think those of us seeing Shippen would be on it. Not to mention that it’s ludacris to forbid any of us to keep silent about any treatment that was working. I’d seriously question any doctor’s ethics who imposed such a restriction.
I highly doubt if Dr. Chrisler has successfully treated any 5AR patient. JN knows it very well.
I am one of these people. I have been in deep confusion about my issues for years and years and years. (I took fin in 2000/2001). It was only sometime late last year that I stumbled on this site, and even then it was because of a tipoff from a dermatologist who told me that she couldn’t promise that Propecia sexual sides wouldn’t be persistent in nature. So anyway- yes I agree that there are probably thousands upon thousands out there who are experiencing some variation of the sides and are disconnected for a variety of reasons from this forum.
I’m sincerely hoping that the lawsuits starting and the resultant advertising from lawyers that will happen to try to recruit, will blow this issue wide open and we’ll get a better sense of how pervasive this really is.
Even in my small sphere of life, my wife is dead convinced that her friend whose husband also took Propecia is suffering from the same, b/c they have a dead sex life, which has been discussed amongst the women. That’s potentially 2 people in such a small sample set of men I know personally who have taken Propecia- probably a total of 5-7 men.
Bottom line- this issue in my opinion is FAR MORE PERVASIVE than the board numbers suggest. We may never know for sure though. We’ll see.
I think it’s a question of mental sanity. If you sit here every day reading all the posts you just might end up going crazy. It’s really important that we try to keep some kind of balance in life, even though everything clearly seems to be working against us. If you’re in social withdrawal mode, as many of us here are, it’s very tempting to just sit behind the computer all the time. But by doing so, we all risk to loose even more than we already have.
I personally spend a lot of time on networking with scientists in the hope that we can eventually get this problem into a lab. There are only 24 hours in a day and my energy levels seldom last for more than 12…
Bottom line, I guess everyone has their own reasons why they post a lot or little. At the end of the day, everyone must do what’s right for them.
You hit the nail on the head for me. I am not working so I’m spending energy here. I don’t get pleasure out of many of the other social and fun things I used to do so I stopped pursuing them (Adhedonia). I just don’t care any more so I’m focusing on this. The only time when I do other things is when my girlfriend takes me with her. I’ve become a recluse, staying mostly in the apartment and cannot really focus on anything else. This is it when I can focus.
One of the lawyers who called me asked the same questions. “where the heck is everybody?”
He thought he would have thousands of people calling him hardly anyone was coming forward to call him
Lawyers for America or Canada? I’m more interested in trying to fix myself then contacting lawyers. If I cant get compensation, I’m just not all that interested. Its not about revenge for me. I just want to get better and get on with my life. I feel that my life is pretty much on standby for now…
People will start to come forward as awareness grows. I’ve been suffering this hell for years. It took me 18 months before I finally gave up hope. It took a long time before I had enough to be able to deal with this publicly also. Regardless, support and lawsuits will grow over time, especially once a class action law firm is on board.
Where can I find the number to call the U.S lawyers?
I lurked for about a year and half until I got a blood test (about 2 weeks ago lol)