What should we do to help?

General Discussion Media & Awareness
#1

If gaining the interests of the media, the medical community, and the scientific community are the the most crucial aspects in solving the PFS puzzle, what can each of us do individually or in groups to help?

Please post any suggestions/ideas related to:

What types of media outlets/scientific communities/doctors to contact?
The best ways to approach each of these organizations/members?
How to best describe PFS?
Ideas regarding “What to say” and “What not to say”?
The most critical information to be armed with while discussing this problem?

I think this has been talked about somewhat before, but it would be nice to know what exact methods seem to be working well.
Some have already succeeded in getting things moving.
If you truly want to feel better someday, there is no better time than the present to do something about it.

#2

maybe we can all record a audio of what we have been though and upload to youtube?

#3

Perhaps we could also all start our own blog and link it back to here. And also paste what we blog on here too. Having 1000 blogs on the problems of finasteride could help.

#4

Get someone famous to tweet about this site.

#5

Andrew Lloyd Webber has been rendered impotent by prostate cancer and has came out openly about it:

twitter.com/#!/OfficialALW

dailymail.co.uk/tvshowbiz/article-1371379/Andrew-Lloyd-Webber-reveals-prostate-cancer-battle-left-impotent.html

Dr Mercola has 60,000 twitter followers and he has written about the dangers of finasteride previously

twitter.com/#!/mercola

Some people on the Longevity forums and acne forums use doctor’s blogs etc.

#6

I really hope that there are doctor’s that take interest in our condition at the seminar that is taking place; that has the biggest potential for us in my opinion. I would love to know how many doctors and researchers will be attending.

Is there any way we can join up with the SSRI victims? if you visit there yahoo forum you will see that they are really trying to push awareness.

#7

mew - perhaps you could tweet at andrew loyd webber from the official propeciahelp twitter to tweet about our site? surely he feels some empathy towards our situation