Ultimately, the thing that needs to happen is that we connect with as many people as possible. In addition communities on Reddit were taking ownership of the narrative.
Plenty of people here will have looked at places online that dismissed fears of side effects long and short term. This fundamentally makes it harder for the real situation to be communicated, not only do we have to get the story out there, we have to push back against an idea that has taken root and is reinforced daily by people dismissing the idea of side effects and then also the stories of patients who have been left with them.
So, that’s why Reddit is important. We can be in a position to get the message out there, counter misinformation and also communicate with more people where they already are.
The big thing to do, is use the forum if you want to. There’s nothing stopping you from using this place and Reddit or just one or the other.