What can we do?

General Discussion
#1

I’m wondering what can we do besides experiment on ourselves and wait until someone figures out a cure… there must be something…

#2

There are plenty of things you can do:

  1. Report your symptoms to the authorities
  2. Take the survey
  3. Provide your 23andme data
  4. Volunteer to tell your story on our YouTube channel

See my post here for more details: Pssd for 5 months

3 Likes
#3

There are plenty of things you can do:

  1. Report your symptoms to the authorities
  2. Take the survey
  3. Provide your 23andme data
  4. Volunteer to tell your story on our YouTube channel

Another is: recruit people to take the survey. Especially - we desperately need more Accutaners to take the survey. This means going onto Accutane sites and encouraging people who’ve been hit by the drug.

5 Likes
#4

Raise awareness that’s the only way we’ll find a cure.

1 Like
#5

what northern star posted is the best thing we can do.

lets all work together to get the surveys and projects filled up.

tools that might cure us are already refining and approaching the market for usage, but if we dont figure out whats going on in scientific detail, we wont know how to use them.

so we have a lot of hope, but we need to get rid of the mystery by getting our projects done.

2 Likes
#6

I can do this whenever. Just let me know what I need to do. Thanks.