What about a summary document?

General Discussion Media & Awareness
#1

Hello, I leaded recently in this unfortunate situation. I am therefore facing that many doctors are not really aware of PFS. I guess some may know of sexual disfunctions, but I am not that sure mental side effects and others are taken into account. The problem is clearly that even if you can convince your doctor to spend some time to make some research on scientifical data banks, he will hardly find something, as this happens all the time when specific scientific articles are a few.

I am wondering if someone ever wrote a summary document with scientific references that could be used to convince the physiologist that you are not a fool and that the question needs a bit of special attention. I see some university doctors already have taken into account that there is a serious problem with Finasteride. I think a similar document is of primary importance to all of us, and I hope some of the previously mentioned doctors may give us some help on this.

Further I think a similar document could provide an effective way to convince university researchers to have a look into this. And since we’ll not have any help from Merk or other Pharmaceutical society, I think we can rely only on University to ascertain possible therapies.

I think that the overview on Finasteride made on the FAQs could be a starting point. However, all statements should have explicit references to scientific documents. This is of primary importance as this gives your doctor a way of veryfying what you are saying.

Finally a similar document should be emphasized on the site to allow new users to face the medical world. This may also help “veterans” as the attention on the question may grow faster.

Thank you for the effort on this forum.

PS forgive my lacunous english.

#2

This is a good idea. M.D. aren’t going to sift through dozens of papers we might be inclined to bring in. We almost need an on-going medical literature synopsis document.

#3

drproctor.com/propecia/propecia.pdf

This is a study about finasterid and it´s persistent side effects!

I showed this the doctors and they believed me after reading it.

#4

Thank you for the link! I however think the most relevant scientific articles should be reviewed and included in a review document. It is common in science to find this kind of review documents, eventually certified by the publisher, that do take into account the most striking evidences of a topic. Obviously it is far better if the document is written by a scientist and published by a sectorial journal. An unofficial document could anyway be redacted. I will try and do something similar in the next weeks. Experienced users however could probably do better than I could, in absence of a volunteer researcher or physician willing to take care of this.

#5

This is a major undertaking but one that could benefit us. We need to synthesize all the significant and plausibly significant knowledge/related research findings/facts into one coherently organized document. Doctors and researchers are not going to sift though the 150 different possibly relevant studies to extract what we think might be useful information.

We need to group the information into a meaningful logical structure e.g. findings related to different theories or maybe group the information in multiple ways. It might be useful to first decide on a information schematic. What are the various sections of the document etc… Maybe look at how researchers organize a literature review BUT this should be a ‘dumbed down’ quick read literature review, IMO.

#6

I maybe wrong… But I think the information has already been organized… Someplace.

#7

I agree, we really need to do this. It is not easy for new users to find out what works and what does not. They don’t have to go through the same trials we had to. We have come to some conclusions in all these years.

#8

What works consistently for everyone?

#9

Very little stuff. But we have found quite a few natural approaches that do bring some benefits for many (fasting, mild exercise, avoid too many processed foods, avoid medications, avoid alchool, etc, etc). And all these information could be in a booklet. Right now this information is scattered in many topics. The new users don´t have to crash again and again and learn the bad way what we already know. The criteria for including something in the booklet would be if it has helped many members. It does not have to be everyone and it could be explained in the booklet that some users dont benefit from that.
We also know a lot about what definitely does not work. Why not creating a guideline about what has not shown good results?
As far as we know, TRT has not helped. The only exception could be JN but his protocol is so complex and involves so many drugs that only a doctor (as he is) is able to do it… and i am not sure if his protocol can be replicated.
In my opinion this document could have:

  • The proof we have so far about the existence of PFS (studies, doctors, etc)
  • The hormonal profile generally found in PFS victims (and possible variations)
  • Natural protocols, supplements that can help
  • What has not worked
#10

Personal interest: in your feeling, has Arimidex proved to be effective in many cases?

#11

I never had high E2 after Propecia. So i have never taken Arimidex and have not read any topics here about it, so i really can´t answer your question.