Well, new sufferer from France... 6 weeks update

Yes, it is very scary, I know.

As I said, try to take things easy. It’s very early to say how things will go (not very comforting, I know) but the vast majority will get better.

What to expect for a visit at my doctor’s? Will think I am fucking nuts…

Hey greek anyways we can chat live?

Hey guys really looking for support here… Ruminating my life is over and shit… Pls send feedback…

Likely a lack of awareness of the issue, I’m afraid.

Sorry, I am not going to be available to do that. I have a very busy work day today.

Please read my previous reply to you. It’s far, far, far too early to say if this is a long term thing for you.

Other people who do end up with longer lasting symptoms regularly report improvements with time.

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Hi Frenchfries,

I and really sorry that your going through this and I hope you can get some support, it maybe worth contacting the foundation and they can connect you with people who live close by.

Please see the post yesterday by @Northern_Star, it was really helpful:

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Thanks for support!
I had really bad thoughts this afternoon…
Seem unable to find the coping mechanisms with this stuff…
Worse is my GF who will think I am waco…

Hi frenchfries

What you have described is what many here have gone through and believe me, I personally know how harrowing and extreme the crashing phase can be. Looking back on it, not much helped other than posts that offered hope in the way of the possibility of some kind of recovery. For many months, I didn’t believe any kind of recovery was possible for me, my brain felt so damaged and my body had experienced so many changes.

I can tell you that since then, my mental symptoms have improved to a point I never thought possible. There’s a lot more I could write but I just need you to know that the despicable state that you are currently in WILL improve but it may take some time. Please keep it in your mind that you can improve and, in the mean time, do NOT take any other drugs, herbs or whatever other substances might be recommended here or on other sites centred on pfs.

Take care and be honest with those who care for you with what has happened. We’re all on this forum here for you, we know what you’re going through.

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Thank u so much…

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Was on the phone with a French responsible for fps association…
Will have some blood tests and see doctors…

Hello frenchfries,
Your story is very similar to most on here.
I took the drug for 20 years and have all of the sides and morr. It took me a longtime to find the underlying cause of my ever increasing health issues. During my many crashes I have contemplated the unthinkable but pulled back thanks in the main to the support and hope offered from other sufferers. I’ve been off fin for over 1 year now during which time I’ve developed additional sides and had some terrible lows. Over the years I’ve taken many supplements to try to combat the symptoms. I’ve always had an extremely good diet and healthy lifestyle. My diet has changed to try to reduce the effects, often with limited success. Recently I have experienced the odd bounce where my old self appeared without any symptoms. Once for a day and as recently as last week but only for a few hours. This starts with muscle strength, spontaneous erections, recession of symptoms and an improvement in mood. Unfortunately all of the symptoms return however these small windows do give me some hope as while on fin I never once experienced this. Some of the more recent symptoms like profuse sweating, pins and needles have started to fall away more and more frequently. So hang in there you will improve. The long lasting ones are very stubborn. Exercise and distraction techniques are key for me, no matter what stick with it and as others have said do not interfere with your hormones. Hope this helps.

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Thank for this honest post…
Thank for support…

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Help needed !
GF wants to take a break and I can’t really calm down…
Considering bad stuff.
Support appreciated lads.

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We’ve all been here frenchfries, it’s unbelievabley tough, no one outside of PFS understands or can appreciate what were going through Hang on to the fact that it will pass and overtime things have improved for many. Tell yourself it will pass! Think of the positives in your life like your loved ones. Don’t do anything silly or regrettable. We all need each other. As said try exercise, distraction strategies, therapy to help and they really do! Try fasting too that has helped me

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What’s the point…

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What’s next? Unable to work? Oh God…

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I tell myself when at the lowest that people with a terminal illness would swap places with us. They don’t have hope we do! Your in the worst place at the moment. Don’t give up. The negative thoughts feed the anxiety etc, try thinking the polar opposite to what your hormones are telling your mind to do. Outage for the buildup via exercise or different thinking will help. It seems hopeless but it is not. Use your other senses eg sight and smell get out there and look at nature. Do mental subtraction from 1000 in 7s it helps lift it even just temporarily but you have to keep doing it

Can I PM you?

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Yes of course mate anytime

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I have