Does anyone here use a cane or some other aid for getting around? I have periods where walking itself can be too painful and was wondering if anyone has seen any benefit to using a walking stick or something similar
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I’m having problems even being able to shower myself now after 10 years of pfs…so fat and weak I have problems stepping over the tub it’s a garden like tub and higher…the other night I sat down crawled into the son of a bitch a sat on my ass and showered lol…then it took me 5 minutes to get back to my hands and knees then fully upright to get out of the damn thing…life sucks
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2 years ago I couldn’t even dress walk or shave I became terribly disabled after a huge crash from zinc oxide (sun cream) if was that bad I could not even put on a sock or climb any stairs I couldn’t even pull a t shirt off so using a cane wouldn’t have been an option. Like nothing ive ever experienced. I’ve had rheumatoid since the age of 14 so am used to pain but this was like nothing on earth. After almost a year I improved a little so don’t settle on the fact that mobility issues are permanent. How are things in general these days have you seen any improvement at all in any areas
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The last six months my legs and back aches have increased so much, I know I need a cane but feel like it will be a final admission of handicap status. Sometimes my walk is so unsteady, I feel like an MS victim.
I’m so afraid of falling in the tub that I don’t shower as frequently as I should. With PFS I gained 100 pounds I cannot lose.
With each day I just grow closer to writing that final post. It is so tiring, you know? Jim
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I would say in general certain symptoms seem lesser and certain ones have flared up massively in the past couple of years. For example, I notice sexual sides less than I did in the early years of my illness (though I have been celibate for 3 years so I suppose it’s less at the front of my mind.) However, my mobility, strength and cognitive side effects have reached a crescendo in the last two or three years (not to mention bad urinary symptoms that have hampered my life a lot also). The issue is that I work in construction, and I’m now becoming unable to actually do my work now that I’m becoming weaker and in constant pain, as well as perpetually fatigued.
My doctor has offered to have me signed off as unfit to work with ‘fibromyalgia’ (as they don’t acknowledge PFS), but I fear if I’m totally idle, my symptoms will get worse.
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As such I do really wonder if I’d be wise to use a cane (at least some of the time) when I’m walking around
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I’m sorry to hear this my friend its all far too common unfortunately.
I found over the years / with time i became increasingly sensitive to cortisol/insulin/ androgens etc and physical activity has made things worse. I know its a tough one but maybe take some time off and see if rest helps at all. Just a suggestion. I wish u the best.mornings are the worst if cortisol is a problem.
. If you haven’t already done so please report all of your symptoms individually to the MHRA via the yellow card scheme. One submission per symptom that way it stops them lumping them all together. It’s very important that everyone does this.
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I came across this condition, IBM, and wonder if PFS could trigger it in some individuals? I intend to ask my Dr on my next visit…Jim
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