Unfortunately, this is just how the system works. Everything regarding PFS is such a complicated situation that institutions in mainstream western society don’t really know how to deal with us. The FDA regulatory process is not properly designed to handle rare side effects, esp with the way clinical trials are conducted. PFS is a misunderstood connection and I believe we need a new scientific paradigm to develop a proper understanding for it, and the legal system has an outdated set of rules for proving causality that made it almost impossible for us to win.
We’re kind of like a small group of societal orphans that nobody knows what to do with so all systems fail us. It’s a horrible situation to be in for us, but I’ve committed to accepting that as a fact and pulling myself up by my bootstraps and returning to life as normal as best I can. In the two years since I decided to do that, my outlook on life is many times better. It will still be much harder for me than many, but its the best possible option I decided that I had once I exhausted all options I had to deal with this PFS thing in the way that I thought I was supposed to be able to.