Voice - back from Dr Shippen, updates

General Discussion Media & Awareness
#126

The not sitting all day makes total sense for overall health, nevermind compressing that area; you inspired me to get a Foam Donut Cushion, complete with a picture of an 85 year old senior citizen enjoying his morning newspaper on the package cover. I don’t know how the fuck to sit on it, though, it doesn’t feel that comfortable. As far as bike-riding—that’s just a no-no for anyone who wants healthy genitals. Data on that has been posted on the forum before.

I don’t know man–I wouldn’t conclude that their therapy rules out pudendal nerve impingement. It’s a very logical area to suspect, and there are a number of PFSers with this diagnosis. Not all docs want to rush to operate or provide cortisone because there is a suspicion of inflammation stemming from infection. So how to treat it is quite up in the air, but it seems legit to have pinpointed that area in my mind.

#127

I am the only patient of doctor antolac that has no pain, most of the symptoms of pudedal neurapathy i do not have. Lets face it doctors are puzzled by are condition its a pretty weird the only other drugs i heard that stay in your system like propecia is SSRIs. Even doctor antolak told me if he was me he would wait for the class action lawsuit, then pool are money together if we win and research this drug. Then we should be able to get an answer if not a solution.

#128

I ended up visiting my dermatologist the other day the one that prescribed me propecia 5 years ago. I pretended like it was my first visit to see how he prescribed it. He told me that propecia had the same side effects as the placebo, and there was nothing to worry about. I then told him the truth that i was suffering for 5 years from that drug. So he is going to use my story as an example for anyone wanting to try propecia, i was not angry at him he was just following Mercks bullshit, and i was the first case he has ever heard of. He also has not heard of propecia updating there prescription info to perminent ED, he said there supposed to send him that info every time they change something on the prescription, so i am not sure about that. Also when he was examining my hair he said i only had about 10% worth of balding, and it got me to thinking i was super paranoid about my hair falling out when i was 21, i pretty much obsessed about it. I wonder if i was ever going bald to begin with, i might of taken this drug for no reason, and if your not going bald and take this drug its gotta really screw you up.

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#129

You are definitely right that a lot of men do end up taking the drug when it is completely unnecessary. However given that you suffer from PFS, it is possible that the response of the drug halted or slowed your hair loss which would have progressed considerably without it.

I was definitely shedding hair at the time I took the medication and in the past couple of years my hair loss is basically unnoticeable.

#130

Who has pfs believes to everything is supposed to fix him, even absurdities like taking tons of nystatin or pulling his dick and even if he knows that will not help it he does it all the same. I pulled my dick for not more than 10 days in january, i ran across penis enlargement and thought it could help me with shrinkage. Since then i saw my improvements stopped and probably i even got worse, my best days in the last 20 months were few days before my penis enlargement folly. Immediately after p. e. i noticed a white spot just under my glans, well spot is not the apt word, it seems to me that blood is not present in that point, the white spot is to my mind a point under my glans with no blood . I’m 99% sure pulling my dick and glans created that “spot”. In addition then my libido got incredibly low and has never returned back and my testosterone now is very low, never been so low since i’ve been having pfs. Assuming that p.e. damaged my dorsal nerve of the penis (i think it is the only damage it can do) now my question is can a damaged nerve in my penis explain the “spot” under my glans like no blood flow there, lack of libido and low testosterone? Or it can be just a coincidence, p.e. did nothing and i’m just experiencing a different form of pfs?

#131

go for ultrasound, white spot might be calcification.

#132

my erections have gotten stronger, partly because i am doing kegel exercises. I have to say though my penis feels even less sensitive then before i am not sure if i will continue doing pudendal nerve therapy ( basically stand all day or sit on a pillow with out doing anything to physical) I have been doing that therapy for almost a 9 months now and i feel like i am just getting worse, maybe because exercise is good for are hormones.

askmen.com/dating/love_tip_60/67b_love_tip.html

#133

You mention that even before finasterid you thought that you should feel a lot more during a blowjob. Is there any chance that you are circumcised? In the US a lot of men get circumcised and circumcision can cause a decrease in sexual pleasure. There is a whole community dealing with this topic on the Internet. I am circumcised, too, and I had the very same experience before Fin.

Obviously, this only concerns a fraction of your problems. But you might want to check that out.

#134

I am not circumcised.

#135

Voice how has your depression been since stopping Propecia, did it last for awhile after stopping. I seem to have more of the mental symptoms than sexual after stopping

#136

Just got my testosterone and DHT tested. I figure it would be a good idea to test it again to see if maybe there has been a decline. I really wanted to do the 12 hour test taking multiple blood samples over a 12 hour period, but i had to settle for them just taking one sample before 10am. I have not gotten the letter in the mail with the specific details on levels. I only talked to the lady on the phone she said that my DHT is normal and that my total testosterone: 523 (240 - 950 ng/DL) is normal. So the last time i was tested was 4 years ago, it does not seem like a significant drop in my opinion.

#137

hey voice, this is good to hear. Now we “just” need to teach your cells to respond again to DHT.

#138

Hey, voice! How are you doing now?

#139

Not much has changed with my story besides I having a better mood I’ve just been living my life the best I can and not letting PFS run my life. It’s been 13 years with PFS. My erections are decent, my libido is doing pretty well but my orgasms still suck, but I enjoy parts of sex still and I try to stay positive my main advise is don’t obsess over PFS it will just give you higher anxiety.

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#140

As far as the lawsuit goes I have been pretty pissed off. I signed a release to join the settlement but they would not inform me of the amount I would be settling for when they told me the amount I wanted to reject the settlement and keep fighting but there was a no appeal process in my release I signed and I’m stuck with the low settlement. Of course suing my lawyers for breach of duty could be a possibility.

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#141

We sound very similar in terms of symptoms @voice. Very weak to nonexistent orgasms are my only symptom that hasn’t improved.

#142

That’s terrible that lawyers only take PFS cases as class action lawsuits

I’m sorry for asking such a “bad taste” question . I have always wanted to know.

When you say a low amount are we taking less then 100 grand ?

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#143

Like 4 grand

#144

First off before I vent over this I’m sorry for every thing you have gone through

But that pisses me off!!! Like really bad

The lawyers are literally selling you out in exchange for the settlement from Merk that fills their pockets only through the class action settlement. I wouldn’t even be surprised if there is a back room deal worked out where Merks lawyers get your former attorney to agree to not bring anymore PFS lawsuits on behalf of additional PFS victims in exchange for the easy settlement that only your former lawyer benefits from. This is speculative. But it’s also smart for them. It does seem like the lawsuits in the US against Merk have been limited in spite of the relatively large amount of people who have suffered greatly.

If I ever recover and can now invest my time and energy into something else I’m going to law school so I can bring as many non class action single contingency fee cases as possibly against Merk. That’s what it will take. A loan wolf small nobody firm who does not care about money or anything other then getting cases all the way to trial.

#145

Have you ever heard of anyone trying
Oxytocin for poor orgasm ?

I searched the forum to see how many people have tried it. It looks under explored

I have also heard before that in PFS poor orgasm may be related to problem with noradrenaline. Don’t know how tested of a theory this is though

I have bigger fishes to fry right now with a severe insomnia relapse but once I figure out how to beat this insomnia I may explore both of these paths as possibly ways to beat the poor orgasm