Used finasteride ,accutane and minoxidil

NEW MEMBERS, PLEASE FILL IN THE FOLLOWING TEMPLATE. This is so that we can more easily track symptoms and hopefully find patterns in our syndrome. This will also help others understand your background and situation.

  1. Where are you from (country)?
    India

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Google

  3. What is your current age, height, weight?
    32

  4. Do you excercise regularly? If so, what type of excercise?
    Weight lifting

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    Meat eater

  6. Why did you take Finasteride (hair loss, BPH, other)?
    Hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    2 months

  8. How old were you, and WHEN (date) did you start Finasteride
    26, 2012 Jan

  9. How old were you when you quit, and WHEN (date) did you quit?
    26, 2012 march

  10. How did you quit (cold turkey or taper off)?
    Cold turkey

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Finpecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    1mg

  13. How long into your use of Finasteride did you noti

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[ x] Loss strong textof Libido / Sex Drive
[ x] Erectile Dysfunction
[ ] Complete Impotence
[ x] Loss of Morning Erections
[ x] Loss of Spontaneous Erections
[ x] Loss of Nocturnal Erections
[ x] Watery Ejaculate
[ x] Reduced Ejaculate
[ ] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility(i didn’t get this test done)

Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ x] Confusion
[ x] Memory Loss / Forgetfullness
[ ] Stumbling over Words / Losing Train of Thought
[ x] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts

Physical
[X ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ x] Penis curvature / rotation on axis
[ ] Testicular Pain
[ x] Testicular Shrinkage / Loss of Fullness
[ x] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ x] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ x] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?

If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

Anything not listed in the above questions you’d like to share about your experience with Finasteride?

Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

I’m from india sorry for my bad english.i took this poison for 2 months, while on the drug I didn’t experience nothing, but after 2 months one day all of sudden i felt a weird feeling in my penis.i opened my zip and schoked my penis and testicles were shrunken, the skin of my penis was rubbery and wrinkled .the libido was totally erased from my brain and ed was severe.i went and informed my dermatologist he said these side effects are very rare and temporary and told me to stop the drug.i thought I would be ok in couple of days as I came off from the drug,but nothing has improved, after waiting for several months I visited a urologist and I got some tests done total testosterone,tsh,cortisol,free t3,freet4 and estradoil. he said all are normal in range except estradoil 44 and nothing has to worry about it.at that time I have no idea about what he was talking. he prescribed me some viagra and libido stimulant supplement I don’t remember the name of the supplement but i remember it contained tribullus.i took the supplement and had mild effect on libido and I didn’t use viagara as I didn’t need at the time becoz I have no girl friend to have sex.

Months passed nothing changed I started to search the internet and I came to know I was fucked up it’s permanent damage.i just keep on going with my life .

I had severe acne in the year 2013 summer and I was prescribed isotretinoin 20 mg I used it for 6 months had some dryness,but my acne has
Completely cleared.

again started thinking about my hair loss and visited the same dermatologist who prescribed me isotretinoin . He gave minoxidil and some multivitamins and i searched a lot about minoxidil i never seen any sexual side effects listed with minoxidil and i started using it had some benefit stopped my hair loss and some regrowth.

I have used minoxidil for almost 6 years.

I have recently joined this group and after reading the stories from minoxidil and Accutane stories it made me kinda worried.as I took Accutane and used minoxidil too.

My biggest worry is having sexual side effects from finasteride on top of it I used both Accutane and minoxidil and damaged myself further.

Present situation
1.zero libido
2.severe ED
3.penis and testicle shrinkage and numbness.
4.watery semen.

I get very rare morning erection.
My size of penis after erection is no were near pre fin .

1 Like

Hi there Joseph,

Thanks a lot for sharing your story. Your experience with the dermatologist seems typical of many others who report experiencing side effects. Did you advise your dermatologist that your symptoms didn’t go away as they said that they would?

The doctor didn’t even pay attention towards me.

No doctor does unfortunately. Unless you find that “sympathetic” doctor that is willing to listen to you and treat you accordingly, the rest of them are a bunch of bored people who read medical books and prescribe stuff based on symptoms and not the underlying cause

2 Likes

Join the club when it comes to doctors it’s hard work getting them to understand that you know exactly when things went wrong i.e when you first started taking finasteride.
I went to see my doctor years ago regarding these side effects but nothing really come of it as I was given an appointment for a blood test but on the day of the appointment the nurse did not come into work so it was canceled.
I didn’t chase things up due to the negative meeting with the doctor where I explained that I had sexual problems for years ever since taking finasteride long story short I had never really had any success with doctors regarding multiple problems I lacked faith in them as nothing ever seemed to get diagnosed I was always given prescriptions for more pain killers and more pain killers to the point where one doctor took a urine sample and i had blood in my urine and was told to slow down with the pain killers as they were damaging me internally , I felt lost as I could not work without pain management and all they ever did was prescribe me pain management medication I couldn’t help but feel that if they had diagnosed the problem I wouldn’t need the medication and wouldn’t be in this situation. When I was eventually diagnosed it turned out to be ankylosing spondylitis buy it had taken 20 years to get this diagnosed the damage was done now i have colitis too which im sure is due to all the ibuprofen naproxen and the multitude of other medications prescribed.
I have been back to doctors months ago regarding sexual issues had blood tests and was told they look ok now im booked in with a specialist in a few months. I can’t help but feel
Doctors do their best but they are up against the clock with each patient and it has become a world of prescribing tablets and seeing if you go away.
Did you take fincar and finpecia as i purchased these generic brands as they were cheaper and basically more available.
I did switch to proscar when i Could buy them as i thought it maybe the brands other ingredients that was causing my issues but nothing changed I still had the exact same issues and testicular pain.

I took finpecia and and it totally ruined my life,I’m sexually dead since 2012.i have no hope on these doctors anymore.

I’m living a life like a dead man​:no_mouth::no_mouth:

I thought that it would be finpecia as it’s made by a India based pharmaceutical company I think they are named cibla
I took the same brand for around 3 years then i tried proscar but side effects were exactly the same.
This has left me sexually dysfunctional for years around 5 years of taking it and another 9 years since stopping the drug.
It’s not easy to accept the problems it has caused and as i self prescribed i blame myself but had I had known this Could happen obviously I would have never taken the risk.
The thing that pisses me off is people off is exactly what you expressed it’s just like being a man with no voice so no help out of this.