Beside all the clinical studies,can the foundation help us to get enrolled in Undiagnosed Diseases Network ?
i applied last summer with a very thorough and formidable application and was denied
We are going to die the way that we are.
Did they told you why wasn’t accepted?
yeah i’ve already accepted that.
and yeah, they gave me some really obscure-bullshit reason that I don’t even want to go look at because it’s so stupid.
I kow that you don’t want to even look at, but please let me know, because I want to be prepared for it.
Thank you for your response.