Two consultant medical opinions

General Discussion
#21

Hey James,

Drop me a private message if you have any questions. I think my experiences documented above gives a good idea what to expect. I have also spoken to another person on the site who had a very similar experience. You will basically be offered Cialis, clomid if your testosterone is low and shockwave. The shockwave is ludicrously expensive - £6k for 12 sessions. I’m not familiar with any evidence it would help with our types of problems.

If your still early days in your recovery (3-6 months), my advice would be get on daily cialis, masturbate daily to get blood flow into the penis and see how you do in a few months. I recon you will see an improvements. Get the GP to do a standard erectile dysfunction blood test - which usually includes testosterone, LH, FSH, and prolactin. It will probably be normal but worth checking.

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#22

Pianist will
You hit the nail on the head you have described exactly what my GP said although he did say try viagra 5mg a day everyday then gave me a prescription for 4 tablets to which i said I have loads at home I have been buying it for 14 years off the internet so not alot of point in paying £8 for 4 when i buy them for half that price. I did also explain that i have never used them in his suggested method of 5 mg a day and would try it. I then looked at the prescription and it was for 4 100 mg tablets which strikes me as a bit strange as that means i have to cut each of these tablets up into 20 pieces ??? Impossible.
Yet another crazy visit to the doctors to add to the list.

#23

What’s the Cialis supposed to do? Just keep the blood flowing?

#24

Some info here on website

#25

I think it is to keep blood flowing to the penis as this gives the best chance of recovering the erection mechanism, especially if you are not have natural erections in the morning or at night

#26

I didn’t know the shockwave therapy was available anywhere already. Would you mind saying what his cost was? I’m curious because I live in Europe as well and have actually been wondering if I should do this procedure. It does seem like an unusually favorable risk-reward procedure. More blood vessels and muscle doesn’t seem like it could ever be bad. In addition to the physical benefits of better blood flow, it also would reduce the possibility of eventual neuropathy, which is apparently the most common form of peripheral neuropathy).

#28

I imagine shockwave is in most places in Europe now. Probably best to do your due diligence and make sure its being provided by a specialist/consultant who has been trained and he has experience in this. I imagine there are cowboys out there too just trying to make a quick buck on a new technology.

There is evidence it can help with ED. Whether it helps with finasteride related ED is another question though - of course there are no studies. But as you say, increasing blood flow and strengthening the muscle can only be a good thing really. I think for the right candidate it could work well (i.e. someone with finasteride ED, the changes of it helping with things like low libido or neurological symptoms are probably low).

Side effect and safety profile sounds excellent and the worst that can happen seems to be it doesn’t work and can cost a lot of money. I would be interested to hear what your experience is if you go for it.

#29

I don’t think shock-wave or any treatment on downstream sexual organs or functions will have any effect on PFS. I think PFS is fundamentally lack of libido which is what drives everything else. I think the problem is in the endocrine system and in the brain.

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#30

How’ve you been? Have you tried anything lately ?

#31

Will drop an update on my thread soon guys

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#32

What did he try to charge you for the shockwave treatment?

#33

I never did the shockwave treatment in the end. The London consultant wanted £6,000 for 12 sessions which I thought was far too much. I did find another Consultant Urologist outside London who would do 6 sessions for £1,200.

I haven’t completely ruled out the possibility of shockwave but I am skeptical, especially for PFS. All the evidence seems to be for older guys with vascular problems relating to their erections. I think PFS is probably quite different really. Thats not to say it won’t work - it very well might but you will have to be prepared to pay lots of money for a ‘maybe’.

Will update folks on my story soon, on my other thread.

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#34

Long story short: I ended up buying a used shockwave therapy machine for 10k and have it at home. My take:

Of course, it does not correct PFS. While on PFS it doesn’t do much about sensitivity and does nothing about libido. However, once PFS might be gone, it will significantly speed up the recovery of smooth muscle cells and with it erection quality and will speed up dramatically restoring the penile nerve and bringing back sensitivity again.
But while on pfs it is mostly wasted money…

#35

Interesting story, thanks for sharing! What made you decide to buy the entire machine? Which brand is it? It’s a specific shockwave treatment for ED?

#36

It started as a weekly treatment for prostatitis at the doctor. Every time I did it, it did improve most of my pfs symptoms significantly, the sexual ones as well as the mental ones. Since I had to pay the dr. a lot of money every week, he suggested buying a machine to me and helped find one. Some time after i bought it, it didn’t give me the same effect as before and later stopped helping entirely. PFS, as always, is a funny thing. That’s how I ended up with such a machine at home.

It’s a shockwave machine for ed and prostatitis. Model Name is Storz Medical Duolith SD 1.

#37

Do you mind elaborating on what sexual symptoms it initially improved? Anything involving pleasure?

#38

Wow, this is actually sounds like a pretty good machine - in fact, I think the same machine that the “£6,000 Urologist” had! Looks like he is making a pretty healthy return on his investment!

It is interesting the amount of times i hear of someone finding a treatment which initially helps and then it stops working after a few weeks … totally gutting when it happens. Sorry to hear you didnt get the sustained relief you were hoping for.

#39

I had better nighttime erections and even wet dreams. Penis in flaccid state was fuller. It did only very little to improve sensitivity. I think it is because the hormonal environment didn’t change long enough to bring the nerve in the position to heal again. I think this needs to happen first. Then the nerve can heal, but nerves need a long time to regenerate. That’s where this machine should be helpfull indeed. It’s supposed to activate the schwann-cells that will build up the myelin again.

Before the treatment I had some pain in the penis and I couldnt empty my bladder completely and needed to pee more often than usually. These symptoms disappeared completely after the first treatment and never came back.

#40

Yes, it’s insane what amount of money the dr. make with these machines. Of course, buying a new machine is significantly more expensive…

#41

That’s interesting. I know a few guys have issues with regular urination. @Mark2012 might like to compare notes.

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