TV Time For The Brain Fog Guy's To Speak Their Mind's?

General Discussion Media & Awareness
#1

Fella’s…PM me if you are interested in being part of a ‘potential’ t.v. feature. Nothing solid yet. It’s been on my mind for some time. This will be ONLY for the brain fog and cognitively affected group of individual’s. I feel we really need to get heard and get the word out on the brain fog - cognitive disuption - mental side’s. I think the impression the public is getting thus far, is that it’s mere depression, which it’s not! Time to wake up the nation!

It’s time for us to get OUR chance at talking about our mental related issue’s, as a result of taking this terrible prescription drug. Let me know. I think I will volunteer myself in organizing and contacting probably this Philly station that featured this story: philadelphia.cbslocal.com/2011/05/03/health-watch-popular-drug-warning/
I wasn’t too impressed with the Chicago station. Chicago is the epicenter of corporate owned and dominated news media in the US. I also liked the story from the Minneapolis news station. I don’t live anywhere near those city’s, and I’m sure alot of you don’t either, but we can possibly skype? I’ll look into this…

I just think we are not getting a far shake at the publicity side - and it’s a new year - so let’s have it!

PM me if interested in participating.

PS You can remain anonymous and black yourself, change youer voice - No issue.

Thanks,
Robertino

#2

Again, I’m interested in securing a television feature on the brain fog phenomenon, as a result of using and stopping this drug. This has not received the media attention YET, that it does respectfully deserve thus far. I’d like to try and organize something and change all of this. I think the slant, so far in the general public’s eye, is that this drug harms men primarily only sexually, and they haven’t really heard the horror story tales of men with devastating mental side’s. Men who literally live daily in an altered mental state. No disrespect to the men with sexual side effect’s, but this will be only for men experiencing mental side’s. PM me if interested. So far, I’ve heard back from just a couple guy’s. Need more men who are willing to be featured in the ‘proposed’ television news feature. Thanks.

#3

So far it’s just me and Former. C’mon guy’s…

“If you’re able to secure something, let me know. I’d prob be willing to participate.”

  • Former
#4

After having brain fog for nearly two years i still dont know how to describe it properly.
Memory loss … yes
Loss of emotions … yes
Tinnitus … yes
Trouble converting thoughts to words … yes

But there is something else, a feeling that i am not alive, that nothing is real. That my senses are disconnected from my brain, that my brain is in a box and nothing can reach it.

I would like to participate as i have pm’d you but i am having trouble finding the best way to describe it.

#5

Thanks Tim. Glad your in!

Your onto something with the senses. Yes, it’s as if we are medicated or under some influence, or damage, and rely on whatever is left of our senses to get us some place and through the day. It’s as if we are blinded with our brain’s.
I have everything else you described. Remember, to try and stay away from depression and it’s description, because that’s how merck, the media, amd general public is going to try and brush us off with. Our best bet is to focus on the damage this drug has caused us and impaired us in a frightening and scary way. This is how I see it.

I thin we should all try to focus our effort’s in describing this. Great job Tim.

#6

It’s been described:

propeciahelp.com/symptoms

mypropeciasideeffects.com/my-propecia-side-effects-symptoms.html#mental

#7

Thanks, and good description’s, but there is a bit more to this Mew. Many of us feel, as if we are brain trauma survivor’s, and we ran over a roadside bomb and never recovered. This is an impairment, for many of us here and is scary as hell to live with on the daily!

I meant describing the ‘cognitive’ change, and experience, or nightmare, a bit more effectively and how it IMPAIRS you. It’s as if many of us are brain damaged. It is NOT depression or even emotional for many of us.
It is a feeling of complete cognitive change post usage.
Frightening change. Aside from that, it is the ‘ghost walking’ or ‘following your body around’ phenomenon that many I believe are challenged with describing. The ‘auto-pilot’ ’ or drifting daily phenomenon. It’s at time’s so bad, that your depending on whatsever left of your mental capacities/impairment to make it home safe, or to perform the most mundane tasks. Complete cognitive change. Impairment.

#8

The emphasis towards the planned television feature, is to express to the general public, the overall nightmare of complete cognitive change/quality of life loss and not the emotional side’s.

The emphasis on similarities to brain trauma, dementia like symptom’s, forgetfulness, memory loss, and slurring of speech.
This would be a large nuclear missile shot at merck, and would blow this thing up if it were to be aired.
Depression and emotionally issue’s, these days, are much too easy to dismiss, by the general public. It’s much more harder to ignore total cognitive change in a human being, especially young men.

Cognitive Change/ Brain Injury and Impairment symptom’s after propecia usage, would be HUGE if any television station would agree to air this. This is something that even Dr. Jacob’s, has even mentioned, when suggesting potential treatment strategies including progesterone, for PFS sufferer’s. He stated, that brain trauma victim’s, were successfully treated with progesterone therapy. He stated that he wouldn’t rule that out for us. Now, if we are likened to brain trauma victim’s, then wouldn’t that make us potentially "like’ people who suffer from brain trauma? Now, that’s much more serious than mere depression and should be made known to the public. I will contact and invite, Dr. Jacob’s, to participate in this news feature.

#9

Tim, another way to creatively describe this to a journalist or reporter, would be that of comparing ourselves to somnambulist’s. Sleepwalkers, or sleepwalking through this life, and detached from reality in a very odd and frightful impaired way. Perhaps, in a constant dream like frightfully detached state, in which we no longer are able to process the world around us as we used to, and our processing of the world around us, has been completely changed
and impaired.

Language is a very useful and powerful way to project ourselves not as ‘depressed’ dope’s’, but real men who are actually living through a hellish cognitively impaired experience, which we cannot wake from every day we rise.