trying to come to terms

  1. Where are you from (country)?
    England

  2. How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?)
    Propecia support

  3. What is your current age, height, weight?
    37, 6’3", 12 stone

  4. Do you excercise regularly? If so, what type of excercise?
    running, cycling some swimming

  5. What type of diet do you eat (vegetarian, meat eater, raw, fast-food/organic healthy)?
    mainly veggie, some meat at weekends

  6. Why did you take Finasteride (hair loss, BPH, other)?
    hair loss

  7. For how long did you take Finasteride (weeks/months/years)?
    1 year, 5 months

  8. How old were you, and WHEN (date) did you start Finasteride?
    36, November 2013

  9. How old were you when you quit, and WHEN (date) did you quit?
    37, April 2015

  10. How did you quit (cold turkey or taper off)?

  11. What type of Finasteride did you use – Propecia, Proscar, Fincar or other generic?
    Propecia

  12. What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)?
    a full tablet for first two months but experienced possible increase in breast tissue, reduced dose to a half of a table for about three months before reducing further to a third. This appeared to maintain the (minor) reduction in hair loss - receding

  13. How long into your use of Finasteride did you notice the onset of side effects?
    January 2015

  14. What side effects did you experience while on the drug that have yet to resolve since discontinuation?

Put an X beside all that apply:

Sexual
[X] Loss of Libido / Sex Drive
[X] Erectile Dysfunction
[] Complete Impotence
[X] Loss of Morning Erections
[X] Loss of Spontaneous Erections
[X] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[X] Inability to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility

Mental
[ ] Emotional Blunting / Emotionally Flat
[X] Difficulty Focusing / Concentrating
[ ] Confusion
[X] Memory Loss / Forgetfullness
[X] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[X] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[X] Suicidal Thoughts

Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[X] Genital numbness / sensitivity decrease
[ ] Weight Gain
[X] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes

Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature

[ ] Other (please explain)

  1. What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug?
    1 month of Korean Ginseng (I now know this won’t work but might as well finish the bottle)
    I finally went on Monday to the Doctor who was surprised I had this experience following finasteride. I am getting bloods back tomorrow and will make another appointment then.

  2. If you have pre or post-Finasteride bloodtests, what hormonal changes have you encountered since discontinuing the drug (pls post your test results in the “Blood Tests” section and link to them in your post)?

  3. Anything not listed in the above questions you’d like to share about your experience with Finasteride?

  4. Tell us your story, in your own words, about your Finasteride usage and side effects experienced while on/off the drug.

Since starting Propecia in late 2013 - I had 3 healthy sexual relationships up until January 2015 when ED started to affect a promising long term relationship. I did not realise that this could be caused by Propecia as I assumed I was through the danger period having been on it for quite a while. My partner was very demanding sexually which had been fine but when your performance starts to dip it makes the experience less enjoyable and we eventually broke up - although in hind sight I think she may have stuck by me if I had explained the situation. I later stopped the medication realising it might be responsible and hoped that things would right themselves in a reasonably short period of time. I thought things were picking up again (I could get quite hard during masturbation) in August 2015, so started dating again but did not feel that I was responding enough to attempt sex and so the dating was short lived.
Again I felt a slight improvement in November 2015 while masturbating and thought perhaps I could attempt sex again if it kept improving (really I was being optimistic) - so I went back into dating. I met someone very special who I could really see a future with and was hopeful, however performance went from bad to much worse about two weeks before the night came when sex was on the cards. I knew sex was important to her from a relationship and while she attempted to turn me on there was nothing I could do but kiss and avoid it getting any further. That was the end of that and what prompted me to see my doctor last Friday (bloods taken, results tomorrow) I have booked an appointment to get counselling next week, my first time and perhaps it will help to talk this through, I just have visions of that night, my ideal woman trying her best to get me into bed and not being able to respond - which is torture!
About 5 years ago, playing in a loud band I got tinnitus - this feels like that period straight after when I was going out of my mind. Eventually I got used to it and live with it and hardly notice it. However, my manhood is now totally insensitive, in the last few days I have been unable to achieve orgasm let alone more than a 25% erection. I don’t know if there is any shrinkage as it’s hard to tell… That is my story so far. I registered today in the hope that maybe I could share a good news story in a few years time. But really I feel pretty low - 37, losing my hair (modest but now that I don’t take propecia and looking at my brother that is likely to increase significantly). If I do recover in 5 years like some of the stories I have read on here I will be 42. I do not feel I want to go down the route of other chemicals to get around this as the results don’t seem to be good. On the plus side I did my longest run yesterday ever of 20km, a run of frustration which can probably be directly attributed to propecia.

Not sure if anyone is listening but just a quick update - I got my Testosterone results today - 26.2 NMOL/L (9.9 - 27.8)
I assume the brackets is the acceptable range - so I’m not sure TRT will help unless the idea is to raise your level way above normal.
I read another post on here that talked about HCG (pregnancy hormone) which sounded interesting and will discuss in my next doctors appointment. However, I am trying to come to terms with this and perhaps treat it as a new stage in my life - I have literally become a fitness freak over night, since my 20k run on Sunday I have done a 5k and an 8k tonight. I have started taking magnesium, zinc, omega 3 supplements on top of the korean ginseng. I have eaten only selected fruit/veg/nuts and eggs in a targeted way - e.g. spinach iron, nuts saturated fats etc… Perhaps this is me now. I realise now that I don’t even look at women day to day since I can no longer get excited… perhaps I can reconcile this change. Yes, everything I am doing is geared towards recovery, but I’m not going to expect it, if it doesn’t happen, then this is my life. This morning I did actually wake up with wood for the first time in ages although it went away within seconds… maybe there is a glimmer of hope in that. Don’t get me wrong, there is anger about propecia inside me and I will join any campaign to change the warning labels etc… I am absolutely devastated of course but I’m going to try and turn this into something else. Either that or this is all leading to a break down! Hopefully not. I feel my hair loss is really starting to accelerate and although I think I know I won’t, when you have no libido anyway - seemingly nothing to lose, it isn’t half tempting to keep the hair.
If you’ve got any tips or anything to say please feel free to reply.

Hi gman, sorry that this is happening to you.

Your member info is a little misleading as is states you started: 18 Oct 2006 and stopped: 15 Feb 2008.

I think you are on the right path trying to go at it natural. It’s probably the most reliable way, but takes time and patience. I’m in 26 months and, in spite of a few high to about 70%, I usually am around 20-30% libido. These days I hit a new low, as I started dating an amazing women, and could’t give her what she wants. Anxiety came back 110% and made me lose all progress.

I joined the gym yesterday and got ginseng from the drugstore to help manage my anxiety. I’m hoping that if I can control anxiety, libido will naturally increase.

Thanks for the reply progress - I have experienced one or two 70% days in the last couple of months and it’s been good to feel nearly normal for a little while, although libido always remains quite low. Stick with it, you never know - maybe in 3 or 4 years time things will be better for us… I’m waiting for a Urology appointment just to see what they recommend but I will almost definitely keep it natural going forward. If I get frustrated I just go running now - PB is coming down all the time!