i dont want to sound weak or shit, but i really tried to take the survey multiple times, and every time i fall into a deep depression, that it takes me a week or so to get better from …Plus to be honest, while i appreciate all the effort, that is put into this survey, i cant see, how its supposed to help our cause (Other than documenting our suffering to the next generations of arrogant doctors to learn and take seriously their patients suffering)…We need to attract the media into this issue, which is something really hard, considering the amount of other diseases on this planet…Funding a research through the foundation to find anything that might help is just a dreamy way to waste money (Again i appreciate the effort really), but there is no way in my mind, for a researcher to understand a disease, if he cant create an animal model of the same disease…Only way is to dissect some of us, and look deeply inside every organ, which is something that cant happen (Since we are all young, and noone is dying from old age any soon)…I dont want to sound pessimistic, but its the truth, and if we want to solve this issue, then we have to experiment on ourselves (Taking into considerartion, that it might lead us to the grave, which is a risk im willing to take)