Welcome to our community. Please fill in the following template as a way of introducing yourself, and helping others to understand your background and situation.
Where are you from (country)? United States
How did you find this forum (Google search – if so, what search terms? Via link from a forum or website – if so, what page? Other?) Reddit
What is your current age, height, weight? 23, 5’9, 125
What specific drug did you use (finasteride, dutasteride, saw palmetto, isotretinoin/Accutane, fluoxetine, sertraline, citalopram, leuprorelin, etc…)?
Finasteride
What dose did you take (eg. 1 mg/day, 1 mg every other day etc.)? Dosage varied
What condition was being treated with the drug?
Hairloss
For how long did you take the drug (weeks/months/years)?
3 months
Date when you started the drug?
March 2023
Date when you quit the drug?
June 2023
Age when you quit? 23
How did you quit (cold turkey or taper off)?
Taper off, but only for like 2 days
How long into your usage did you notice the onset of side effects? 2.5 months
What side effects did you experience that have yet to resolve since discontinuation? Slight pain
Check the boxes that apply. You can save your post first, then interactively check/uncheck the boxes by clicking on them. If your symptoms change, please update your list.
Sexual
[ ] Loss of Libido / Sex Drive
[ ] Erectile Dysfunction
[ ] Complete Impotence
[ ] Loss of Morning Erections
[ ] Loss of Spontaneous Erections
[ ] Loss of Nocturnal Erections
[ ] Watery Ejaculate
[ ] Reduced Ejaculate
[ ] Inability or Difficulty to Ejaculate / Orgasm
[ ] Reduced Sperm Count / Motility
Mental
[ ] Emotional Blunting / Emotionally Flat
[ ] Difficulty Focusing / Concentrating
[ ] Confusion
[ ] Memory Loss / Forgetfulness
[ ] Stumbling over Words / Losing Train of Thought
[ ] Slurring of Speech
[ ] Lack of Motivation / Feeling Passive / Complacency
[ ] Extreme Anxiety / Panic Attacks
[ ] Severe Depression / Melancholy
[ ] Suicidal Thoughts
Physical
[ ] Penile Tissue Changes (narrowing, shrinkage, wrinkled)
[ ] Penis curvature / rotation on axis
[ ] Testicular Pain
[ ] Testicular Shrinkage / Loss of Fullness
[ ] Genital numbness / sensitivity decrease
[ ] Weight Gain
[ ] Gynecomastia (male breasts)
[ ] Muscle Wastage
[ ] Muscle Weakness
[ ] Joint Pain
[ ] Dry / Dark Circles under eyes
Misc
[ ] Prostate pain
[ ] Persistent Fatigue / Exhaustion
[ ] Stomach Pains / Digestion Problems
[ ] Constipation / “Poo Pellets”
[ ] Vision - Acuity Decrease / Blurriness
[ ] Tinnitus (ringing or high pitched sound in ears)
[ ] Hearing loss
[ ] Increased hair loss
[ ] Frequent urination
[ ] Lowered body temperature
[ x] Other (please explain)
What (if any) treatments have you undertaken to recover from your side effects since discontinuation of the drug? None
If you have pre or post-drug blood tests, what hormonal changes have you encountered since discontinuing the drug (please post your test results in the “Blood Tests” section and link to them in your post)? None
Anything not listed in the above questions you’d like to share about your experience?
Tell us your story, in your own words, about your usage and side effects experienced while on/off the drug.
I am 23 years old and have a bald spot on my crown. I’ve always had really bad health anxiety since I was little kid, so I was really scared to start finasteride. Think I may have some other mental issues as well. I got a prescription and was told by my derm they had never heard of PFS at all. I started to take it off and on every few days. Like 3 times weekly (MWF). Around the 2.5 month mark, I started taking it daily. I don’t even now if it was from the drug, or if any of you have ever heard of this as a symptom of PFS, but I started getting some pain in the head of my penis. It felt “sore” in a way. I quit immediately due to my horrible health anxiety. It seemed to subside after about a week and a half, it has since returned though. It seems to be my only symptom at all. It’s not debilitating in any way, and I even wonder if it was cause by fin at all to be honest.
I’m struggling so bad mentally though. I’ve dealt with depression before, but hair loss is genuinely the worst thing to ever happen to me in my entire life. I’m so fucking depressed and even suicidal because of the hairloss. I want to start using finasteride again even, but am also fucking terrified of PFS.
I feel like I have no real option here. If I use fin, then I get anxious and start searching for anything that might be “wrong” with me. If I don’t use fin, I become extremely depressed and suicidal due to my hairloss. I don’t know what to do anymore. My body dysmorphia is killing me.
Self-reporting template - ONLY USE FOR FUTURE POSTS TO REPORT ANY TRIALS OF TREATMENTS, NOT YOUR INITIAL MEMBER STORY
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Name of the therapy/substance:
- Dosage:
- How often you took it:
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Status
- Still using [ ]
- Stopped with no lasting change to initial symptoms [ ]
- Stopped with persistent change to symptoms [ ]
- Duration of use: Days [ ] Months [ ] Years [ ]
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Response when you started:
- Greatly improved [ ]
- Slightly improved [ ]
- Stayed the same [ ]
- Slightly worsened [ ]
- Greatly worsened [ ]
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Current response (if you’re still using the therapy/substance) OR Response in the time before you stopped the treatment
- Greatly improved [ ]
- Slightly improved [ ]
- Stayed the same [ ]
- Slightly worsened [ ]
- Greatly worsened [ ]
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Lasting changes to initial symptoms after cessation (if you have stopped for more than 3 weeks)
- Greatly improved [ ]
- Slightly improved [ ]
- Stayed the same [ ]
- Slightly worsened [ ]
- Greatly worsened [ ]