Those in the northeast U.S., please reply to this thread

General Discussion Media & Awareness
#1

If you are located in the northeast United States, please reply to this thread. Do not include your city or state, please just indicate that you are located in this part of the world. Thanks

#2

well sure I live in this area. I you trying to get a head count?

#3

Yup, I’m in the northeast.

#4

northeast here

#5

PM’s sent to all who have replied thus far.

#6

Guess we’re suiting up… :sunglasses:

#7

northeast here

#8

I’m in the northeast

#9

I am also in the northeast

#10

Northeast.

#11

Same

#12

I’m from the northeast and spend a lot of time up there. But I am not a resident.

#13

PM’s sent to all that I did not catch the first time around.

#14

Northeast here

#15

northeasterner.

#16

I am also in the northeast

#17

mhmm

#18

Everyone,

After discussions with several of you, and after conferring with a few outside the forum, the publicity opportunity for which we were gathering northeast PFS sufferers, to ascertain interest, has been placed ON HOLD.

Am willing to revisit this, but the opportunity also presents a number of issues. Also, the idea was conceived before the recent attention of the mainstream press to our condition.

All the same, maintaining a list of who is in the northeast U.S. is useful for other purposes; for example if a laboratory becomes interested in conducting tests on us, maybe a support group at some point, etc.

In case the opportunity is revisited, please do not post any details about what we’ve discussed.