This forum's responsibility?

[Necro]

You know I think to myself how did this happen to me and you know what I go around the net and I share my story trying to scare people away from ever taking finasteride im just wondering why wasnt there prevalent information about this before. I think considering this forum has been around for a long time the admins should have at least been editing the wikipedia article on finasteride to include possibility of long term side effects.
I was prescribed generic finasteride in december 2011 I was told the drug was safe and I looked online all I saw was how great and successful this drug was at regrowing hair and that DHT was a useless hormone. If you got side effects they would go away after discontinuing the drug. I wasnt someone studying medicine or someone with innate knowledge of hormones. When I was 22 I had never heard of shit like this happening, I had no idea there was the possibility for long term damage from pharmaceutical drugs or hidden side effects and i didnt know to look for it.
I feel like if this forum was at least the #1 thing on google searches for propecia or people were actively trying to spread information on this drug maybe some people’s fates could have been avoided. Every single doctor I see now I show all the information taken from medical studies, I show them the video of doctor chrisler speaking about this drug in 2010 i think. It just makes me sick to my stomach that this still happens after how many years people have known.

Maybe im bitching but I personally feel like my life has been permanently ruined by this and I feel like the major problem is lack of information and the spread of misinformation. I honestly doubt the PFS foundation will do anything meaningful towards treating this for a long time meanwhile the people in their late teens or 20s are hit hardest by this. You get the incredible stress of not having a normal life knowing you poisoned yourself for fucking nothing and the knowledge that your youth, money, and time are being wasted. I feel like all the happiness has been sapped from me and the person i used to be is long dead. FFS I was a student in school writing exams when this happened to me. Honestly a good day for me is one where I dont contemplate someone just fucking shooting me in the head because that would be so much easier.

[THETIGERSHULL]

@Necro

You know I think to myself how did this happen to me and you know what I go around the net and I share my story trying to scare people away from ever taking finasteride im just wondering why wasnt there prevalent information about this before. I think considering this forum has been around for a long time the admins should have at least been editing the wikipedia article on finasteride to include possibility of long term side effects.
I was prescribed generic finasteride in december 2011 I was told the drug was safe and I looked online all I saw was how great and successful this drug was at regrowing hair and that DHT was a useless hormone. If you got side effects they would go away after discontinuing the drug. I wasnt someone studying medicine or someone with innate knowledge of hormones. When I was 22 I had never heard of shit like this happening, I had no idea there was the possibility for long term damage from pharmaceutical drugs or hidden side effects and i didnt know to look for it.
I feel like if this forum was at least the #1 thing on google searches for propecia or people were actively trying to spread information on this drug maybe some people’s fates could have been avoided. Every single doctor I see now I show all the information taken from medical studies, I show them the video of doctor chrisler speaking about this drug in 2010 i think. It just makes me sick to my stomach that this still happens after how many years people have known.

Maybe im bitching but I personally feel like my life has been permanently ruined by this and I feel like the major problem is lack of information and the spread of misinformation. I honestly doubt the PFS foundation will do anything meaningful towards treating this for a long time meanwhile the people in their late teens or 20s are hit hardest by this. You get the incredible stress of not having a normal life knowing you poisoned yourself for fucking nothing and the knowledge that your youth, money, and time are being wasted. I feel like all the happiness has been sapped from me and the person i used to be is long dead. FFS I was a student in school writing exams when this happened to me. Honestly a good day for me is one where I dont contemplate someone just fucking shooting me in the head because that would be so much easier.

Necro

Your not on your own my friend, and age has no bearing, I’m
36 and think of ending my life daily. I’m 6 weeks into my stay in the mental home with one attempted suicide whilst I was in here.

I think we all have a responsibility to spread the word and anybody can get information onto Wikipedia, not just the admin here.

Necro, please email me or send me a private message at anytime.
I’m here for you and I mean that.
We’ve got to support each other.

[jorbie]

Necro -
I feel your pain, I know your anger. I too, was just as pissed off and despondent when I realized what I had done to myself. How long have you had PFS? I promise you though, better days are ahead. Your body will figure some of this out on its own. Year one is truly the hardest. I was suicidal most of my first year. Things get better - much better in some cases. So hang in there and pm me if you want to talk.
As far as the Foundation - in the last 3 months they have helped us get research started at two of the world’s leading research institutes. That is more progress than was made in the previous 15 years combined. Hang in there…the calvary is coming.

[ihatefin]

@jorbie

Necro -
I feel your pain, I know your anger. I too, was just as pissed off and despondent when I realized what I had done to myself. How long have you had PFS? I promise you though, better days are ahead. Your body will figure some of this out on its own. Year one is truly the hardest. I was suicidal most of my first year. Things get better - much better in some cases. So hang in there and pm me if you want to talk.
As far as the Foundation - in the last 3 months they have helped us get research started at two of the world’s leading research institutes. That is more progress than was made in the previous 15 years combined. Hang in there…the calvary is coming.

Very, very well said.