This forum took down the thread about Kevin Mann, but his videos attacking us are still up

As the title says, the dude still has videos on youtube attacking, smearing and insulting this group and its members, so what gives?

He’s a really damaged person with a low self esteem that builds himself up by abusing another vulnerable group. It’s toxic and sad but also dangerous because he’s providing bad information to his followers in order to boost his own fragile self esteem. I don’t know if he actually believes what he’s saying and he’s stupid or he’s just really evil, but there are unfortunately bad people in the world that do harm while convincing themselves that they’re doing something important.

1 Like

We decided to take down the thread because Kevin messaged moderators about it, as it contained links to a website he was pursuing defamation action against. Whether or not the claims being made there were true wasn’t up for us to decide and we’d rather err on the side of legal caution.

It’s also best to ignore him. His videos have practically zero influence on whether we make progress or not and our collective energy is better spent elsewhere (e.g. fundraising, speaking on the PFSN YouTube channel, volunteering, etc). He’s personally used my image as the cover for one of his deranged rants and I could really care less. His opinion about this issue should mean very little to anyone.

6 Likes

Nobody with any influence in the medical field will assign any value to what somebody like him says but he is misinforming a sizable group of people and people are continuing to get injured after trusting his opinion about the safety profile of finasteride.

Not everybody cares about that but I do care that he’s dangerously continuing to mislead his audience in exchange for some random internet attention.

Sounds like he can dish it out but when it comes back to him, he can’t take it in return. If he was that confident in his message, he wouldn’t have any problem with people disagreeing with him. He’s a fraud, he knows it.

1 Like

I hope all the more that the Kiel study and the genome study will start successfully and that a genetic predisposition, a biomarker and an epigenetic pathomechanism can be determined that can no longer be refuted and the way to the recognition of the post-finasterid syndrome as a clear complication of finasteride use is no longer refutable. It hurts with that definite physical, sexual, and mental response after stopping finsateride just to be recognized as a depressive. One big US wide press campaign like Trump is taking finasteride, they know how dangerous that can be and the public worldwide would be warned. I too would have been warned and would have thrown the finasteride sample pack and the chairs through my urologist’s practice. Anyone who gets information on the internet and recognizes the dangers of finasteride is more likely to be deterred by these sick lunatics like Kevin Mann. The problem is that the long-term side effects are concealed on the package insert and played down in language. On the Internet, even google warns of finasteride side effects as the top search result. That and the many videos is the right way.

5 Likes

You certainly have more tolerance than I do. I guess that I correctly assumed that he threatened to sue over the article link.

Using your face on one of his videos is pretty messed up though. I shouldn’t be surprised that he would stoop that low. Pretty sure just reporting the video would get it taken down pretty quickly if he is using your face without permission in a derogatory way

1 Like

Sadly, I have to disagree about his influence though. A number of people on here, have said that they listened to him before using fin. His misinformation may very well have contributed to PFS cases.

On the bright side, the pfsnetwork has done a wonderful job in raising awareness which I applaud.
Also, more popular “manosphere” youtube channels, like MPMD and Leo, have stated very clearly that yes, PFS is very real. The tide is definitely turning

2 Likes

Sorry, you are right, he does have influence over people considering taking the drug. I meant to say that in terms of us making progress towards viable therapeutic treatments at scale, meaningful awareness, regulatory action, etc, these type of characters have very little influence.

We’re in a strange situation where unfortunately, despite thousands of self-reports indicating a problem, greater regulatory action will not occur until there is a causal link between the drug and the disease. And until the disease is recognised and there’s greater warnings for potential users, there’s limited ways we can counter the influence of this kind of misinformation.

I agree the tide is also turning. I can’t imagine an outlet like Haaretz covering PFS so thoroughly even just a few years ago.

2 Likes

I’ve spent a lot of time thinking about this over the past few months since the unfortunate FDA decision and I think it was a combination of corruption, incompetence, and lack of resources that prevented them from making the right decision. With respect to mechanistic and empirical evidence, we are pretty good in terms of proving PFS but it will definitively help as the messaging and science become more simple and clear over time.

Pretty certain the official at the FDA was overwhelmed with the request and didn’t know what to do so he handed it over to Merck or Organon to provide a response for them. Some of the comments seemed very unlikely to have come from the FDA.

Maybe would have been more likely to succeed if the petition were more concise but I thought it was appropriately very thorough and should have been successful if the process were legitimate. the bar for us to gain recognition is really absurdly high but we will get there in time.