I don’t want to be cured in 10 or 20 years from now and watch my life pass by before my eyes. I want my life back and in any case to cling onto some form of hope here. This drug has taken away 7 months of my life and I’m deteriorating very fast not getting better, I almost crashed the car today because I was so disorientated and in so much pain, I can’t function as a normal human being anymore or wait to see in the future if I’ll get osteoporosis or some brain disease as a direct consequence of this drug. This isn’t a life, the only solution that I’m seeing is that if we take Merck and Co to court on behalf of the foundation and pressure them to donate at least $10 million annually in search for a cure that’s 4% of their yearly profits that they make off the drug, this can absolutely be done. If we had the professors, doctors and the data on our side which we already do to show what this drug is doing then we already have clear cut evidence. Inform the families that have lost loved one’s as witnesses, the people who’ve been permanently destroyed by it, imagine 1000 men showing up to them courts with families, it would give us all the media attention we ever needed. We are lacking on resources, without the resources we can’t do much except wait hopelessly for studies that have over expired there course. We need studies being carried out year in year out, I urge the leaders behind the forum to least give it some form of thought because in my own eyes this is the only solution for all of us to have a better outcome in the future.
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